Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying To Understand Tests
0

7 posts in this topic

Hi all,

I'm new to this message board, so hopefully I got this post in the correct spot. I've been diagnoised by my Dr. with celiac disease even though my biopsy came back negative. I'm trying to figure out what blood test he had me do that he figured this out. When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0". also is this an accurate way to diagnois? I was deffinetly having symptoms and am feeling much better on the gluten-free diet. I went on a splurge last weekend and am still paying for it...so I know I have something realted to gluten even if it is not celiac disease. Just wondering if anyone could shed some light onto this for me.

Thanks so much!

Nicole

Tampa, FL

0

Share this post


Link to post
Share on other sites


Nicole,

Welcome to the board! I'm glad you're here!

Your doctor was probably talking about the anti-tTG antibody test. tTG is a normal component of human tissue, so if you are making antibodies against it, you have an autoimmune disorder--celiac disease. Most doctors don't make a final diagnosis based on this test, however. You might want to pursue a biopsy to confirm the diagnosis (though even this is somewhat unreliable--it could come back false-negative, especially if you are already gluten-free), or request a genetic test to verify that you have the troublemaking gene. I would definitely ask the doctor again about which tests he ran. If the gluten-free diet is helping, your doctor's diagnosis is probably accurate, but further testing is available if you desire it.

Good luck!

0

Share this post


Link to post
Share on other sites

Thanks so much for the information! I had the biopsy done shortly after he did the blood work and he said he had found no damage (a good thing deffinetly), but did say that I was most likely positive because of the blood work. He suggested I say on the diet to prevent damage in the long run and to prevent the horrible symptoms I was having. He told me at that time the biopsy was of just a very small area, and it didn't really mean much that it didn't show damage. The diet is deffinetly working for me and I do plan to stay on it for life. It just seems every thing I read says you need to have the damage to confirm it. I've been gluteen free (except for a few mistakes and one time on purpose) for 3 months now and am scheduled to return to the doctors office for a follow up early next month. Thanks again for the information! I'm already finding this web page so very helpful!

Nicole

0

Share this post


Link to post
Share on other sites
When I asked him what the number was he told me but I didn't remember. When I asked him what the normal range was he said to me that in a person without celiac disease the number would be "0".

Is this true? When a person doesn't have celiac disease are their numbers supposed to be 0? The reason I am asking is I finally found my results and all of mine showed up above 0. They are as follows:

Tissue Transglutaminase = 10

ref range (according to lab)

negative - < 20

weak positive - 20-30

strong pos - >30

Antigliadin antibody = 9

ref range (according to lab)

< 24 units - negative

24-30 weak positive

>30 monderate to strong positive

Gliadin AB IGA = 7

ref range (according to lab)

negative - < 20

weak positive - 20-30

moderate to strong pos - >30

Can anyone fill me in on these numbers? I am more curious than anything, I was diagnosed with celiac disease through enterolab and currently on a gluten-free diet and feeling better. :)

0

Share this post


Link to post
Share on other sites

Stacie,

My intuition tells me that the IgA and IgG tests may be non-zero for reasons other than celiac disease, but that the tTG test really ought to come back with a zero if you don't have celiac disease. My feeling is that individuals with non-zero tTG readings should be treated as either already having celiac disease or as being in the process of developing it. This might be a good question to ask Dr. Fine!

0

Share this post


Link to post
Share on other sites

Sarah:

Very good idea, I did just that. I will let you know what he says.

0

Share this post


Link to post
Share on other sites

Stacie, Did Dr. Fine ever get back to you regarding the issue of "0" tTg?

Just wondering.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,705
    • Total Posts
      914,503
  • Topics

  • Posts

    • Normal Iga Levels For Kids?
      Just came back from a pediatric GI doctor with my 12 year old. the doctor told me that Chris' IgA level of 45 is too low and normal range for his age is 70. Although the standard Celiac panels came back negative twice, he wants another done with TTG and IgG.
    • Celiac in 10 month old?
      only the first one is a celiac test.  and you need the rest of them run.  What country are you in?
    • Second Panel has come back...advice?
      If you follow the gluten-free diet correctly, without being paranoid about it either......your DGP will drop because you won't be eating the food that makes it rise.  I think having a gluten-free house is a great idea because it allows you to relax in your own home. As for reading labels all the time, I have a few comments on that one.  In the beginning, and depending on just how much processed foods you plan on eating, it is a good idea to get into the habit of reading labels.  You learn how to do that correctly from experience.  However, in 11 years gluten free, I have never once seen any processed food I have bought that changed their ingredients. I'm sure it can happen but I've never seen it. Usually, with higher end brands, they never do that because if the product is a success, they don't mess with it.  I can't speak for generic or store brands because I do not buy them. I do not eat a lot of processed foods either. If you are buying a product specifically geared towards the Celiac population and is certified gluten-free, you do not have to check the label unless you have other food intolerance's. Glutino and the other companies which market a gluten-free line of products will not change their ingredients and put something in there we cannot have. Whole Foods Market Gluten Free Bakery line....same thing.  They are all dedicated facilities that make food for Celiac's and are not a worry. I am from New England and buy B & M baked beans, which are gluten free. They are a New England company and haven't changed their recipe for years and years...in fact, maybe never.  Those beans are an institution around here and they will not change their ingredients that have been popular for a very long time.....they have been around since my great-grandmother's time. I buy the basic ones without the added flavorings like onion, etc. I can't speak for every flavor they produce because I eat only the basic beans. But I no longer check the label....don't have to. The company specifically told me they don't mess with success and would not change ingredients. Supplements are something you need to read labels on every time but food items are a little different and you will become very good at understanding the whole thing the longer you do it. It becomes second nature. I am very happy you are on your way to a much healthier life! 
    • Nation's First Free Food Pantry for People with Food Allergies or Celiac Disease
      Kansas is wheat country, and like the rest of America, Kansans are generally not gluten-free. That means the food in their charity food pantries are not usually gluten-free. View the full article
    • Celiac in 10 month old?
      This is a link that will explain sreun panels for infants under 2 years of age. http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/ The author of that is a doctor, has celiac herself, and is a member of celiac.com. Here is a link that tells you about her: http://www.thepatientceliac.com/about-me/   This link will also give you information: http://www.beyondceliac.org/living-with-celiac-disease/info-for-parents/testing/ Quoting from it in part: Celiac Disease Testing in Children Under 3 Blood tests are not always accurate in very young children. If your child is less than 3 years old, you may be advised to see a gastroenterologist instead of relying on blood tests results.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,749
    • Most Online
      1,763

    Newest Member
    rockymountainhigh
    Joined