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Rash Testing
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I'm new here so please forgive me if this question is redundant. I have recently been diagnosed with IBS but I'm wondering if I might have celiac disease or gluten sensitivity. My GI ran two blood tests. I don't know the specifics. I just know the numbers were 3 and 6 with a 20 being positive. When I see him in two weeks I plan to ask him for details and numbers. I am probably just crazy and a hypochondriac, but who knows. I am wondering if a biopsy can be taken of my rashes to diagnose celiac disease? I have 3-4 patches of intensely itchy and scaly rashes on my scalp. I've had 2 of these for going on 10 years now. The last two popped up in the last two weeks. And they started out as painful bumps with a tip that sloughed off, leaving behind this scaly rash. I also have a rash on my upper arm but it isn't too itchy. It just looks like a lot of little raised blood vessels. I guess I could ask for a referral to a dermatologist.

I have a history of depression, anxiety and stomach problems. I've been lactose intolerant for the same 10 years. Also have migraines and unexplainable fatigue. My skin is extremely sensitive - I cannot wear makeup. I have found that certain shampoos and conditioners make the rashes worse. Neutregena T gel makes is even more worse. I think I'll check their ingredients for gluten.

Please help! I think I'm crazy and so does my doctor and family. My sister and mom have the lactose intolerance too. This makes me wonder, since I know celiac disease is inherited.

Thanks so much!!!! :(

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My 'stomach problems' were also diagnosed as 'lactose intolerance' and 'IBS' but following the IBS diet just exacerbated my pains and using 'lactaid supplements' didn't resolve all my symptoms (even after I finally tried a gluten free diet when I suspected celiac). :blink: If you suspect you are celiac, don't settle for anything less that blood tests and/or biopsies for celiac. If your GI has already tested for celiac, but you're waiting to see him to get results, don't wait. Call and keep calling until they tell you your results. If you are celiac, the longer you keep eating gluten the more you damage your intestines. :o If your tests come back negative, don't let your doctor dismiss your symptoms as 'IBS' or lactose intolerance. I didn't return to the doctor who gave me those diagnoses. Instead I tested through Enterolab and learned I have autoimmune reactions to BOTH gluten AND caseine (the milk protein for which 'lactaid' supplements do zip) as well as the celiac gene which my doctor never considered. You're not crazy, so don't let doctors, family and friends (??) discount your symptoms with that label. <_<

BURDEE

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I started getting the same rashes 6 years ago. I was eating tuna on wheat and a stack of wheat thins when I realized I started getting red blistering itchy bumbs on one of my legs. I've been eating tuna on wheat for years with no problems. Eventually the rashes went to both legs and after a while the hair fell out in the same place on both legs and the rashes kept getting bigger. I started to develop the same rash around my neck just this past year.. Its great, I have to go to work everyday like this. It never goes away. Around january 3rd, I was told I have an auto-immune problem by yet another doctor.. you have lupus. tested for lupus, no lupus, bone marrow cancer and anything else they could come up with. All came back negative. Finally, there was no cancer, only allergies to soy, vasculitis in both of of my legs and no explanation for the rashes. They claim the rashes are vaculities, I say they are stupid. The rash appears after consuming corn , wheat or soy. What I think is funny, all along I said it was something in the food doing this to me. Little by little, I got the same reaction eating cereals, fig newtons, pretzels, crackers, corn on the cob, soups, gravy, spaghetti and so on.

Its true, by trial and error, I was able to weed out each food and find the rashes stop or start depending on what I ate. I just ate 4 fig newtons at my desk, sorry for being human, I wanted a snack.. and guess what.. both my legs are compelety inflamed again. For a few days I suggest. Eat only grilled chicken or steak, potatoes or rice and vegtables and fruits. I bet the rashes go away. These are the only things I can eat now to control it. i figured this out myself. Not any doctor.

Do a test for me.. after you do the above for a few days, pop a few fig newtons or whats that popcorn, smartcorn and check out what happens. Did the rash come back?

I will leave you with this thought. Hasn't are food supply been introduced to gentically altered corn, wheat and so on. Seems to me, all of a sudden one day, 5 or 6 years ago, little by little, more and more foods starting causing allergic reations to my body. Seems a little odd to me.. Could it be my immune system doesn't understand gentectically altered proteins. Isn't that why we have immune systems. The only thing I can get out of a doctor is.. you have an auto-immune system problem. Wake up everybody. Something else is going on here. I am sure of it and I am tired of people telling me I am crazy. I am right and I know it.

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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