Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Vitamin E?
0

16 posts in this topic

What can you wonderful people tell me about vitamin E? It appears that it is in so many things and I think I'm getting glutened from it. I had a totally gluten-free food day yesterday and then went to bed and itched and itched. I woke up with an "Aha!" this morning and pulled out the sun block and the Purell hand sanitizer - both contain vitamin E, and I am assuming that this was the culprit.

My adult son is finding that gluten gives him asthma and breathing problems, so has started the gluten-free diet with me with miraculous results... But this week we wondered if it may be the vitamin E in his shaving cream, lip balm and a few other products he uses that kick up the asthma again.

I'd love to hear from you about issues with vitamin E and your experiences. Is most vitamin E from wheat germ oil? Thanks!

Nancy

Olympia, WA

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just googled vitamin E, as I had no clue where they get the supplement form of it. And your assumption that it's made from wheat germ oil may very well be correct, as it appears to have more vitamin E than anything else they list!

Check this link: Office of dietary supplements

I would never have thought that vitamin E in lotions, shaving creme etc. could be a problem! Of course, I avoid anything that says it has wheat germ oil. Maybe you need to call those manufacturers to find out where their vitamin E comes from.

I guess the best thing to do is to replace all your personal care products that contain vitamin E. How annoying. I better check mine as well.

0

Share this post


Link to post
Share on other sites

Ursula, I noticed that you have asthma listed in your signature. Have you found some relief from it on the gluten-free diet? I'm curious because of the improivement my son sees.

That site is one I found last night when searching about sources of Vitamin E. I wonder if companies will be helpful and tell me what their source of vitamin E is.... seems like the cheapest and most potent source is going to be wheat germ oil. :(

Nancy

0

Share this post


Link to post
Share on other sites

Wow, this is an eye-opener. I never thought of this. This could explain a lot of problems people have with vitamins. Thank you so much for this thread. :) Welcome to the forum, btw and I am so happy for your son's improvement!! That is wonderful.

0

Share this post


Link to post
Share on other sites
Ursula, I noticed that you have asthma listed in your signature. Have you found some relief from it on the gluten-free diet? I'm curious because of the improivement my son sees.

That site is one I found last night when searching about sources of Vitamin E. I wonder if companies will be helpful and tell me what their source of vitamin E is.... seems like the cheapest and most potent source is going to be wheat germ oil. :(

Nancy

Nancy, I had severe asthma as a child, not too bad for many years, almost died about 12 years ago from a severe attack, and then much better again. But I've found that since gluten, lectin and salicylate free, the asthma is much improved.

When I was testing the lectins, I found after trying egg one night, I was wheezing the next morning! So, there are definitely things other than gluten (which is a lectin, by the way) that will cause asthma.

Some obvious triggers have always been (and still are) cats and dogs, mold, dust and tobacco smoke. And since there are mold spores in humid air, and dust in fog, I will have problems when it's hot and humid or foggy. That's why my air conditioner is a life saver for me in the summer (if only my husband would care enough to remember that, and not turn off the air conditioner every time I turn my back :angry: ).

0

Share this post


Link to post
Share on other sites




Ursula, I noticed that you have asthma listed in your signature. Have you found some relief from it on the gluten-free diet? I'm curious because of the improivement my son sees.

I have pretty serious asthma. Before I went gluten free earlier this year I kept getting asthma attacks and my throat felt like it was swelling up. I thought it was just my nerves because it was during the end of school and I had a bunch of tests, then I went home for the summer and thought it must have been the city air... Nope, as soon as I went gluten-free my throat went down and I'm breathing better. Good to hear your son is doing well.

0

Share this post


Link to post
Share on other sites

I use NOW brand 400 unit d-alpha Tocopheryl. The following information is on the label:

Vitamin E. Other ingredients: Vegetable Oil Concentrate, Gelatin, Glycerin and Water. Contains soy derivatives.

Contains only 100% natural Vitamin E.

Contains no wheat, corn, milk, sugar, salt, yeast, gluten, preservatives, chemical additives or colors.

What does the label on yours say?

0

Share this post


Link to post
Share on other sites
I use NOW brand 400 unit d-alpha Tocopheryl. The following information is on the label:

What does the label on yours say?

