Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Yikes!


  • Please log in to reply
9 replies to this topic

#1 penguin

penguin

    Chelsea

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,245 posts

Posted 08 August 2006 - 10:03 AM

This was sent out over my local listserv:

Gluten-free group assists those with new or old diagnoses
By Elizabeth York
Photo by Gary Rhodes
Odessa American

MIDLAND Around lunchtime, more than a dozen people sit at a long table in the screened porch area at Johnny Carino’s restaurant in Midland.
A woman pulls out a pan of homemade sliced bread and passes it to the person beside her. A man pours a bag of tortilla chips into the restaurant’s cloth-lined bread basket. A woman at the head of the table pulls out a bag of pasta and passes it to the waitress.
The chatting group might look a bit quirky to outsiders, but the special measures they take to avoid gluten at mealtimes have become a way of life.
Members of the West Texas Gluten-Free Awareness Support Group met recently to give comfort, guidance and companionship to one another.
Buddy Tittle of Gardendale was at the table with his wife, Pam. Tittle learned he had colitis and celiac disease in February after being hospitalized for severe headaches. The diagnosis came after the retiree went from weighing 165 pounds to 147 pounds in two years.
The 66-year-old said his recent diagnosis is difficult to handle.
“It’s a challenge — especially going out to eat,” Tittle said.
Tittle, and others with celiac disease, can’t eat foods with gluten. That precludes traditional burger buns, cakes, breads and a myriad of other food items.
“Cold beer was probably the worst,” Tittle said. “I love my cold beer in the afternoon.”
On the up side, Tittle can still eat salad, steak, potatoes and beans, he said. At the Italian restaurant, he ate a brown rice pasta brought by group secretary Barbara Williams.
Williams has known she has celiac disease for the past 27 years. During that time, alternative products like potato flour, rice pasta and gluten-free breads have become more tasty and more readily available, Williams said. Health food stores are the best place to find the products, she said.
Chain supermarkets and restaurants generally haven’t come around to carrying gluten-free products, Odessan Tiffany Fambro said.
Fambro’s mother, Tammy Fambro, and grandmother, Mary Fambro, both have celiac disease.
In a recent dining experience, Mary Fambro became ill after her omelet was cooked on the same surface as items with wheat flour.
“They think it’s the Atkins diet,” Tiffany Fambro said. “They don’t realize (gluten) could send these people to the hospital.”
Odessan Virginia Donaldson suffered from celiac disease for 10 years.
A month ago, Dr. Udipi Prabhakar Rao performed a blood test on Donaldson. He found that, at 81, her celiac allergy was gone for the time being.“It’s wonderful to be able to eat bread again,” Donaldson said. “It’s a wonderful relief.”
Rao said that Donaldson’s case is rare for most people with celiac disease.
“If they’re not exposed to gluten for a long time, antibodies disappear from the blood stream,” Rao said. “The immune system can go into a state of remission.”
After ingesting gluten for a time, however, it is likely for the gluten antibodies to form again, Rao said.


:blink: :o :huh: <_< :(
  • 0
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright
Well we'll float on good news is on the way...

Celiac.com Sponsor:

#2 rinne

rinne

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 1,856 posts

Posted 08 August 2006 - 10:14 AM

Yikes is right, what a depressing and misleading piece of writing.
  • 0
A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

#3 Jestgar

Jestgar

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,755 posts

Posted 08 August 2006 - 11:07 AM

I did read one research paper in which one woman who had been gluten-free for more than 10 years slowly re-introduced gluten with her doctors checking her Ab levels and (I think) villi. They found that she did NOT produce antibodies to gliadin. So it is possible.....
  • 0
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#4 eKatherine

eKatherine

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 890 posts

Posted 08 August 2006 - 01:33 PM

Well, I'd have thought that if they were able to make a debilitating illness go into remission, they probably ought to want to keep it that way. Is he going to monitor her progress or wait til she's half dead and then give her another biopsy to see how she's doing?
  • 0
Nothing

#5 phakephur

phakephur

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 96 posts

Posted 08 August 2006 - 01:37 PM

The abstract for that woman who reintroduced gluten was posted on this site. I was trying to find it but the links off of site index are broken. I believe it was in Feb. 2006 research section.
  • 0

#6 phakephur

phakephur

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 96 posts

Posted 09 August 2006 - 11:17 AM

here is the article
  • 0

#7 penguin

penguin

    Chelsea

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,245 posts

Posted 09 August 2006 - 11:31 AM

It's certainly interesting, but I don't think that study means anything, mainly because they had one sample. Not even a control person. If they are able to complete such a study on a broader scale of celiacs, then that would be great. Also, what happened after 18 mos? 24 mos? 36 mos? Does the bacteria repopulate eventually?

Something to be on the lookout for, anyway. It's certainly not wise for ANY doctor to advise their patients to go back on a gluten-free diet (outside of a very controlled study, anyway) and even the researcher didn't suggest that the woman was cured.
  • 0
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright
Well we'll float on good news is on the way...

#8 Nancym

Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts

Posted 09 August 2006 - 11:40 AM

I did read one research paper in which one woman who had been gluten-free for more than 10 years slowly re-introduced gluten with her doctors checking her Ab levels and (I think) villi. They found that she did NOT produce antibodies to gliadin. So it is possible.....

It doesn't show up in your blood until quite late in the progression of the disease. So unless they were checking her intestines for antibodies they probably don't have an accurate reading.
  • 0

#9 ms_sillyak_screwed

ms_sillyak_screwed

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 677 posts

Posted 09 August 2006 - 04:44 PM

Can you post the paper this article is in?

I would like to write and BLAST them for mis information about celiac disease.
  • 0

#10 penguin

penguin

    Chelsea

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,245 posts

Posted 09 August 2006 - 06:14 PM

Can you post the paper this article is in?

I would like to write and BLAST them for mis information about celiac disease.



Sure http://www.oaoa.com/

Be gentle, though, we're trying to educate. :)

Also, it was the dr., not the journalist, that suggested the woman go off the diet
  • 0
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright
Well we'll float on good news is on the way...


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: