Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Rash Testing
0

3 posts in this topic

I'm new here so please forgive me if this question is redundant. I have recently been diagnosed with IBS but I'm wondering if I might have celiac disease or gluten sensitivity. My GI ran two blood tests. I don't know the specifics. I just know the numbers were 3 and 6 with a 20 being positive. When I see him in two weeks I plan to ask him for details and numbers. I am probably just crazy and a hypochondriac, but who knows. I am wondering if a biopsy can be taken of my rashes to diagnose celiac disease? I have 3-4 patches of intensely itchy and scaly rashes on my scalp. I've had 2 of these for going on 10 years now. The last two popped up in the last two weeks. And they started out as painful bumps with a tip that sloughed off, leaving behind this scaly rash. I also have a rash on my upper arm but it isn't too itchy. It just looks like a lot of little raised blood vessels. I guess I could ask for a referral to a dermatologist.

I have a history of depression, anxiety and stomach problems. I've been lactose intolerant for the same 10 years. Also have migraines and unexplainable fatigue. My skin is extremely sensitive - I cannot wear makeup. I have found that certain shampoos and conditioners make the rashes worse. Neutregena T gel makes is even more worse. I think I'll check their ingredients for gluten.

Please help! I think I'm crazy and so does my doctor and family. My sister and mom have the lactose intolerance too. This makes me wonder, since I know celiac disease is inherited.

Thanks so much!!!! :(

0

Share this post


Link to post
Share on other sites


Ads by Google:

My 'stomach problems' were also diagnosed as 'lactose intolerance' and 'IBS' but following the IBS diet just exacerbated my pains and using 'lactaid supplements' didn't resolve all my symptoms (even after I finally tried a gluten free diet when I suspected celiac). :blink: If you suspect you are celiac, don't settle for anything less that blood tests and/or biopsies for celiac. If your GI has already tested for celiac, but you're waiting to see him to get results, don't wait. Call and keep calling until they tell you your results. If you are celiac, the longer you keep eating gluten the more you damage your intestines. :o If your tests come back negative, don't let your doctor dismiss your symptoms as 'IBS' or lactose intolerance. I didn't return to the doctor who gave me those diagnoses. Instead I tested through Enterolab and learned I have autoimmune reactions to BOTH gluten AND caseine (the milk protein for which 'lactaid' supplements do zip) as well as the celiac gene which my doctor never considered. You're not crazy, so don't let doctors, family and friends (??) discount your symptoms with that label. <_<

BURDEE

0

Share this post


Link to post
Share on other sites

I started getting the same rashes 6 years ago. I was eating tuna on wheat and a stack of wheat thins when I realized I started getting red blistering itchy bumbs on one of my legs. I've been eating tuna on wheat for years with no problems. Eventually the rashes went to both legs and after a while the hair fell out in the same place on both legs and the rashes kept getting bigger. I started to develop the same rash around my neck just this past year.. Its great, I have to go to work everyday like this. It never goes away. Around january 3rd, I was told I have an auto-immune problem by yet another doctor.. you have lupus. tested for lupus, no lupus, bone marrow cancer and anything else they could come up with. All came back negative. Finally, there was no cancer, only allergies to soy, vasculitis in both of of my legs and no explanation for the rashes. They claim the rashes are vaculities, I say they are stupid. The rash appears after consuming corn , wheat or soy. What I think is funny, all along I said it was something in the food doing this to me. Little by little, I got the same reaction eating cereals, fig newtons, pretzels, crackers, corn on the cob, soups, gravy, spaghetti and so on.

Its true, by trial and error, I was able to weed out each food and find the rashes stop or start depending on what I ate. I just ate 4 fig newtons at my desk, sorry for being human, I wanted a snack.. and guess what.. both my legs are compelety inflamed again. For a few days I suggest. Eat only grilled chicken or steak, potatoes or rice and vegtables and fruits. I bet the rashes go away. These are the only things I can eat now to control it. i figured this out myself. Not any doctor.

Do a test for me.. after you do the above for a few days, pop a few fig newtons or whats that popcorn, smartcorn and check out what happens. Did the rash come back?

I will leave you with this thought. Hasn't are food supply been introduced to gentically altered corn, wheat and so on. Seems to me, all of a sudden one day, 5 or 6 years ago, little by little, more and more foods starting causing allergic reations to my body. Seems a little odd to me.. Could it be my immune system doesn't understand gentectically altered proteins. Isn't that why we have immune systems. The only thing I can get out of a doctor is.. you have an auto-immune system problem. Wake up everybody. Something else is going on here. I am sure of it and I am tired of people telling me I am crazy. I am right and I know it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,122
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined