Any Celiac Athletes?
#1 Guest_sickrunner_*
Posted 12 July 2004 - 04:18 AM
Thanks!
Amy
#2
Posted 12 July 2004 - 05:19 AM
My I also ask how your energy is doing? Sounds like it's doing great since you can do a marathon. I'm struggling. Some days my energy sky rockets, others . . . . . terrible. I don't know if it's diet or just being celiac disease. I hear both. If you have any suggestions for me, I would love to have your input. I'm logging 18 to 20 miles a week, but just can't seem to break that. I would like to log at least 25. I added some hill running to try to build some endurance muscle, haven't noticed too much of a difference, except for the next day's run, then I'm back to where I was.
Have a great day!
Great health to you. Also check our Runner's World message boards, www.runnersworld.com.
Christina-ROCK 'N RUN!!
#3
Posted 12 July 2004 - 08:30 AM
mstone@ups(dot)edu
#4
Posted 12 July 2004 - 01:29 PM
#5 Guest_Sibewill_*
Posted 12 July 2004 - 07:57 PM
#6
Posted 13 July 2004 - 07:32 PM
I have called a couple companies regarding their products. Hammer Gel is gluten-free; Gu is gluten-free; Gu H20 sports drink it gluten-free; Ultima is gluten-free (electrolye replacement). During running I use GU and Ultima. On the bike, I eat rice bread with penut butter or soy butter (cut up and stuff in my bento box). I am also a big fan of tomato juice during long long long runs (3+ hours) - sounds nasty - but it works - good source of salt too. When you are checking products out, just make sure that the maltodextrin is dervied from either corn or rice. I also eat a ton of apple sauce - the kind that is organic without added sugar. Before racing, I eat gluten-free waffles from Trader Joes with penut butter or a P&J sandwich, a pear, and some gluten-free soymilk.
Papadini has a Hi-Protein Pure Lentil Bean Pasta which is gluten-free; 2 oz has 190 calories, 1.0 g of fat, 33 carbs with 5 g of fiber and 13g of protein. Ingredients are lential flour, salt and baking soda. Good recovery meal.
Lisa
Reno, NV
Confirmed Celiac by biopsy - July 18th 2003
4 people in family with Celiac Disease (mom, two brothers, me)
lisabarella at hotmail dot com
#7 Guest_sickrunner_*
Posted 14 July 2004 - 04:00 AM
Wow! Thats great! Thanks for all of the info. What kind of sports do you do? Do you find any problems with energy levels? I have really been struggeling lately. I have my mind set to get more involved in triathlons, but I am worried that I won't be able to because of my Celiacs. Any tips?
Thanks!
Amy
#8
Posted 14 July 2004 - 08:01 AM
mstone@ups(dot)edu
#9
Posted 14 July 2004 - 02:44 PM
My energy levels bounce all around, believe me. If you are on a gluten free diet, have normal iron levels, and are absorbing minerals and vitamins from your food, you should be OK. I find myself always hungry since when I eat my body (brain) just doesn't absorb all of the nutrients from the food. When I was anemic, I was sleeping and tired all of the time. Not being anemic has helped with my altering my fatigue, and by making me feel more alive and alert. So first, I would check you iron levels. If your hemoglobin is low, then your body doesn't have the proper levels to transfer O2 to your working muscles. So, you will fatigue quicker, even with just aerobic activity. When I go anemic, I can tell right away; my legs burn, my lungs burn, and I feel wipped out. Have you gotten another biopsy since your dignosis. If not, I would suggest it. They will be able to tell if the gluten free diet is working. Or you could do two tests (fecal fat and xylose). The first measures the amount of fat in your stools. Too much, means malabsoption. The later tests, measures simple carbohydrate absorption. This is key. If you drink 12 oz of a sports drink with 20 grams of carbs, but only 10 are being absorbed, then you could be in trouble! Are you tired during exercise? After? How long have you been working out? Do you have a good aerobic base built up? Remember that each sport (swim, bike, run) requires differnet muscle groups and capillaries. So as you train, more and more, you will build the up the capillaries surrounding the working muscles, which will also help improve 02 transportation. Ok? Keep the questions coming - I love this stuff! Also, Lava Gel is Gluten Free and Airborne is Gluten Free. There are also some coated bars on the market that are gluten free - Geni Soy has two bars - the choc penut butter and the yogurt penut butter. Mostly a bar with sugar and some protein. Better recovery bar then pre training bar. Think Thin has a bunch of bars with 20 g of carbs, 20 protein, and 7 g of fat, but the carbs are mostly from sugar alchols (so they don't effect your blood sugar). Plus, sugar alchols are not easily digested by most people, so if you eat too many, your stomach will hurt! Geni Soy also has soy chips with are gluten free. Their website has a lot of info on their gluten free products. I contacted Power Bar but have not heard back yet.
