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Symptoms Worse With Menstrual Cycle?
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I am undiagnosed, Celiac is just a suspicion.

My main symptom for nearly 2 years is NAUSEA. Keep-me-in-bed-nausea. The timing of when this started (quite suddenly) and when it worsened (the week of my period) led me to my OB-GYN. Clueless, he threw me on "the pill" (isn't that what OBGYN's do best?) and amazingly my symptoms got better. Until the "week off", then nausea returned. Went down the endometriosis route, but that has been eliminated recently via laparoscope. I have been on hormone/pill without interruption for over six months, and symptoms are quite good.

Post-op follow up with OBGYN, I mentioned that my only recourse now was to go back on "South Beach" since that's the only time I felt better. She then mentioned the possibility of Celiac Disease. (I've had lifetime constipation issues, never D). Going for consult with GI in September, but in the meantime I went back on SB. Funny thing, but I had symptoms go away that I didn't even realize I had, like abdominal bloating, a painful feeling in my gut (dull ache, not sharp) and much of the constipation. I also have major anxiety issues, as well as insomnia. Didn't know THOSE were related until tonight! Had some salad dressing and was sick as a dog - worse than before. Now I've printed out the list of foods to avoid and will be going Gluten-Free (oh, I need some MAJOR willpower for this!) as soon as I can.

So, my question is - does the symptoms being LESS on "the pill" make ANY sense to you whatsoever? Have you had this experience? Or is the hormone simply a calming effect on the swelling and therefore reducing my nausea, not really affecting the C as well?

I think I am ready to spend $$ for Endolab, I don't want to wait until Fall for consult, then more time for testing, more for results.

Could you also tell me how much Endolab costs?

I had a really bad day today (two family parties, lots of unknown food) and I've had enough. I want answers, and I want to get off this pill - it's got lots of side effects that I don't like, but better than being sick in bed all day.

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Welcome.

Enterolab, for the whole gluten panel including gene test is $369. They do offer something for $99, but not sure what that covers. We had the full panel done plus the soy/egg/yeast. There website is here so you can browse and see what you want to do.

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Wow, you have one smart OB-GYN! Not even all GI specialists are clued in to Celiac! I think menstrual complications are fairly common & the response to the diet certainly sounds like gluten intolerance of some kind. It won't take so much will power once you realise all you can eat without being sick. Once you start healing there are a lot of great substitutes for the wheaty foods you love. And you'll feel so much better, you won't ever want to cheat.

Eat well & be well!

Leah

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Really? The menstrual thing is COMMON? Here I've been thinking I'm nuts and this is my last holdout as to the symptom that didn't fit! All of my Dr.'s (haven't been to GI yet) have been scratching their heads at that one, too.

Just started gluten-free this AM, come to find out the "Equal" I've had in my coffee (thinking I was being good on South Beach) has Dextrose with Maltodextrin....see that Dextrimaltose is on the list of NO-No's, and think it's the same thing...

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Really? The menstrual thing is COMMON? Here I've been thinking I'm nuts and this is my last holdout as to the symptom that didn't fit! All of my Dr.'s (haven't been to GI yet) have been scratching their heads at that one, too.

Just started gluten-free this AM, come to find out the "Equal" I've had in my coffee (thinking I was being good on South Beach) has Dextrose with Maltodextrin....see that Dextrimaltose is on the list of NO-No's, and think it's the same thing...

I seem to have worse symptoms with my period- so, I think hormones must play a role in it. Or maybe I keep getting glutened during my period, but that's seems a bit convenient! Hope you try Enterolab- then you'll have a bit more to go on. Good luck!

lisa

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I am experienceing somewhat of the same thing....before i went gluten free i thought i had endometriosis but it was ruled out by ultrasound.....the reason i thought i had it was because during my period by bowels went even more haywire than normal.....not only would i have diarreha but it would hurt like you wouldnt believe to go to the washroom....it was like giving birth......not to mention the "i cant get out of bed the cramps are so bad".

