Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Long Till Pain Subsides


Sheryl in NJ

Recommended Posts

Sheryl in NJ Newbie

Hi all,

I started a gluten-free diet 10 days ago. I have noticed an increase in my energy level, and for the first 8 days, the abdominal pain I was experiencing intermittently was not present. Well day 9 and 10, the pain is back in full force. Does this mean that the gluten-free diet is not the answer to fit my symptoms? I am also menstruating beginning on day 7...does this have any effect?

My history:

I have been having this lower right pain in my belly. This has been going on for about 10 months now. I have been seeing the doctor since last November. They have done a CAT scan, two different pelvic and abdominal ultrasounds (at two different times), a colonoscopy, and bloodwork (standard stuff). Nothing reveals anything positive. My family practicioner asked me to humor her and consider Celiac Disease and try the gluten-free diet.

Thanks for any info you can share.

How long did it take on the gluten-free diet to notice a real difference?

Sheryl

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi Sheryl, welcome.

I think your doctor is a gem. I would give the gluten free diet some time, at least six weeks, and make sure that everything is gluten free, toothpaste, new wooden cutting boards, supplements....it is a learning curve.

Link to comment
Share on other sites
Aerin328 Apprentice

Yes, give the gluten-free diet some time. I just began about 4 weeks ago and I also still experience intermittent pain. From what I read on numerous other posts, recovery of primary symptoms (including cramps) can take 2-3 months to begin and quite a bit longer to subside totally. Stay on it! In the mean-time try Gas-X - it seems to help the pain for me sometimes.

Link to comment
Share on other sites
Deb B Newbie

Hi,

When I read about gluten and decided to stop eating gluten because of IBS symptoms, my symptoms improved in about 3 days especially the bloating and diarrea. I still have symptoms, especially if I accidently eat wheat, and I think it can get worse with my cycle. (My cycle is harder to notice since I have an IUD that stops my periods, although I do ovulate). Basically, I was having severe bloating and cramps at least once a week - like childbirth pains - and now I've gone for 2-3 weeks feeling pretty good if I'm really careful about what I eat. I have way less bloating, but seem to have more diarrea when I've been exposed to gluten. At one point I thought dairy made me bloat (or constipated) and wheat gave me diarrea, based on my experimenting with different diet combinations. I did not test positive with a blood test although I warned my doctor I had been avoiding wheat and all gluten for 4 months and my internist was skeptical about my results, but when I tried eating wheat again, I got very sick again (diarrea for about 2 days). I'm not sure what to do next except to keep a journal about my diet and symptoms or pay for lab work at enterolab.

If you have pain in your belly, it could also be a hernia, especially if you've had any children. I had pain on and off on my right side, extending to my kidneys at times, and my doctor concluded it was a small hernia. I was tested for gallbladder at the time too. It rarely hurts me anymore (my third child is now 10), but I hear hernias are very common after childbirth.

I guess as long as we are tested to keep eliminating the serious illnesses, we do no harm by staying off the gluten. I've been trying since January and I'm getting pretty used to it. I still get sick, but not as often. I also take a green powder "green magic" and digestive enzymes which help me cheat a little on milk products which I also avoid. Green magic keeps my system moving which I seem to need to feel normal.

Hope this helps.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...