Lisa
Reno, NV
Confirmed Celiac by biopsy - July 18th 2003
4 people in family with Celiac Disease (mom, two brothers, me)
lisabarella at hotmail dot com
#10 Guest_sickrunner_*
Posted 15 July 2004 - 04:07 AM
Thanks for all of the info. You should go into this professionally...are you a trainer? In response to your questions I am tired just about all of the time lately. I try and work out as much as I can and when I do, I really get wiped out and don't feel as though I am getting as much out of my workout as I used to. I think that I have a pretty good aerobic base, I used to log 30 to 35 miles/week running though now I am barely making it through a 3 mile run. I have not gotten a second biopsy because I will be moving soon to PA and don't currently have a doctor there.
Have you had any experiences with triathlons? Even though I am in the middle of batteling this right now, I would still like to start training. I am very comfortable running, but need work on the swimming and biking. I was thinking about taking a spinning class, but am a little bit nervous because I am not sure if I will be able to keep up. Any advice?
Thanks again,
Amy
#11
Posted 15 July 2004 - 02:47 PM
If you are really that tired after a 3 mile run, I would head to your Celiac doctor!!! I can't give advice on biking - I am slow, slow, slow. And, lastly, why the hel* are you moving to PA? JK. (I can check with my mom who lives in PA - I think there is a good celiac doc in center city Philly at Jefferson).
Oh yea, when your tired from your run, what kind of of tired is it? Local muscle fatigue (hams, quads)? Whole body fatigue? Neural fatigue? Do you feel like your lungs give out way before your legs, or the opposite? Where do you live?
Professional? Nope. I just like helping others, so they don’t have to go through the same shi* that I have over the past 12 months!
Cheers,
Lisa
Reno, NV
Confirmed Celiac by biopsy - July 18th 2003
4 people in family with Celiac Disease (mom, two brothers, me)
lisabarella at hotmail dot com
#12 Guest_sickrunner_*
Posted 16 July 2004 - 04:51 AM
I am actually really excited about moving to PA! I am starting at Wharton at UPenn in their MBA program next month and can't wait! Doesn't hurt that I have a great guy that lives there already
When I run I tend to have local muscle fatigue. I am getting used to being gluten-free and hoping to see some results soon. I am focusing on cross training, yoga and weight lifting right now and cutting back on my running until I get my energy under control.
Thanks again for all of your advice.
Amy
#13
Posted 17 July 2004 - 07:01 PM
Awesome! That sounds fabulous:) What doctor are you going to see in Philadelphia? What triathalon group? I think there is also a good celiac support group there too! You should have a blast:)
LB
Reno, NV
Confirmed Celiac by biopsy - July 18th 2003
4 people in family with Celiac Disease (mom, two brothers, me)
lisabarella at hotmail dot com
#14 Guest_idahok_*
Posted 18 July 2004 - 01:46 PM
Kathy
#15 Guest_~wAvE WeT sAnD~_*
Posted 18 July 2004 - 02:10 PM
Just wanted to let all the runners know I've been feeling what they're feeling!!!! Hopefully after this Scope business I can get back in the game--our cross country coach has just gotten fired and school starts in Aug.!!! The training packet has not yet arrived!!!
Keep running!
~Jill

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