Hi, funny thing I thought the Vit E was giving me reactions too!!! But I just read my vit E bottle and its nope, Jamieson is the brand,it says gluten free. Now I'm thinking its the toothpaste I used, I ran out of my normal stuff and used the left over from some months ago when I wasn't gluten free. Could someone point me in the direction of personal care products safe list.? Thanks Patricia :)

0

Share this post


Link to post
Share on other sites

It saying gluten free may not mean anything. Because in Europe they claim that there is no gluten in wheat germ oil or wheat starch, and I am sure that belief is widespread here, too, your vitamin E may still be made from wheat germ oil!

And d-alpha Tocopheryl is the natural form of vitamin E, which is very likely derived from wheat germ oil.

0

Share this post


Link to post
Share on other sites
What can you wonderful people tell me about vitamin E?

Do you have intorence/allergies to SOY? Or other things your might not have identified yet?

I have found we have to read deeper into the labels then you might think. They hide things in lab names to confuse us.

Ursula -- your baby is too cute for words.

0

Share this post


Link to post
Share on other sites

It was my understanding that often Vitamin E is actually derived from soy, so a product could have it & still be gluten-free-- but maybe soy is also a problem?

Leah

0

Share this post


Link to post
Share on other sites
It saying gluten free may not mean anything. Because in Europe they claim that there is no gluten in wheat germ oil or wheat starch, and I am sure that belief is widespread here, too, your vitamin E may still be made from wheat germ oil!

And d-alpha Tocopheryl is the natural form of vitamin E, which is very likely derived from wheat germ oil.

Hi Ursula,

I'm Tracy and new on the list. I noticed in your list of symptoms you mention Asperger's. My son has Asperger's and since I found out about my gluten difficulties, I am concerned that he may be having his mental issues because of gluten or other allergic reaction. (I have not officially been dx'd, but my doc told me to try an elimination diet [wheat first,didn't really work; then all gluten] and my symptoms subsided.) The problem is: he also has Oppositional Defiant Disorder as well as ADHD. We tried changing his diet as soon as we discovered his difficulties because he was only 6 when he was dx'd with ADHD and we didn't want to put his little body on anything if we didn't have to. But he was not cooperative (this was before we discovered the ODD and Asperger's).

I guess my question is: how did you convince yourself that you needed to change your diet? Because of his Asperger's our son's thought processes get in the way and he refuses to eat anything new. My biggest worry is that he usually only prefers things that have gluten in them: ramen noodles, chicken tenders with breading, spaghetti with no sauce. :blink: We had him eating some broccoli and corn on the cob at one time but he is now "over that." :(

I know I'm rambling. I'm sorry. I am really at a loss as to what to do with him. His behavior has recently gotten worse and I am beginning to theorize that his little body (yes, btw, he has always been under weight from birth, even though I nursed the @%#$ out of him! :P ) is finally "fed up" with the gluten levels in his body.

Interesting side note: his little brother (who just turned 6 on Feb 10) doesn't seem to have the same issues at all. He eats fairly normally and doesn't display the same behaviors his brother does. Big brother was "different" from birth.

So, have any tips?

Thank you so much.

Tracy from GA, U.S.A.

0

Share this post


Link to post
Share on other sites

My biggest worry is that he usually only prefers things that have gluten in them: ramen noodles, chicken tenders with breading, spaghetti with no sauce. :blink: We had him eating some broccoli and corn on the cob at one time but he is now "over that." :(

I can't help you with the ramen noodles although there are some rice noodle dishes out there. They definately look different than ramen so I don't know if he would accept them. But the breaded chicken you can buy gluten-free. I never have. I make my own breaded with gluten-free instant potato flakes. Spaghetti can be bought in all corn flour or rice flour, I buy that at Walmart. It's more expensive but the Tinkyada brand is the absolute best tasting gluten-free pasta. I don't think he would notice the difference if you changed him to gluten-free pasta.

There is a link with the opiate part of the brain and gluten for some. The way I understand it, some really feel withdrawals coming off gluten. This also points to why many actually crave gluten over anything else. Anyone else out there that can shed more light on gluten and Asperger's?

