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How Long Can The Pain Last?

CeliacStinksKLS

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CeliacStinksKLS Newbie
CeliacStinksKLS
Posted

Hi All,

I've had Celiac Sprue for over 2 years. I got it after brain surgery. So believe it or not, still kind of new to this disease. On Saturday I went to a vegetarian/vegan cookout, so I thought I was pretty safe and asked what was in a dish and there was nothing that had gluten in it, but all she had to do was forget one ingredient, and we're screwed, right? So, anyway, since Saturday, I've had the cramps/pains, but not only in my stomach, but if I bend over a little bit while I'm sitting up, I get the pains in my chest and then radiating to my back. The pains are subsiding a little, but not enough. I still have to be careful when I bend and I still have the pains/cramps in my sides. I was just wondering, how long can these pains last? Thanks in advance for your reply.

KLS

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Aerin328 Apprentice
Aerin328
Posted

Well I'm new to this, but from what I've read on many posts on this forum, a glutening lasts around 2 weeks. Hope you feel better soon!

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oceangirl Collaborator
oceangirl
Posted
Well I'm new to this, but from what I've read on many posts on this forum, a glutening lasts around 2 weeks. Hope you feel better soon!

Yes, that's what stinks and why gluten-sensitive people can seem obssessive about gluten! It can be awhile before your body returns to "normal?" Feel better soon.

lisa

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Guest Viola
Guest Viola
Posted
Well I'm new to this, but from what I've read on many posts on this forum, a glutening lasts around 2 weeks. Hope you feel better soon!

Please keep in mind that everyone is different both in the symptoms of a glutening, and the length of time it takes to recover. Some can recover to near normal in as little as two or three days, and some, usually those who have other problems, can take up to two weeks. It's not a hard and fast thing, and it also may depend on how much of a contamination that you got. You will just have to learn how our body reacts on your own, I'm afraid. Non of us can really tell you what will be happening with your body in the event of a gluten contamination. I've been at this for 17 years, and can pretty much predict what will happen when I have a gluten problem, but it took me a long time, and my Celiac friends each react with some of the same symptoms, but also different symptoms and different lengths of time.

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Aerin328 Apprentice
Aerin328
Posted
Please keep in mind that everyone is different both in the symptoms of a glutening, and the length of time it takes to recover. Some can recover to near normal in as little as two or three days, and some, usually those who have other problems, can take up to two weeks. It's not a hard and fast thing, and it also may depend on how much of a contamination that you got. You will just have to learn how our body reacts on your own, I'm afraid. Non of us can really tell you what will be happening with your body in the event of a gluten contamination. I've been at this for 17 years, and can pretty much predict what will happen when I have a gluten problem, but it took me a long time, and my Celiac friends each react with some of the same symptoms, but also different symptoms and different lengths of time.

Yes I'm discovering it's very difficult to predict recovery times, as of course each person is different. I have a feeling I have a long way to go to learning my own reactions, as I am still in the "recovery period" from being sick for months and only being gluten-free for 1 month.

KLS, we hope you are feeling better soon!

(Btw Shirley, I love this signature:

Save the Earth, It's the only planet with Chocolate and Wine!)

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CeliacStinksKLS Newbie
CeliacStinksKLS
  • Author
Posted

Thank you *all* so much for replying to me. Hopefully it will only be the 2 weeks. I ended up going to the E.R. last night because I was getting pains in my chest when I bent over and I could hardly even sit down! My blood levels were off, and they thought it might be my gallbladder or pancreas, but the CT said it looked OK. It's possible I could have had a gallbladder attack, because I had at the cookout - Peas, Olive Oil, Feta Cheese and Heart of Palm - and the ER doc said, "That's about as fatty as you can get. Especially the Heart of Palm." So, it was either that or left over celiac pains/gas. OMG, the gas is WICKED! Or it's a hiatal hernia. But, he wasn't able to do an endoscopy last night, so I have to get that done on my own. I'm feeling a bit better than yesterday, so hopefully I'll keep on the mend.

Thank you again for replying. It means a lot.

