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Recent Activity
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- Celiac16 commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine4
Thiamine Deficiency Disorders
Oh my gosh I am reading my exact story… I just responded to a bunch of problems posts saying the same things… I do pretty much atkins too (under 20g carbs) which has been lifesaving in addition to thiamine. Symptoms are gradually improving, POTS isn’t as bad, and haven’t had the vertigo or nausea I had every time I ate. I think blood sugar may have be... -
- Celiac16 replied to Vicrob's topic in Related Issues & Disorders36
Mild guillaine barre syndrome
I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I... -
- Celiac16 replied to Moodiefoodie's topic in Related Issues & Disorders3
Joint swelling when ill even on gluten-free diet
I wasn’t feeling great even after eating strict gluten and diary free for years. I eliminated grains which helped and then eventually adopted a low carb, high fat, medium protein diet that really helped. I think I was too focused on the celiac diagnosis, and kept going back to my go for colonoscopies and endoscopies that didn’t lead to anything (the drs did... -
- Celiac16 replied to Manaan2's topic in Related Issues & Disorders12
Vitamin Levels and constipation
@Manaan2 hi Manaan, this is going to sound very random but vitamin b1, thiamine, helped me with constipation. It can also cause anemia if low (so can other b vitamins so a b complex or multivitamin could help, probably a good safety net too). My pediatrician had me take a multivitamin when I was diagnosed as a kid too just to cover all the bases. -
- Celiac16 replied to Gunni's topic in Related Issues & Disorders4
Diabetes like symptoms and more
@Gunnihi! I’ve had similar concern with diabetes symptoms despite negative testing. I was having trouble breathing at night… I felt so weak I had to prop myself up to basically sitting to be able to breath while sleeping. I did test with sightly out of range anion gap and lactic acid but both enough for doctors to do anything… I was also getting extreme verti...
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