Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying To Understand Tests
0

7 posts in this topic

Hi all,

I'm new to this message board, so hopefully I got this post in the correct spot. I've been diagnoised by my Dr. with celiac disease even though my biopsy came back negative. I'm trying to figure out what blood test he had me do that he figured this out. When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0". also is this an accurate way to diagnois? I was deffinetly having symptoms and am feeling much better on the gluten-free diet. I went on a splurge last weekend and am still paying for it...so I know I have something realted to gluten even if it is not celiac disease. Just wondering if anyone could shed some light onto this for me.

Thanks so much!

Nicole

Tampa, FL

0

Share this post


Link to post
Share on other sites


Ads by Google:

Nicole,

Welcome to the board! I'm glad you're here!

Your doctor was probably talking about the anti-tTG antibody test. tTG is a normal component of human tissue, so if you are making antibodies against it, you have an autoimmune disorder--celiac disease. Most doctors don't make a final diagnosis based on this test, however. You might want to pursue a biopsy to confirm the diagnosis (though even this is somewhat unreliable--it could come back false-negative, especially if you are already gluten-free), or request a genetic test to verify that you have the troublemaking gene. I would definitely ask the doctor again about which tests he ran. If the gluten-free diet is helping, your doctor's diagnosis is probably accurate, but further testing is available if you desire it.

Good luck!

0

Share this post


Link to post
Share on other sites

Thanks so much for the information! I had the biopsy done shortly after he did the blood work and he said he had found no damage (a good thing deffinetly), but did say that I was most likely positive because of the blood work. He suggested I say on the diet to prevent damage in the long run and to prevent the horrible symptoms I was having. He told me at that time the biopsy was of just a very small area, and it didn't really mean much that it didn't show damage. The diet is deffinetly working for me and I do plan to stay on it for life. It just seems every thing I read says you need to have the damage to confirm it. I've been gluteen free (except for a few mistakes and one time on purpose) for 3 months now and am scheduled to return to the doctors office for a follow up early next month. Thanks again for the information! I'm already finding this web page so very helpful!

Nicole

0

Share this post


Link to post
Share on other sites
When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0".

Is this true? When a person doesn't have celiac disease are their numbers supposed to be 0? The reason I am asking is I finally found my results and all of mine showed up above 0. They are as follows:

Tissue Transglutaminase = 10

ref range (according to lab)

negative - < 20

weak positive - 20-30

strong pos - >30

Antigliadin antibody = 9

ref range (according to lab)

< 24 units - negative

24-30 weak positive

>30 monderate to strong positive

Gliadin AB IGA = 7

ref range (according to lab)

negative - < 20

weak positive - 20-30

moderate to strong pos - >30

Can anyone fill me in on these numbers? I am more curious than anything, I was diagnosed with celiac disease through enterolab and currently on a gluten-free diet and feeling better. :)

0

Share this post


Link to post
Share on other sites

Stacie,

My intuition tells me that the IgA and IgG tests may be non-zero for reasons other than celiac disease, but that the tTG test really ought to come back with a zero if you don't have celiac disease. My feeling is that individuals with non-zero tTG readings should be treated as either already having celiac disease or as being in the process of developing it. This might be a good question to ask Dr. Fine!

0

Share this post


Link to post
Share on other sites




Sarah:

Very good idea, I did just that. I will let you know what he says.

0

Share this post


Link to post
Share on other sites

Stacie, Did Dr. Fine ever get back to you regarding the issue of "0" tTg?

Just wondering.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,594
    • Total Posts
      918,294
  • Topics

  • Posts

    • In Dire Need Of Help
      Hi my name is Alex and I am 23 years old. I am suffering so badly right now in life. Everyday I have multiple, very severe panic attacks. I have called 911 many times in the last 6 months. I am suffering with vertigo, intense weakness and pains, I can not digest anything, I have terrible acid reflux, I can't sleep, I can't relax, my heart constantly palpitates, my breathing is "forced labor" all day. I am suffering in a mental fog. I have been from doctor to hospital to doctor and every EKG comes back normal, every doctor says the same thing, I am struggling with anxiety and they write me whatever prescription of the week they are offering  I recently took it upon myself to cut gluten out of my diet, and wallah! I felt like I did in high school within 2 days. I work in NYC and many times it is nearly impossible to find something containing no gluten, and many times when I ask they tell me "No Gluten" and I eat whatever food I ordered (probably salad w/ dressing) and i find myself driving home in a terrible panic attack. Panic is my main symptom. I have not been diagnosed yet, but the difference from how I feel and how to the people around me tell me I act I am 100% convinced. The question I'm having is, what do you think? Is it possible I have Celiac? Can panic be the main symptom? I'm telling you right now, my anxiety is unlike anything anyone has ever seen. I lay on the ground for 2 hours with numb limbs feeling like I am having a stroke unable to talk to anyone. I have 2 of these a day. Please let me know your thoughts. I truly am a novice with all of this. I am suffering and I need help. Thanks
    • celiac disease is psychosomatic
      The following link might be helpful for others experiencing simlar psychosomatic issues with doctors. Although it's only for psychiatrists, I think it should be for all doctors! http://www.psychsearch.net/complaints/ The neuropsychiatrist I saw might fall into this category? I can checkmark:

       Falsified medical records
       No Biological Test for "Mental Illness" (no blood, urine or other lab testing)
       Breach of Confidentiality (...if she sends my medical records to my doctor or discusses them with him. I am requesting a copy of my records from this doctor t see if she sent anything to him.)
       Physical Illness Misdiagnosed as "Mental Illness"
       I was told I have a "chemical imbalance" (without any lab tests)
       Unethical Conduct
       Unprofessional conduct
       Something else that didn't seem quite right  
    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
    • celiac disease is psychosomatic
      The office is located in another city than where I go. There is no receptionist at the location closest to me meaning patients wait for the doctor to open her closed door to call their names for a consult. So, I would have to knock on her door which would really make her say that I'm sick since I keep writing letters AND showing up in person. The main office is too far for me to travel with road construction going on for the remainder of the year. I suppose I could mail the letter instead. But the staff is very irresponsible so it might be thrown away. The doctor probably told them that nothing needed correction in my records so ignore further requests from me. The other staff member I dealt with seemed normal, but I complained to the doctor about the staff member I dealt with today when she failed to update my phone number that I gave to her a few times (and which she said she updated), which resulted in me showing up for an appointment (I traveled a distance) one of the testers thought she canceled by leaving voicemail for phone number I no longer had. What I mean is I told the doctor that the staff member said she updated my phone number when the doctor asked me why I was there when I showed up for that cancelled appointment. Unfortunately, this staff member answers the phone most of the time. I'm sure she did what she could to make me look bad to the doctor to make her look good because I complained about her. I feel like scheduling an appointment with a psychologist to tell her what happened with this name calling. I'm sure it's against therapist code or I'd like a psychologist's feedback on this doctor's behavior. There are other patient complaints about her on the Internet how she laughs at patient's pain and suffering. I feel that's how she treated me. Update: The staff member called me back to tell me the doctor amended my report and she put it in the mail. I wonder if the doctor discussed what she said to me with another doctor who told her what she did was unacceptable in the medical field. I am hoping my report is amended or new negative comments are not added by the doctor to say I keep writing her letters or something in that regard.
    • celiac disease is psychosomatic
      The letter I am suggesting has nothing to do with the doctor.  I would type it and walk it to the desk when are in the building for your other appointment. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,693
    • Most Online
      1,763

    Newest Member
    AlexanderParker
    Joined