Now i have been on a gluten free diet for about 3 weeks and i got my peroid and i am soooooooo sick.......now i was still on my anti diarrehal meds.....so then as soon as i got my period i was constipated.....and sooooooooooo nausous.....i went off the meds and i feel better but i have diarreha again.......so im not sure where to go from here but i guess ill just keep on truckin...lol

Good luck starting you gluten-free diet...its hard but we can all hope its worth it in the end....

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I've always wondered if anyone else has a change in symptoms associated with their cycle. Actually, I was thinking of posting something on this topic before I saw this one.

For me, my symptoms are always worse in the fews days leading up to the start of my period. Is it because there's some hormonal association? Is it because my food choices in those days make it more likely for me to get glutened by cc or something? I have no idea. I'm also on BCP; actually have been on the pill longer than I've been diagnosed & on the gluten-free diet so I don't know what the symptoms would be like without the pill. Whenever I've asked any doctors about this, they just kind of brush it off like it's not a big deal...but the change in symptoms is quite the big deal to me!

I'll look and see if I can find any published research on any associations between these things...

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My primary doctor has been treating my symptoms, and HIS theory behind WHY the pill helps my nausea is that nausea is caused by muscle spasm (so is diarrhea, and part of celiac disease is inflammation/spasm). Inflammation and somehow spasm are "fed" by prostaglandins, which are a hormone. When estrogen is high, prostaglandins are lower, so you have less spasm and inflammation when estrogen is higher. Thus, less nausea/diarrhea. He also told me that when I have my cycle, when my nausea is bad, that I should take Naprosyn (Anaprox) to inhibit spasm and inflammation. It seems to work most times, so I'm not complaining!

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I know i am resurrecting a very old thread, but I was doing a search for symptoms increasing during menstrual cycle--my period just started today and again with the cramping/loose stools, which is something I've been noticing over the past five years--when my period arrives, so do more bathroom issues. I remember a friend of mine in college telling me that she *always* got diarrhea with her period, without fail. Come to think of it, she was 100% Irish (the ethnic group that has the highest rate of Celiac disease). I had never had those issues until after I had children.

I suppose it is possible that since I have only been gluten free a few days, I still have some gluten in my system, and with my hormones at a low level, my digestive system is wonky thanks to that. Anybody else have this situation--more sensitive/touchy during their period?

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For me, its hard to tell whats going on when I'm menstruating because I always have this dull ache in my lower abdomen that sort of feels like menstrual cramps but much less painful and subdued. Then when I get my period, they come on full force, so I can't tell if its just menstrual cramps or if its because of my period that my symptoms are worse. I don't know. Sometimes I can alleviate it with Advil and sometimes I can't.

I can say that for the couple days leading up to my period, I am much more nauseous than usual. Don't know if thats normal thats just the way it's always been for me. And I am also on the BCP by the way.

Don't know if I helped much or not, but thats just my experience. :)

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My 19 yr old had all the symptoms of endometriosis, extreme pms. That is why we took her to the doc. He put her on complex vitamin B with magnesium. Said, take one everyday and 2 the week before your period and during it. You need vitamin B12 and magnesium and probable calcium too. Her symptoms are alot better now, its been 5 months, she noticed after 2 cycles.

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I am undiagnosed, Celiac is just a suspicion.

My main symptom for nearly 2 years is NAUSEA. Keep-me-in-bed-nausea. The timing of when this started (quite suddenly) and when it worsened (the week of my period) led me to my OB-GYN. Clueless, he threw me on "the pill" (isn't that what OBGYN's do best?) and amazingly my symptoms got better. Until the "week off", then nausea returned. Went down the endometriosis route, but that has been eliminated recently via laparoscope. I have been on hormone/pill without interruption for over six months, and symptoms are quite good.

Post-op follow up with OBGYN, I mentioned that my only recourse now was to go back on "South Beach" since that's the only time I felt better. She then mentioned the possibility of Celiac Disease. (I've had lifetime constipation issues, never D). Going for consult with GI in September, but in the meantime I went back on SB. Funny thing, but I had symptoms go away that I didn't even realize I had, like abdominal bloating, a painful feeling in my gut (dull ache, not sharp) and much of the constipation. I also have major anxiety issues, as well as insomnia. Didn't know THOSE were related until tonight! Had some salad dressing and was sick as a dog - worse than before. Now I've printed out the list of foods to avoid and will be going Gluten-Free (oh, I need some MAJOR willpower for this!) as soon as I can.

