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Rash Testing
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I'm new here so please forgive me if this question is redundant. I have recently been diagnosed with IBS but I'm wondering if I might have celiac disease or gluten sensitivity. My GI ran two blood tests. I don't know the specifics. I just know the numbers were 3 and 6 with a 20 being positive. When I see him in two weeks I plan to ask him for details and numbers. I am probably just crazy and a hypochondriac, but who knows. I am wondering if a biopsy can be taken of my rashes to diagnose celiac disease? I have 3-4 patches of intensely itchy and scaly rashes on my scalp. I've had 2 of these for going on 10 years now. The last two popped up in the last two weeks. And they started out as painful bumps with a tip that sloughed off, leaving behind this scaly rash. I also have a rash on my upper arm but it isn't too itchy. It just looks like a lot of little raised blood vessels. I guess I could ask for a referral to a dermatologist.

I have a history of depression, anxiety and stomach problems. I've been lactose intolerant for the same 10 years. Also have migraines and unexplainable fatigue. My skin is extremely sensitive - I cannot wear makeup. I have found that certain shampoos and conditioners make the rashes worse. Neutregena T gel makes is even more worse. I think I'll check their ingredients for gluten.

Please help! I think I'm crazy and so does my doctor and family. My sister and mom have the lactose intolerance too. This makes me wonder, since I know celiac disease is inherited.

Thanks so much!!!! :(

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My 'stomach problems' were also diagnosed as 'lactose intolerance' and 'IBS' but following the IBS diet just exacerbated my pains and using 'lactaid supplements' didn't resolve all my symptoms (even after I finally tried a gluten free diet when I suspected celiac). :blink: If you suspect you are celiac, don't settle for anything less that blood tests and/or biopsies for celiac. If your GI has already tested for celiac, but you're waiting to see him to get results, don't wait. Call and keep calling until they tell you your results. If you are celiac, the longer you keep eating gluten the more you damage your intestines. :o If your tests come back negative, don't let your doctor dismiss your symptoms as 'IBS' or lactose intolerance. I didn't return to the doctor who gave me those diagnoses. Instead I tested through Enterolab and learned I have autoimmune reactions to BOTH gluten AND caseine (the milk protein for which 'lactaid' supplements do zip) as well as the celiac gene which my doctor never considered. You're not crazy, so don't let doctors, family and friends (??) discount your symptoms with that label. <_<

BURDEE

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I started getting the same rashes 6 years ago. I was eating tuna on wheat and a stack of wheat thins when I realized I started getting red blistering itchy bumbs on one of my legs. I've been eating tuna on wheat for years with no problems. Eventually the rashes went to both legs and after a while the hair fell out in the same place on both legs and the rashes kept getting bigger. I started to develop the same rash around my neck just this past year.. Its great, I have to go to work everyday like this. It never goes away. Around january 3rd, I was told I have an auto-immune problem by yet another doctor.. you have lupus. tested for lupus, no lupus, bone marrow cancer and anything else they could come up with. All came back negative. Finally, there was no cancer, only allergies to soy, vasculitis in both of of my legs and no explanation for the rashes. They claim the rashes are vaculities, I say they are stupid. The rash appears after consuming corn , wheat or soy. What I think is funny, all along I said it was something in the food doing this to me. Little by little, I got the same reaction eating cereals, fig newtons, pretzels, crackers, corn on the cob, soups, gravy, spaghetti and so on.

Its true, by trial and error, I was able to weed out each food and find the rashes stop or start depending on what I ate. I just ate 4 fig newtons at my desk, sorry for being human, I wanted a snack.. and guess what.. both my legs are compelety inflamed again. For a few days I suggest. Eat only grilled chicken or steak, potatoes or rice and vegtables and fruits. I bet the rashes go away. These are the only things I can eat now to control it. i figured this out myself. Not any doctor.

Do a test for me.. after you do the above for a few days, pop a few fig newtons or whats that popcorn, smartcorn and check out what happens. Did the rash come back?

I will leave you with this thought. Hasn't are food supply been introduced to gentically altered corn, wheat and so on. Seems to me, all of a sudden one day, 5 or 6 years ago, little by little, more and more foods starting causing allergic reations to my body. Seems a little odd to me.. Could it be my immune system doesn't understand gentectically altered proteins. Isn't that why we have immune systems. The only thing I can get out of a doctor is.. you have an auto-immune system problem. Wake up everybody. Something else is going on here. I am sure of it and I am tired of people telling me I am crazy. I am right and I know it.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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