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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Support In Marin County - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Support In Marin County anybody out here in the San Rafael, CA area? Rate Topic: -----

#1 User is offline   Katja 

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Posted 08 August 2006 - 05:38 PM

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja
Diagnosed and gluten-free since March 06
positive bloodwork, no biopsie
Lactose Intolerant
allergic to Eggs, dairy, and Casein
3 years of misdiagnosis
Some sort of digestive problem all my life

trying hard to not be "glutened" - longest period yet: 4 weeks! YAY!
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#2 User is offline   Rebecca47 

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Posted 12 November 2006 - 07:49 PM

I am also newly diagnosed with CS. I live in Rohnert Park about half hour from San Rafael. You can e/mail me if you would like. I have done pretty well my doctor says according to my test. my numbers are way down, and I feel better. Black circles under my eyes are going away. I have gained about 5 lbs. which is good, Ihave a really hard time gaining weight as others probably do too. I know that I still have a lot to learn.

Rebecca
[font=Comic Sans MS]Diagnosed Celiac Sprue Disease August, 02, 2006
Blood test, No Biopsy
IgA off the scale 44 now 3
IgG 56
(tTG) IgA 25 now 2
(tTG) IgG 1 now 1
now border line low iron 10

Gluten Free since August, 02, 2007
Diagnosed with Osteoporosis November 2006
As of Jan 2007 all numbers looking good

As of Feb 2007 no more Pork, having Allergic reactions
Lactose Intolerence


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#3 User is offline   Lena Marie 

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Posted 16 October 2008 - 02:09 PM

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,
Lena




View PostKatja, on Aug 8 2006, 06:38 PM, said:

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja


Blessings,
Lena
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#4 User is offline   Patsy Lou 

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Posted 28 June 2009 - 07:59 PM

I'm in San Rafael and willing to host a mtg. but I'm brand, brand new. I've been trying to do it myself so it's too late to get tested. I feel better eating less gluten foods so I feel I must be celiac.
What do we need to start a mtg?
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#5 User is offline   tom 

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Posted 29 June 2009 - 03:44 PM

I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is http://www.northbayceliacs.org/ , which may be the one I was thinking of, which gets mentioned on http://health.groups.../celiacbayarea/


Good luck :)
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed in mid-60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it".
Gluten-free since 12-03
Dairy-free since 10-04
Sugar/Sweetener-free since ~3-05
Candida dx & strict diet since 5-30-05
Soy-free since 5-29-07 & it felt like a miracle! . .. ... for 6 months anyway :(
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#6 User is offline   Patsy Lou 

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  Posted 29 June 2009 - 07:39 PM

View Posttom, on Jun 29 2009, 03:44 PM, said:

I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is http://www.northbayceliacs.org/ , which may be the one I was thinking of, which gets mentioned on http://health.groups.../celiacbayarea/


Good luck :)

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#7 User is offline   Patsy Lou 

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  Posted 29 June 2009 - 07:44 PM

I checked out the northbay celiac site. Many thanks Tom. It's a very good informational website for any new person like myself .
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#8 User is offline   grammieb 

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  Posted 01 July 2009 - 09:44 PM

hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days
--------------------
[font=Comic Sans MS]Diagnosed Celiac Sprue Disease August, 02, 2006
Blood test, No Biopsy
IgA off the scale 44 now 3
IgG 56
(tTG) IgA 25 now 2
(tTG) IgG 1 now 1
now border line low iron 10

Gluten Free since August, 02, 2007
Diagnosed with Osteoporosis November 2006/
As of Jan 2007 all numbers looking good

2009 bone density test shows osteoporosis is not getting better

As of Feb 2007 no more Pork, having Allergic reactions
Lactose Intolerant

July, 2009 I just had blood test to make sure all levels are good and to check which gene or both genes that I have, check vitamin D. calcium etc.
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#9 User is offline   Patsy Lou 

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Posted 01 July 2009 - 10:00 PM

View Postgrammieb, on Jul 1 2009, 10:44 PM, said:

hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

So far I haven't been able to get a return call about support groups. If and when I do, I'll post it.
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#10 User is offline   sfkate 

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Posted 29 November 2010 - 07:56 PM

I live in San Rafael and am trying to navigate the waters of the gluten free lifestyle and living with celiac disease. I am open to sharing any advice, recipes, tips and overall support.:)



View PostLena Marie, on 16 October 2008 - 02:09 PM, said:

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,
Lena







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