0

Share this post


Link to post
Share on other sites

Vitamin E can be derived from multiple vegetables and grains. Wheat is the cheapest and most accesible. Many cosmetic/skincare/haircare companies list their source of vitamin E, but not all do. When in doubt, call the company. Ask what their source for Vitamin E and tocopherol acetate are. I have found in every case of using a company that is thorough in their labeling, that tocopherol acetate always comes from wheat. They put it in parenthasees right after t.a. I will tell you though, that I don't use drugstore products for my hair, skin or makeup. Personal preferance on that. I am sure that there are many drugstore products that don't hide their sources. They just are not required by law list them at this time.

When in doubt, call the company.

0

Share this post


Link to post
Share on other sites
I'd love to hear from you about issues with vitamin E and your experiences. Is most vitamin E from wheat germ oil? Thanks!

Nancy

Olympia, WA

Hi Everyone;

I have researched this issue because I had suspicions about Vitamin E as well. Here is the story: There are two classes of Vitamin E, Tocotrienols and Tocopherols; they are present in some plants. They are found in palm oil extracted from palm fruits, rice, wheat germ, oat and barley. Since Vitamin E is everywhere, you'll have to be really careful to ensure that the products are truly gluten free. I noticed that Burt's Bees lip balm was bothering me and finally figured it out. I rarely see a label that lists the source of Vitamin E. You'll have to call the company or use products certified as gluten free.

SA

Knoxville, TN

0

Share this post


Link to post
Share on other sites

It is true some E's are safe and some are from wheat germ. :huh:

As a kid I struggled with such dry sensitive skin issues, and in the winter I had patches on my face that were like burns as severe as scalding! PLUS,  I had asthma as well! Maybe I was Celiac all along, I don't know but Vitamin E, Vitamin E lotions and Vitamin E creams were always so soothing! :P

Years later, being gluten-free,  I tend to use straight oils like coconut, cocoa butter, grape seed & olive to stay safe.

I recently had surgery and I am now really itchy from the anesthesia. I Just sent the hubby out to walmart to pick up some vitamin e cream my mom used to use on me as a kid …..

this one:

http://www.walmart.com/ip/Fruit-of-the-Earth-Vitamin-E-Skin-Care-Cream-4-oz/10314800

It was so good and SO inexpensive,  it always comes 2 together at a time. But alas :wacko: hubby was on the ball and called me to tell me "no go!!!  it clearly says contains wheat germ oil!"At least that company clearly designated the source of their E!!!

Sorry to hear of your getting glutened NancyKay!

Can anyone here please share any safe Vitamin E products that they know of?

I know now that Winter is here (and I will never be able to use that cream again) I will be on the hunt for a reasonably priced E cream that has very few ingredients and is free of wheat germ. 

Good luck everyone searching for safe products! Best wishes for a Happy, Healthy, Safe Gluten Free New Year!!!! :)

 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,728
  • Topics

  • Posts

    • Breakfast on the go is always trickiest for me - I go with a whole fruit - banana, apple - or a yogurt, or a small bag of nuts.  Occasionally, I have a couple of hardboiled eggs at my local pret a manger.  Much prefer breakfast at home, where I can make myself an egg and cheese sandwich with avocado on gluten free toast.  Or cereal ;-)
    • thanks for your input, the reason I do the blood test is because I found out my duagther has it recently and she carry dq2 gene,so must be from my husband or me...im in the process waiting for my genetic test back,,by the way,I do have lots of celiac symptom,so it could be gluten sensitiive you said,thanks again.  
    • No I'm in the UK, from what I've been told that's a good thing for gluten labeling and standards compliance. What you and everyone else on here says makes me sense than what the doctors are saying (a confused message at best is what they're giving me, each one with a slightly different version of it). My referral letter is in the post so on theory appointment may not be that far away. I have a load of my favourite Quorn stuff (non-gluten-free version) in the freezer so perhaps using that up may be a good way to proceed for now. I'm out at the moment and torn whether to try chips from a café, in the strict gluten-free future would probably be a no-no but in current situation probably not so bad...
    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,682
    • Most Online
      3,093

    Newest Member
    Russ Phelps
    Joined