Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Celiac And Vitiligo


  • Please log in to reply

9 replies to this topic

#1 Janadean

 
Janadean

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 09 August 2006 - 06:23 PM

Hi. My daughter (4) and myself are both diagonised with Celiac. Today, she was also diagnoised with having vitiligo. Vitiligo is an autoimmune disorder where the immune system attacks and kills the pigment cells leading to discoloration of the sign. Does anyone know if these two items are connected?

I feel at a lose. She was diagnoised Celiac earlier this year and now this? Her body is completly attacking her and it seems that there is nothing I can do to stop it. Neither one of this deiseases have a treatment available. Celiac is diet and nothing can be done to stop the vitiligo. There are steriod creams to bring back the color but that is not going to stop the body from attacking itself?

Any help would be greatly appreciated. I am really scared that this will lead to soemthing far worse!!! SOMEONE PLEASE, I NEED SOME GOOD ADIVCE!!!! Thank you. Janadean
  • 0

Celiac.com Sponsor:

#2 LKelly8

 
LKelly8

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 289 posts
 

Posted 09 August 2006 - 07:18 PM

My mother has both celiac and vitiligo. I have celiac and rheumatoid arthritis. If you have one autoimmune disease you are at a greater risk (than the general public) of developing another.

Celiac is a special case amoung the autoimmune disorders though - we know the trigger, the "irritant" that causes the immune dysfunction.

Being gluten-free won't cure her vitiligo but by removing the gluten trigger from her diet you can greatly lessen the chance of future immune system troubles.
  • 0

#3 mouse

 
mouse

    **armetta**

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,136 posts
 

Posted 09 August 2006 - 07:35 PM

Yes, there is a connection. There are several of us on here with Celiac and Vitiligo. My Vitiligo has not gotten much worse since I went gluten-free 2 1/2 years ago. As far as other auto-immune diseases, I would not be too concerned as she has her young age working for her. By being totally gluten free with no cross contamination you are helping her to have a much healthier and happier future. When I say I would not be too concerned, I mean do not put blinders on, but enjoy her life as she has gotten diagnosed so young in life that being gluten-free will help prevent some (if not most) of the other auto-immune diseases.
  • 0
"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004
Allergies - corn, soy, casein, egg whites and wheat
Morphia Scleroderma
Osteoarthritis
Hypothyroid and Hperthyroid
Essential Tremors
Asthma
Migraines
Fibromyalgia - diag. in 1978 when they called it Fibrositis
PAD Peripheral Artery Disease
Angina and Atrial Fibrillation
Gluten Ataxia
Vitiligo
Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.
Ocular Myastenia Gravis

#4 2kids4me

 
2kids4me

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 933 posts
 

Posted 09 August 2006 - 07:40 PM

I second what LKelly8 said. Our family seems to have more than our share of autoimmune illness, we were told that by finding the celiac, chances went down of even more problems developing. The celiac was diagnosed last - their poor systems were on high alert (immune wise) for years with undiagnosed celiac...that may have been the trigger for the other stuff.
I know its scary - and I know exactly what you mean when you say 'What next!!"

My kids have been healthier and have had no new immune mediated diseases since they went gluten-free. Their body can heal and function properly - reducing the risk. It took me a while to relax.......

I am so glad for you that they diagnosed the celiac early. there is no cure for any of the autoimmune diseases, but lots you can do........ learn all you can about gluten-free diet. It's overwhelming at first and then to have second issue arise - it can seem almost too much. It will get better... lots of really smart people here PLUS the bonus is - someone , somewhere on the baord will know exactly what you mean :D
  • 0
Sandy

Type 1 diabetes - 1986
hypothyroid -1993
pernicious anemia
premature atrial beats
neuropathy
retinopathy
daughter is: age 15
central hypotonia and developmental delay
balance issues (rides an adult 3 wheel bike)
hypothyroid 1996
dermatographia - a form of angioedema 2002
celiac 2004 - by endoscopy
diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet
recovered from Kawasaki (2003)
lactose intolerant - figured out in Oct/06
Gilberts syndrome (April/07)
allergy to stinging insects
scoliosis Jan 2008
nightshade intolerance - figured out April 2008
allergy to Sulfa antibiotics

son is 13
type 1 diabetic - 2003 diagnosed on his 9th birthday
celiac - 2004 by endoscopy
lactose intolerant - figured out Nov/06

#5 Cazzy

 
Cazzy

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 10 August 2006 - 08:05 AM

I second what LKelly8 said. Our family seems to have more than our share of autoimmune illness, we were told that by finding the celiac, chances went down of even more problems developing. The celiac was diagnosed last - their poor systems were on high alert (immune wise) for years with undiagnosed celiac...that may have been the trigger for the other stuff.
I know its scary - and I know exactly what you mean when you say 'What next!!"

My kids have been healthier and have had no new immune mediated diseases since they went gluten-free. Their body can heal and function properly - reducing the risk. It took me a while to relax.......

I am so glad for you that they diagnosed the celiac early. there is no cure for any of the autoimmune diseases, but lots you can do........ learn all you can about gluten-free diet. It's overwhelming at first and then to have second issue arise - it can seem almost too much. It will get better... lots of really smart people here PLUS the bonus is - someone , somewhere on the baord will know exactly what you mean :D



This is my first post...so Hi everyone!!

