Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Continue To Have Gi Probs
0

9 posts in this topic

Hi everyone,

As most of you know I have been gluten-free since Sept 03 and could tell a difference within a couple of days, mostly because the doubled over abdominal pain was gone. However, I continue to have diarrhea, loss of appetite, nausea, just to name a few. I am at a loss and at my wits end. I am unsure what to do now, in the past I have been through all the test and they all came back normal (Crohns, Colon cancer, etc)

Let me tell you a little about some of my symptoms, yesterday for lunch I had some gluten-free chips and gluten-free beef hot-dog, a couple of hours later I had cramps and then diarrhea. My stomach continued to hurt the rest of the night up until today and I still have diarrhea today. My abdomen is very tender to touch, especially under my ribs. I also get a lot of pain at the base of my sternum.

I have made another appt with a different Gastro doctor for the end of the month, I just wanted to know if any of you still have a problem even after going gluten-free. I know several of you have been dx with Crohns, I looked it up on the net and my symptoms really don't match it. Is Crohns like celiac disease, very hard to dx with a number of different symptoms? Oh I am also being tested for Lupus, I know that Lupus can affect the GI tract but the meds I am currently on are not helping.

I have put a call into both of my doctors, I just wanted some feedback from some of you that are curretnly seeing a doctor and continue to have a problem after going gluten-free.

Thanks in advance

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have you already tried eliminating the other common food sensitivities, including soy, dairy, eggs, etc.? And have you tried eliminating corn as well? (Just a thought, based on the number of people we see on this board with corn sensitivities...)

0

Share this post


Link to post
Share on other sites

Thank you for the suggestion..... I have not tried that yet as I do not think that is my problem. I do however limit my dairy intake as it seems too much of it upsets my stomach but in a different way than I have explained above.

0

Share this post


Link to post
Share on other sites

Hi, Stacie -

I was just wondering if you have had your gallbladder tested (or perhaps already removed). I know with that you can get the symptoms you are having and it seems like a lot of people around here have had their gallbladders out (like me). Of course, I tend to think had the Celiac been diagnosed first, then maybe I wouldn't have had to have the surgery, but, who knows....maybe it would have been inevitable anyway! If your gallbladder hasn't been ruled out yet, perhaps you could try to eat low-fat for a little while and see if that helps. Good luck!

LISA in Wilkesboro, NC

0

Share this post


Link to post
Share on other sites

Hi Lisa,

I actually thought the same thing about the Gallbladder. I had it tested years ago and the ultrasound didn't show anything. A lady at church suggested the same thing to me last night so I plan on talking to my PCP about it soon! Wouldn't that be something but if it would releive some of my pain and problems I wouldnt mind at all!

0

Share this post


Link to post
Share on other sites




Hi Stacie,

I had (and continue to have) some of the same issues you mentioned. Here's what I have discovered about myself: if I eat ANY grains, I get stomach upset (and I mean ANY). I am particularly sensitive to corn but rice sometimes even sets off a stomach ache and other issues.

I have multiple food allergies (diagnosed by scratch test) and have figured out through a process of elimination that I cannot have corn and dairy. I, too, think there could be other issues there in addition to the gluten intolerance, but just finding the magic solution of avoiding all grains has worked well for me.

Also - Have you had your pancreatic enzyme levels checked?

Just another thought: have you double-checked everything that you are ingesting (lipstick, lipbalm, makeup, hand lotion, toothpaste, etc) to make sure there is no contamination issue?

Best wishes to you,

Kathleen

diagnosed by blood test, Aug. 03

0

Share this post


Link to post
Share on other sites

Kathleen,

Thank you for your response. I have not noticed anything in particular that sets me off except when I eat too much dairy in a day.

I do not think my doctors have checked my pancreatic enzyme levels, I will mention it to the GI doc the end of this month. I am 100% sure that I am gluten-free and there is not a chance for contamination, but I will keep a close eye on it just to make sure.

Thanks again

0

Share this post


Link to post
Share on other sites

Hi, Stacie -

I was just checking on you to see if your GI doc or PCP were able to figure anything out for you. I also wanted to mention that there is a test called a HIDA scan that tests the functioning of your gallbladder. Mine was only functioning at 1%. When they had done just the ultrasound a few months earlier, the ultrasound said everything was fine. Of course, as I said before, I'm still not convinced that it wasn't Celiac that messed up my gallbladder, but I suppose I'll never know! Seems like there are a lot of people who have gallbladder problems even after having been diagnosed properly and being gluten-free. Talk to you later

Lisa in Wilkesboro, NC

0

Share this post


Link to post
Share on other sites

Hi Stacie,

What about an intolerance for Casein? Have you ever checked that? You mentioned that eating too much dairy 'sets you off' so casein is the first thing I thought of.

I believe there are tests they can run to check for casein intolerance.

best wishes,

kathleen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,725
  • Topics

  • Posts

    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,680
    • Most Online
      3,093

    Newest Member
    Misalina
    Joined