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How Long Before Symptoms Went Away?
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How long did it take after going GF for your GI symptoms to go away and you felt "normal" again?   19 members have voted

  1. 1. How long did it take after going GF for your GI symptoms to go away and you felt "normal" again?

    • 0-3 months
      7
    • 3-6 months
      3
    • 6-9 months
      3
    • 9-12 months
      0
    • Over a year
      6

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31 posts in this topic

i get cramps everyday w/o my meds, but if i maintain the diet and meds then i seem to be alright almost immediatly...just gotta stop cheating...someone wrote back to me that they don't get any symptoms too when they cheat, but is afraid of getting cancer...so i don't want to be put in further harmful situation...

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I have been gluten-free since January 04. It took 3 days for things to change. The first two weeks I only ate veggies, and fruit, as I still couldn't tolerate meat. Then I started to introduce meat, breads and pasta and snacks into the diet.

I am 55 years old, and have extensive damage of a lifetime of eating gluten. Dr. said I would be one of the unforunate ones and it would probably by five years to repair all the damage, much will never repair itself, as some of my villa was shaved.

Last December, I couldn't tell you my name I had brain fog so bad, I could barely walk. I was bacially waiting to be called home!

I am so improved, I really didn't know how sick I was. I no longer am on any meds, and have very little pain in the joints and muscles.

For those who are not improving, I would suggest starting over with the basic diet, make sure your kitchen is gluten free. You can also develop other allergies after going gluten free-your Dr. should be running more tests to see if this is the case.

I have to add, it took 14 years of Cat scans, ultra-sounds, x-rays, blood tests, and numerous Doctors before I was diagnoised. I have been on so much medication over the years, I could start my own drug store. I was so depressed from Drs. telling me I was crazy, and was making up the pain in my head. Guess you know they all got letters from me-I tried to be nice!

I can't say I don't have reactions from time to time. Eating out is so dangerous, and prepared foods are just as bad. Sometimes I get a little down when I can't grab something to eat on the run, but, I never want to feel like I have for the last 14 years. You just have to plan ahead with Celiac. I try to set one day a week to prepare for the week ahead. I bake my breads and desserts, and plan my meals. Plus, I have a great support group here in town!

From a Celia who has had convulsions, anemia, big D, constipation, infertility, miscarriages, tumors and cysts, skin cancer, sinistitus, vertigo, Rhymitoid Arthritis, Degenerate Arthritis, severe headaches, poor vision, head tremors, early menopause, lose of strength, clumziness. Sure glad I am a postive person or I would never have gotten through this ordeal.

And remember, everything can't be related to Celiac. We will still get sick with other things. The diet isn't a cure all, just makes life easier, and may prevent cancers down the road, and give us a better life for now.

Just keep telling yourself, you can do this, and it works.

Have a great day, I plan on it.

T-Bell

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HI, MY DAUGHTER'S BEEN GLUTEN FREE NOW ABOUT 2 MONTHS AND WAS DOING PRETTY GOOD, ALMOST "NORMAL". AFTER SEEING THE GASTRO HE SAID I COULD INTRODUCE MILK PRODUCTS AGAIN SLOWLY AND HAVE HER TAKE LACTAID TABLETS WHEN SHE DID. I DID THAT AND SHE GOT SICK AGAIN! WE ALSO WENT OUT TO LUNCH AND AFTER TALKING W/HEAD CHEF I WAS COMFORTABLE W/HER HAVING GRILLED PORK LOIN AND SALAD. SHE'S STILL NOT BACK TO "NORMAL". IT'S NOT WORTH IT GIVING HER CHEESE OR MILK RIGHT NOW OR EATING OUT AT RESTAURANTS THAT DON'T OFFER GLUTEN FREE MENUS!!

LEE

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Hi Lee:

Lactaid (for the milk sugar lactose) doesn't protect against the milk protein CASEIN. I used lactaid for YEARS while my symptoms got worse. Only when I abstained from ALL dairy (as well as gluten) did I start to get better. Listen to your daughter's physical symptoms and restrict all dairy, if that helps. The body never lies. ;)

BURDEE

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my 5 year old has been diagnosed with celiac disease. The doctor said she also is lactose intolerant. She has been gluten-free for 1 month, but still has stomach pain...no other symptoms. She also is type 1 diabetic. Can she continue to have milk products as long as i give her lactose tablets before hand? Dairy is a huge part of her daily diet since she uses this for her "carbs". Is it possible the stomach pain is from dairy....even with lactose pills? Also, she has been put on prevacid, flovent, and zantac,,,, is this excessive? The Dr. has her on this for the stomach pain (due they say to esonophils in her esophagus). :unsure:

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Hi Mbigbee,

Your daughter could also be casein intolerant. This is the protein found

in milk. If this is the case then Lactaid tabs won't help. Have you checked

to be sure the pills are gluten-free? I know the original Lactaid made by McNeil are

gluten-free because I called them. They also make Tylenol and sent me a lot

of coupons which was helpful. You could try eliminating all dairy to see

if that helps. As far as carbs she could eat french fries or rice meals.

Just a suggestion, hope she feels better soon...

Just wondering if she has had an Endo.? Sometimes acid reflux starts before Celiac is diagnosed.

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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