Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Reading Dr. Green's Book And Feeling Angry


Sarah8793

Recommended Posts

gfp Enthusiast

The situation that progressive doctors are in is a little like someone in aincient Rome coming up with the idea that lead water pipes are bad for health.

People just don't want to know and it goes against much of what is viewed as being a 'civilised' society.

Of course we can look back now and be horrified that the Romans not only thought lead was harmelss but necassary for civilisation.

Our society has grown up with sandwiches and burgers buns etc. and most convenience food being wheat based so we view the all-night deli or drive through fast food as something we define as a standard of civilisation.

Whenever someone suggests, hey 1/3 of people might actually be adversely affected by a common protein like gluten there is a huge backlash .... Dr. Fine and others face an uphill battle largely due to peers who choose not to read the studies that have been made and instead seek to maintain the status quo.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 52
  • Created
  • Last Reply
mle-ii Explorer

Just started reading this book and it's been pretty darn good so far. Only through chapter 2 though.

I really got a lot out of his talk about how the GI system is supposed to work and how gluten affects it. What's funny is that after that explanation and him talking about celiac being autoimmune I'm questioning that it is really an autoimmune reaction. Immune reaction for sure but autoimmune I'm thinking not.

Here's my line of thinking that I posted elsewhere.

What's interesting is that I'm now having thoughts that there is no such thing as Autoimmune, well I was before, but even more so now.

For example, the bacteria in the colon, even though it is a part of the digestive system it is indeed not part of self, so in that regards attacking the bacteria is not an autoimmune response. I'm even thinking that it's not even an "incorrect" response. It is a real response to a part that isn't part of the body therefore it is the correct response. My guess is that something set off the immune response and that something or some other mechanism is not letting it stop; it is continuously protecting itself even at its own demise. The body is on high alert protecting itself from all matter that it thinks doesn't belong.

Related to this, I just read the first two chapters of Dr Greens new book "Celiac Disease, A hidden Epidemic", where he describes celiac as autoimmune and describes the sequence of events that lead to the distruction of the villi. What is odd is that reading the response made sense, and didn't sound at all like an autoimmune response. It sounds like the system is working perfectly well in protecting itself from an attack.

Look at what it does:

1) Body sees something that doesn't belong, doesn't belong in that it's trying to get into the body via the mucosa, the thing is made of protein much like other invaders (virus) or perhaps even has a pathogen along for the ride.

2) The body starts an immune response to regect and attack the object.

3) Part of the immune response is to create antibodies (which do no good) and to creat inflamation.

4) This inflamation destroys the villi. But this is a bad thing right? Well look at this way. The body is reducing the attack surface (destroying villi), making itself impenetrable (inflamation) and sending in the troups to attack (hormones, chemicals, etc).

How was any of that autoimmune? The body did not attack itself, it protected itself and does a pretty damn good job. If only the brain attached to that body would listen and stop ingesting the object it's trying to attack/repel.

Isn't the human body absolutely amazing?

Mike

Link to comment
Share on other sites
queenofhearts Explorer
Since you mentioned looking for a good book, I can't help but recommend Michael Pollan's "The Omnivore's Dilemma" which I'm in the middle of right now. Just a an unflinching look at what has happened in this country with our "disconnect" from nature in terms of the "food" we grow and everything else! It is, at times, painful to read, even though I've been aware of these things, his research is painstaking. Anyone interested in eating well and supporting a return to "whole foods" ought to read it. Very illuminating and thought-provoking! Celiac or not!

lisa

Hm, I just saw that on the shelf at the library & almost picked it up, but didn't because I'm more of an herbivore! I really like his writing though.

Leah

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,061
    • Most Online (within 30 mins)
      7,748

    Stephanie Thompson
    Newest Member
    Stephanie Thompson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...