So, my question is - does the symptoms being LESS on "the pill" make ANY sense to you whatsoever? Have you had this experience? Or is the hormone simply a calming effect on the swelling and therefore reducing my nausea, not really affecting the C as well?

I think I am ready to spend $$ for Endolab, I don't want to wait until Fall for consult, then more time for testing, more for results.

Could you also tell me how much Endolab costs?

I had a really bad day today (two family parties, lots of unknown food) and I've had enough. I want answers, and I want to get off this pill - it's got lots of side effects that I don't like, but better than being sick in bed all day.

Hi! This is my fist time on here, so excuse me if I'm not doing this correctly, but I also have yet to get an official diagnosis of Celiac, although I have virtually ALL the symptoms, as well as bipolar illness, Recent RA, epilepsy, asthma, anemia and overall malnutrition to name a FEW! A week before my periods is living hell! It lookas like somebody was murdered in my bedroom and bathroom ~ that's all I'll say. The pain is over the top, and i'm bedridden for the good part of a week, and must wear Depends-and I'm 46. I have seen three neurologists and counless doctors who don't know ANYTHING about Celiac and tell me I hacve IBS, and blame the other problems, always, on my bipolar disorder, as if they are 'all in my head' !!!!!! I feel for you!

When ar our doctors going to srart educating themselves on this disease?!

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Hi! This is my fist time on here, so excuse me if I'm not doing this correctly, but I also have yet to get an official diagnosis of Celiac, although I have virtually ALL the symptoms, as well as bipolar illness, Recent RA, epilepsy, asthma, anemia and overall malnutrition to name a FEW! A week before my periods is living hell! It lookas like somebody was murdered in my bedroom and bathroom ~ that's all I'll say. The pain is over the top, and i'm bedridden for the good part of a week, and must wear Depends-and I'm 46. I have seen three neurologists and counless doctors who don't know ANYTHING about Celiac and tell me I hacve IBS, and blame the other problems, always, on my bipolar disorder, as if they are 'all in my head' !!!!!! I feel for you!

When ar our doctors going to srart educating themselves on this disease?!

Have you tried a sugar-free, gluten-free diet?

I'm older now, and my mother is gone. She was a paranoid schizophrenic. I was just a kid, and knew nothing about her ongoing female troubles, but about five years into her schizophrenia diagnosis she was bleeding so bad that she had to have an hysterectomy.

During my mother's crazy times she constantly created dishes full of 1. Sugar, and 2. Wheat. Now I realize she was a victim of candidiasis/celiac disease. It breaks my heart that I didn't know then what I know now.

..

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Just FYI, maltodextrin and dextrose are on the safe list .... ? I think?

I too get cramps when I get diarhoea and when I get my period. They feel exactly the same!

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Hi! This is my fist time on here, so excuse me if I'm not doing this correctly, but I also have yet to get an official diagnosis of Celiac, although I have virtually ALL the symptoms, as well as bipolar illness, Recent RA, epilepsy, asthma, anemia and overall malnutrition to name a FEW! A week before my periods is living hell! It lookas like somebody was murdered in my bedroom and bathroom ~ that's all I'll say. The pain is over the top, and i'm bedridden for the good part of a week, and must wear Depends-and I'm 46. I have seen three neurologists and counless doctors who don't know ANYTHING about Celiac and tell me I hacve IBS, and blame the other problems, always, on my bipolar disorder, as if they are 'all in my head' !!!!!! I feel for you!

When ar our doctors going to srart educating themselves on this disease?!

You may want to look at this: http://www.aafp.org/afp/2001/1115/p1725.html I have had similar symptoms and have recently been investigating what might be the cause. I think this might be useful. Print it out and take it to your doc -- it is from a legitimate source that speaks their language! Hurray!

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    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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