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Introduce Myself
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7 posts in this topic

Hello!

My name is Christian, a male from New York City. As I was reading here I realized I'm not really a teenager (I'm 20), but I guess close enough. I've been gluten-free since January and a vegetarian since 2000. Just wanted to say hi to you all...I'll be posting and reading a lot :)

Say hi!

Christian

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Hey Christian,Welcome to the board! Don't worry, there are a couple of us that post on the Teenager board that aren't necessarily considered teenagers. My name is Emily, I'm 19 years old and was diagnosed about 2 years ago. I'm from Kansas, but I'm currently going to school in Idaho. This is great forum with really responsive and helpful people, so post away :D

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Hello! I am Kristina, and will be 19 in about 2 weeks, eek. I will be in NYC this weekend, how exciting. I am so glad you are a vegetarian! We'll have to talk about that! Stay!

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Thank you so much!

I have so many questions and stuff but like, I don't know where to start or what I should say about myself?

These boards seem really cool, and I'm so happy to have found others to talk to.

Chrisitan

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Hi,

Welcome to the board. This is a really great spot to get support, as well as build on your knowledge. In February of this year, on the 17th, I guess, I came here with no knowledge of celiac disease....I find it amazing to look back on how much I've learned over the months without realizing it. I'm sure you'll find the board as helpful as we all have....and maybe you'll even make a few friends here...I know many of us do. :) Just post your questions and we'll start answering.

-celiac3270

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Welcome! I'm 14, I live in Stanford California and I was diagnosed 12 1/2 years ago so if you have any ?'s you can e-mail me.

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Hey everyone, my name is Sarah, and i've been gluten free for 17 years. I just turned 18, my parents found out i was celiac when i started eating solid foods. i was really ill, was i was malnourished, i was absorbing anything. I'm now healthy and happy, and been living gluten-free ever since. I love this forum, its really helpful and the ppl here are really nice!

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    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
    • Try to stick to a whole foods diet.  Things like unseasoned stew, soup, etc.  Things easy-to digest, preferably not processed by a anyone except you.  Too often new celiacs start using gluten-free foods (cookies, bread, crackers).  Your body is not used to these grains and they often contain lots of junk.  For example, I react to Xantham gum.  It does not bother my gluten-free hubby, but it gets me every single time!   Did you read our Newbie 101 thread under "Coping"?   It contains lots of valuable tips.  Make sure those meds are gluten free.  Supplements too.   I hope you feel better soon!    
    • Here are the actual tests.   http://www.cureceliacdisease.org/screening/ Insist on the complete panel.  Let them know (your doctor) that your father had celiac disease.   Document in writing!  If you have celiac disease, your life can be improved.  All the things I attributed to aging were actually related to celiac disease.  It is never too late to feel well!  I am in my 50's but my Aunt iis 81.  We celebrate a Gluten free Thanksgiving every year!   Oh, my kid does not have celiac disease, but she is tested every few years even though she is symptom free!  There are silent celiacs.  My symptom?  Anemia.  No tummy issues.   Please advocate for your health.  Keep all records.  Doctors can not ignore written facts and requests.    
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