KLS

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CarlaB Enthusiast
CarlaB
Posted
Thank you *all* so much for replying to me. Hopefully it will only be the 2 weeks. I ended up going to the E.R. last night because I was getting pains in my chest when I bent over and I could hardly even sit down! My blood levels were off, and they thought it might be my gallbladder or pancreas, but the CT said it looked OK. It's possible I could have had a gallbladder attack, because I had at the cookout - Peas, Olive Oil, Feta Cheese and Heart of Palm - and the ER doc said, "That's about as fatty as you can get. Especially the Heart of Palm." So, it was either that or left over celiac pains/gas. OMG, the gas is WICKED! Or it's a hiatal hernia. But, he wasn't able to do an endoscopy last night, so I have to get that done on my own. I'm feeling a bit better than yesterday, so hopefully I'll keep on the mend.

Thank you again for replying. It means a lot.

KLS

I found the docs comment about hearts of palm to be strange, so I looked them up. One cup of hearts of palm has 1 g. of fat. Granted, the other stuff was fatty -- I wonder if he knew what hearts of palm are?

Hope you feel better soon.

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CeliacStinksKLS Newbie
CeliacStinksKLS
  • Author
Posted
I found the docs comment about hearts of palm to be strange, so I looked them up. One cup of hearts of palm has 1 g. of fat. Granted, the other stuff was fatty -- I wonder if he knew what hearts of palm are?

Hope you feel better soon.

Oh wow, really? LOL gees. That scares me that doctor's don't know crap sometimes. Well, I listed everything and he commented on every thing, so after I said, "Heart of Palm" he said, "That's about as fatty as you can get."

Thanks, Carla. :)

KLS

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Guest Robbin
Guest Robbin
Posted

Yeah, I wondered about that too. Were they marinaded? The marinade in some hearts of palm could possibly contain gluten. I find that anything with a vinegar marinade that is not home made makes me incredibly ill. I hope you feel better soon. It is so scary at first when you become gluten free and get glutened --the pain is so pronounced and severe. Take care and keep us posted on your recovery.

Shirley, I agree with Christian, that is one great line in your signature!!

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Robert Brown Newbie
Robert Brown
Posted

Er, I'm surprised... My "glutenings" last a couple hours before I need to use the bathroom (which happens within hours of ingestion, I think), as far as I know. It's absolutely tear-shedding moan-out-loud unbearable pain for two hours, but two weeks seems ludicrous for me. Is that really how long it takes some people? I'd die O_O;;

Rob

p.s. first post

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CeliacStinksKLS Newbie
CeliacStinksKLS
  • Author
Posted
Yeah, I wondered about that too. Were they marinaded? The marinade in some hearts of palm could possibly contain gluten. I find that anything with a vinegar marinade that is not home made makes me incredibly ill. I hope you feel better soon. It is so scary at first when you become gluten free and get glutened --the pain is so pronounced and severe. Take care and keep us posted on your recovery.

Shirley, I agree with Christian, that is one great line in your signature!!

They could have been. That's the only thing that's coming up for me, that the juices that they were in had gluten in it. I didn't think of the vinegar part of it though. That's interesting. Yeah it is. It's very severe. I can't believe how long this is lasting. I'm scheduled for a barrium swallow tomorrow to check things out more. Thank you very much.

KLS

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Guest Viola
Guest Viola
Posted
Er, I'm surprised... My "glutenings" last a couple hours before I need to use the bathroom (which happens within hours of ingestion, I think), as far as I know. It's absolutely tear-shedding moan-out-loud unbearable pain for two hours, but two weeks seems ludicrous for me. Is that really how long it takes some people? I'd die O_O;;

Rob

p.s. first post

Hi Rob

Welcome to the forum.

Actually, not all Celiacs have bathroom problems. Some have intense muscle and joint pain, some have brain fog ... which is a difficulting in concentrating, the shakes, and changes in temperament. Some actually have no symptoms at all except for anemia or B12 defficiency, or a bleeding problem from lack of vitamin K. Some of us have multiple problems as it took so long to diagnose that we ended up with problems that can't be reversed. It really does depend on the individual. For me the bathroom problems are over within a day and a half, or two days, but the joint pain lasts longer, and I'm told I'm a bit of a B-tch during a glutening :lol:

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