Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Where Am I Going Wrong?


Zell

Recommended Posts

Zell Newbie

Hey everybody first off let me say that I am new to all of this.I have been trying the diet for a few weeks....and have noticed some improvement already.However I am really confused right now because I was sick all day long....and bad.The only thing I changed in my diet was last night I added some soy sauce to my rice.It said wheat free(Eden Organic Tamari).....is the alcohol the problem?Has anybody else had this???

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Montana Julie Newbie

I eat Tamari sauce now too - it SEEMS to be OK with me - but I'm still adjusting to the new diet. I hear there's a period where many folks go through a recurrence of symptoms. Maybe that's what is going on with you?

I've also heard of people allergic to soy. I don't know enough about the origins of Tamari - perhaps that's part of the problem?

Good luck figuring it out! I'm learning too.

Julie

Link to comment
Share on other sites
AndreaB Contributor

Double check the label first. It very well could be soy. Soy can cause the same problems in people as gluten. Do you eat any other soy containing products? I'm one of the ones that is intolerant to both (soy and gluten).

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast

Welcome Zell --

Soy is poison, they don't tell you that. And some people are in denial. I found out the hard way too after it caused a thyroid problem for me. SOY is in everything and it is hidden on labels like VEGETABLE BROTH, NATURAL FLAVORING, LECITHIN, they hide it within other names. TUNA FISH cans say veggie broth and you have no idea its soy. There are NOT many types of cans or packaged tuna that does NOT contain SOY.

Pick up a couple of great books that will give you an understanding of celiac disease.

Dangerous Gains

The Paleo Diet

Both books will make this much easier to deal with. You will understand how and what to eat. If you can't afford to buy them, go to your local library and do an inter library loan. They will get it for you from another library. Both books are worth the time to read it will make the quality of your health improve.

Stay tuned in here. It's a great forum and the people here care about you getting better.

Be well!

Link to comment
Share on other sites
samking72 Rookie

"Wheat Free" doen't always equal "Gluten Free" Be careful!!

Link to comment
Share on other sites
ravenwoodglass Mentor
Hey everybody first off let me say that I am new to all of this.I have been trying the diet for a few weeks....and have noticed some improvement already.However I am really confused right now because I was sick all day long....and bad.The only thing I changed in my diet was last night I added some soy sauce to my rice.It said wheat free(Eden Organic Tamari).....is the alcohol the problem?Has anybody else had this???

Gluten is most often a delayed reaction. Check not just what you ate right before you felt ill check the foods from 1 to 3 days before also. The delay from an intolerance reaction can make pinpointing what 'got' you a bit tough at times. I hope you feel better soon.

Link to comment
Share on other sites
key Contributor

Yeah, be careful. Wheat free just means there is no wheat. It could have barley, malt, oats or rye in it or something in the flavoring with those things. It really needs to say "gluten free".

My dad bought me some Paul Newman cookies that said "wheat free" on the package. He was so excited to find something for me. I read the package and the first ingredient was Barley flour and it had oat flour I believe. So you do have to be careful.

Sorry you are sick. It can take a while to get better and you may have bad days still, even when you think you were gluten free.

Monica

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
Gluten is most often a delayed reaction. Check not just what you ate right before you felt ill check the foods from 1 to 3 days before also. The delay from an intolerance reaction can make pinpointing what 'got' you a bit tough at times. I hope you feel better soon.

This is #1

Soy isn't something I think is great in general but I don't avoid it like gluten.

Most of the negative things about soy do not apply to fermented products such as tamari.

All tamari should be 100% fermented soy.

I think soy is one of those foods that if you have autoimmune disorders and you are not allergic/sensitive should be taken in moderation. Most far eastern cultures eat far less soy than we Westeners imagine.

There are NOT many types of cans or packaged tuna that does NOT contain SOY.

I believe you but Europe is way different. I am reasonably sure in this because I just got back from a tuna expedition !! What I wanted was either tuna in water or olive oil so I went through the lot, I also wanted albacore steaks not bits n pieces.

Not a single can had soy except perhaps the Tuna in mayo which I didn't bother to read and the tuna salad cans, again didn't even pick up.

In the end I found tuna in olive oil and also some in sunflower but non in water without added salt.

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
I think soy is one of those foods that if you have autoimmune disorders and you are not allergic/sensitive should be taken in moderation.

This is why the RX's printed forms from the mainstream pharmacy have a WARNING do NOT consume ANY soy products when taking these medications.

I wasn't reactive to soy for 5-year gluten & dairy free - then it hit me like a ton of bricks. I was in denial too (at first), but know I know better.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,210
    • Most Online (within 30 mins)
      7,748

    Sue Barnett
    Newest Member
    Sue Barnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...