How Long Before Symptoms Went Away?
Posted 13 July 2004 - 02:18 PM
Posted 13 July 2004 - 03:46 PM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 14 July 2004 - 08:49 AM
Posted 14 July 2004 - 10:15 AM
Posted 14 July 2004 - 02:21 PM
Posted 14 July 2004 - 08:28 PM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 15 July 2004 - 03:49 AM
Posted 15 July 2004 - 07:17 AM
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 15 July 2004 - 08:28 AM
Posted 16 July 2004 - 10:38 AM
Posted 16 July 2004 - 02:51 PM
I've been on the diet between 1-2 months and I'm nowhere near "normal" yet, although I haven't been normal for so long I don't know how I'd measure it. But I have had a lot more energy and my digestive problems are slowly getting less severe and less frequent. I doubt I'll ever be "normal" since I've been incurring damage for most of my life. If I get to be half as bad as I used to be I'll be happy to have that, although wouldn't it be great to be completely healed?
I completely understand what you mean, catfish......I've been on the diet for....it'll be 5 months tomorrow. Like I said in an earlier post, I still have they symptoms. I had the abdominal pains, vomiting, some diarrhea, bloating, gas, low weight (not losing, but not really gaining)....the works . I always had a lot of energy so that hasn't been an issue. Diarrhea has never been a big deal and still isn't. It comes every now and then, but it isn't really frequent and it's not at all severe. My bloating stopped very quickly and I used to be very gassy...that's gone too. Although my less severe and less disruptive symptoms have disappeared, the abdominal pains and vomiting is....still there. It's much less severe and shorter in duration, but still comes just as frequently as it used to...usually every 10-14 days, but sometimes more frequently. Half as bad wouldn't be good enough for me ....I want so badly to not have to worry about getting sick.......it's really weighing emotionally. Anyway, I finished that ramble: I agree, it would be great to feel completely better. I haven't been that way since I was.....I guess 5 years old......
Posted 16 July 2004 - 07:52 PM
I have been gluten-free for over 10 months and still have the following symptoms on a daily basis:
*abdominal pain (not as bad as before)
*diarrhea 1-3 times a day
*uncontrolable BM's (cannot hold at all and must go to bathroom before I leave my house)
*pain under both ribs but more painful under right one
*pain under breast sternum
*audible bowel sounds
I have an appt with another GI doc on the 27th, this will be for a 3rd opinion! I hope I get some answers soon and I hope WE ALL feel better soon!
Posted 17 July 2004 - 11:34 AM
Posted 17 July 2004 - 09:46 PM
For me this new diet was something like this;
First reaction, "This is impossible!" followed by, "Well, it might not be too bad if it makes me feel better". This led the way for, "Hey, I can get into this diet, it opens up all sorts of new food possibilities I never would have tried otherwise!" But then I found myself getting more and more cravings for foods I couldn't have, so I subconsciously started binging on stuff that was "OK" in order to compensate for the stuff I couldn't eat; things that would be alright for me like fruit or fried potatoes- but not in the quantities I was eating them! Variety is going to be the key for me, I think.
Posted 18 July 2004 - 09:09 AM
I wasn't going to respond to this one because I am STILL not symptom free all the time, which is my idea of normal. Since I realize I've had various celiac symptoms all my life, but only started the gluten-free approach 3 months ago, I'm focussing on the most obvious symptoms that led me to suspect celiac disease and seek a diagnosis through Enterolab (which were abdominal bloating, cramping, pain, constipation and steatorrhea). Once I started the gluten-free diet my formerly excruciating pains became much more bearable, so I chose to go with E-lab diagnosis, rather than gluten load for a doctor's blood test/biopsy. However, here's my symptom resolution pattern:
When I first eliminated the obvious gluten (breads, pastries, pasta, etc.) my intense pain level went to tolerable, but other symptoms occurred after at least one meal daily. Then I eliminated less obvious sources (vitamins, toothpaste, envelopes, etc.) which reduced my symptoms even more, but I still experienced periodic symptom recurrence. Of course, I had slips (almost weekly) from cross contamination incidents, but the more gluten sources, I eliminated, the more I improved ... to a point. The more I eliminated gluten, the more I reacted to tiny amounts in slips. However, SOMETHING was still influencing my symptoms.
I had used 'lactaid' supplements for 10 years to consume dairy (after being misdiagnosed with IBS AND Lactose Intolerance)--that prevented excruciating pain right after I consumed dairy. When I first went gluten-free other celiacs told me that celiac damaged small intestines have difficulty digesting lactose, but after a year or so of healing using the gluten-free diet, perhaps I could again digest dairy. However I had also done the Enterolab test package which included a milk sensitivity test. I believed I already knew I was lactose intolerant, so I could just use lactaid to consume dairy. Meanwhile, I learned about CASEIN--the milk protein (vs. lactose, which is a milk sugar). Before my E-lab results came back, I wondered what I would eat/drink if my 'milk sensitivity test' came back positive, so I tried my own dairy free test. After 36 hours, my dramatic reaction to 'lactose free' milk convinced me that something else (besides lactose) was causing my symptoms. When my Enterolab results said 'casein antibodies' and autoimmune reaction to cow's milk, I realized I could not consume ANY foods with dairy ingredients, if I wanted to become symptom free. I actually did experience a SYMPTOM free day or two when gluten-free/CF. But then I tried to substitute SOY (milk, yogurt, margarine) for dairy. That brought back 2 of the symptoms I experienced with milk (cramping pain--just like menstrual cramps, but I'm 7 years beyond that ) and constipation. So I also don't tolerate soy. I'm not sure whether I just have difficulty digesting that now or I have a true autoimmune reaction. However, I've decided to just avoid for now whatever seems to cause ANY pain (which includes acidic fruits/vegies like raspberries/strawberries/tomatoes as well as soy). Since I HAVE experienced pain free days, so I know what that feels like, I'm motivated to do whatever it takes to heal.
I also agree with Catfish about VARIETY. When I went gluten-free I heavily indulged in my favorite lactose free (or lactaid aided) dairy products. When I began to avoid dairy, I went for lotsa soy (probably overloaded) because I didn't want to live without my favorite lattes, cereal and milk, ice cream and yogurt. Now that I'm avoiding soy and ALMOST painfree (I have little twinges occasionally), I really have to think about what I'll eat, to avoid getting into food ruts. I really depend on peanut butter and jam on gluten-free bread for breakfast, so I tried almond butter on rice cakes to break up the routine a little. I'm going to give almond milk on cereal a try before I completely give up the cereal and milk idea. However, when I take the time to prepare meals I can make various egg concoctions, lotsa varieties of meat/vegie/fruit/gluten-free grain dishes. I admit that being a lazy cook does limit my choices (as well as HATING hot foods on hot days), so I'm having to rethink my approach to food preparation, since I don't like to pay the price of most ready to eat packaged and prefer balanced meals (protein, carbs, fat and fiber) to 'smoothies', 'energy bars' 'high in carbs instant gluten-free meals). Thankfully, I can easily tolerate all nuts, eggs, meats, vegies, non acidic fruit and all gluten-free grains. I need to focus on all the choices I DO have, while avoiding what I can't eat (without having SYMPTOMS ). Nevertheless, I LOVE those hours/days when I'm symptom free.
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
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