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Should I Have An Endoscopy? (long)


FreeTime

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FreeTime Apprentice

I was diagonsed with IBS 2 years ago. No matter what I eat, I still get sick. However, one item that I have not cut out and have with every meal is gluten. My daughter was diagonsed with celiac disease in December. Today I saw my gastrologist again and explain that my child has been diagnosed and I researched the disease and learned that those with IBS are often misdiagnosed. I explained that the Childrens hospital completed a blood test on me and that it was negative. He said that the blood test are pretty relaible and that celiac is hard to diagnose 100% without and endoscopy but he did think that it was necessary unless I really wanted one. Then he asked me what I wanted to do. I asked him again what he thought he talked about how it can show up in rashes etc., and then the next thing I knew he was scheduling the endoscopy. I really didn't ask any questions or give much to the conversation and I now I feel stupid for it. My hubby says that I should have it done as my daughters doctor had said if the blood test was negative he wouldn't but anyone through the test. I am concerned that I have something and maybe it will show up in the test. I had a colonoscopy and everything was okay. Help, should I do it? Thanks

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Ursa Major Collaborator

If you haven't gone gluten-free yet, and the endoscopy is already scheduled, I'd say, go for it. If it is positive, you have an official diagnosis. If it is negative, go gluten-free anyway to see if it makes a difference. You can't really lose either way, in my opinion.

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FreeTime Apprentice

Thanks for the comment. I have not gone gluten free in anticipation of possibly needing the test. However, the Dr. asked me, have you gone gluten free to see if that helps your IBS? I said no that I didn't want to have a false celiac test. He said, "oh."

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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