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Feels Like Growing Pains?
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6 posts in this topic

I wasn't sure where else to put this, but since I've been gluten-free I've started having skeletal pain, particularly in my legs, ankles and shins. I'm 33 years old but it hurts exactly like growing pains which I haven't had since childhood. I'm wondering if this could be caused by my body metabolizing calcium unlike it has been able to do previously. Are my bones making up for lost time? Has anyone else experienced anything like this or is this probably just an unrelated problem?

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I had pains exactly like that but about 10 times worse and couldmn't walk for 2 omnths

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Im getting pains like that all the time now they started when I went back on gluten for my test ive had them for 11 days now and it really hurts.

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Catfish, I still don't know if I have celiac or not, but I do have ankle, heel pains especially in my right foot that are driving me up a wall. I also have shoulder aches and aches in my hands. Since I am older (76 yesterday!) I have thought these to be arthritis. However this heel pain always gets worse when I eat more heavily of gluten. I have been tested for celiac with the blood tests at Mayos, they are in the very low negative range. Am debating whether to go with the diet anyway since gluten does seem to affect my heel/ankle pain. Have had that before and had cortisone shots. Don't want to do the shots anymore. Also may explore further testing at entero labs or possibly ask to have a biopsy at Mayos. I remain on the gluten until I get some more information. I have also begun to have shin pain . Don't know if this addresses your problem or not, the ankle, shin pain caught my attention. Cheers, Strack004

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Hi,

This is happening to my daughter right now. She's only 3, but I called her endocrinologist yesterday with the same question. My daughter cries that her arms hurt and she is waking up at night with pain. The doctor said it is most likely her system getting back into growing mode and starting to absorb nutrients. :)

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Hi, I actually have this problem when I am not off gluten. I had it for years before I knew I had celiac disease and it stopped when I went off gluten. I am now back on gluten for a short period to have an endoscopy and within 2 weeks of eating it again, my leg pains came back.

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    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
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