I have been a Celiac for 14yrs, and having stuck to the diet, I have not yet developed any other auto-immune diseases. However, I have recently noticed about 20 small (about 2-3 mm) splashes of unpigmented skin on my forearm, since this summer's tan.
I asked B) my doctor if this could be Vitiligo, but she said "No, nothing to worry about just skin changing with age". I'm not so sure. How did yours start? B)
  • 0
Diagnosed Coeliac (British spelling!) 1992
Son diagnosed 2000, then aged 14 (now dealing with diet at uni)

Recurrent Migraine since age 18 (My mum and her mum before her!)

#6 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 10 August 2006 - 08:14 AM

I know that some autoimmune diseases respond positively to gluten free diets, for instance quite a few people get a remission of Hashimoto's if they catch it and treat it with gluten-free diet, and the longer you have undiagnosed gluten sensitivity, the higher your risk of autoimmune diseases. So, I don't know if it is possible or not, but perhaps getting your daughter's diet squared away will slow down the vit.

I went undiagnosed for more than 40 years and have at least 2 autoimmune diseases.
  • 0

#7 2kids4me

 
2kids4me

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 933 posts
 

Posted 10 August 2006 - 09:06 AM

Info on vitiligo

http://www.nvfi.org/...igoBasics.shtml

WHAT IS VITILIGO?
Patients with Vitiligo develop white spots in the skin that vary in size and location. The spots occur when pigment cells, or melanocytes, are destroyed and the pigment melanin can no longer be produced. Melanocytes normally occur throughout the skin, and in the hair follicles, mouth, eyes, and some parts of the central nervous system. In Vitiligo, pigment cells can be lost in any of these areas. Common sites of pigment loss are:


• Exposed areas: hands, face, upper part of the chest
• Around body openings: eyes, nostrils, mouth, nipples, umbilicus, •genitalia
• Body folds: arm pits, groin
• Sites of injury: cuts, scrapes, burns
• Hair: early graying of hair of the scalp, beard or other areas
• Area immediately surrounding pigmented moles
• Choroid of the eye


  • 0
Sandy

Type 1 diabetes - 1986
hypothyroid -1993
pernicious anemia
premature atrial beats
neuropathy
retinopathy
daughter is: age 15
central hypotonia and developmental delay
balance issues (rides an adult 3 wheel bike)
hypothyroid 1996
dermatographia - a form of angioedema 2002
celiac 2004 - by endoscopy
diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet
recovered from Kawasaki (2003)
lactose intolerant - figured out in Oct/06
Gilberts syndrome (April/07)
allergy to stinging insects
scoliosis Jan 2008
nightshade intolerance - figured out April 2008
allergy to Sulfa antibiotics

son is 13
type 1 diabetic - 2003 diagnosed on his 9th birthday
celiac - 2004 by endoscopy
lactose intolerant - figured out Nov/06

#8 annacsmom

 
annacsmom

    Community Member

  • Advanced Members
  • PipPipPip
  • 58 posts
 

Posted 21 September 2006 - 08:11 PM

Hi I was just going through old posts on this site and came across yours. I learn alot this way. Anyway, my 18 yr old daughter was diagnosed with celiac three weeks before going away to college last month. Talk about a crash course in celiac! Anyway, I totally know what you are going through, but may I be bold enough to say that you are very fortunate in learning about the celiac/vitiligo connection with your young daughter. My daughter got vitiligo quite young - it began showing up right around 4 yrs. old. We knew it was autoimmune but that's about it. It got progressively larger (mostly on both knees, both elbows and both eyelids) until about middle school. In the meantime, she started developing incredible fatique, and a myriad of other symptoms. After about 3-4 yrs of undue suffering she was diagnosed with Hashimoto's Hypothyroidism. But even natural thryroid supplementation has never really relieved her symptoms. A remarkable thing occurred with the vitiligo at this time -- it actually started reversing itself. It's almost as if her antibodies decided to start attacking her thyroid and leave her skin alone. Believe me, at the tender stage of puberty, this was a huge blessing, even though her health was steadily declining. Now, after six more years of suffering through middle and high school, we finally figured out it was celiac, after many different specialists not admitting that her symptoms were even real. I know that it is rare that vitiligo reverses itself, but looking back, I wish I had known about the gluten connection all along. I now believe my daughter has had celiac her whole life and that gluten has been poisoning her all this time. Her poor immune system. The best thing you can do is make sure gluten is totally eliminated in your daughter's life -- this will hopefully give her immune system a break, and maybe help the vitiligo calm down. But certainly have hope -- she is quite young and you've caught it pretty quickly by today's standards. Hope this helps.
By the way, all my daughter's remnants of vitligo are pretty much gone, although there is still a small white shadow in the corner of her mouth. I always am afraid that it will come back.
  • 0

#9 nikki-uk

 
nikki-uk

    Out running.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,957 posts
 

Posted 23 September 2006 - 10:39 AM

My son has vitiligo.
He has also recently just has a positive blood for celiac disease.

I can't really remember when it started-it just sort of crept up on him.

I've noticed that it seems to wax and wane.An area that had no pigmentation last year now looks normal-but he has lots of new areas elsewhere :blink:

He has his biopsy for celiac disease next week, and I'm wondering if his vitiligo will lessen any once on the G.F diet :unsure:
  • 0
It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

Posted Image

#10 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 03 October 2006 - 01:29 AM

I was dx with Hashimotos Thyroid in May of this year. Next visit received news of a low B12 and poss Pernicious Anaemia. And gluten intolerence. Then noticed a patch of Vitiligo. Then a patch of Psorasis. I am taking natural Armour for the Thyroid and my Goitre is shrinking and Thyroid Antibodies reducing - so hope the Vitiligo doesn't get bigger.
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: