Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Allentown/bethlehem/easton Support Group?
0

17 posts in this topic

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

0

Share this post


Link to post
Share on other sites


Ads by Google:
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

Did you ever find your support group? How long have you known that you have celiac disease? Are you having a hard time doing the new lifestyle? I have been gluten-free for a couple of years, and it is still hard!!

Let me know if you need any receipes for breads or whatever!!

Tricia, Kutztown, Pa

0

Share this post


Link to post
Share on other sites
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

My husband was recently diagnosed with celiac disease, along with my niece (6 yr old). I do not know of any support groups in the Lehigh Valley, but I can inform you of what I know so far. Wegman’s is a great place to buy gluten-free foods and their list is expanding everyday. You do not have to go to the gluten-free aisle either! Their labeling is changing to include gluten-free foods. You can also go online and print out all of their gluten-free items. NCCC is offering a celiac cooking class on October 16th; $19 for the class & $16 for supplies. There is an awesome bakery in Philly that is 100% gluten-free. It is a little pricey, but very high quality. I have made several baked goods using their flour mixture and the results are incredible! I have tasted a lot of gluten-free foods that I would not even feed to my dogs!! Here is the link to the bakery: http://www.mrritts.com/. They ship and since we are so close, we can order almost anything off of their list.

0

Share this post


Link to post
Share on other sites

Hi,

I live in Allentown and am a celiac. My mother is too and we'd like to form a Lehigh Valley gluten-free group. Let us know!! :)

0

Share this post


Link to post
Share on other sites

Wegmans is the best store possible!!! They aren't changing their labels, they have been doing the gluten free labeling, the G in the orange circle for quite a few years. Hello from Harrisburg!

0

Share this post


Link to post
Share on other sites




Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

0

Share this post


Link to post
Share on other sites
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

0

Share this post


Link to post
Share on other sites

Hi Everyone

I'm not in your area but I have started a gluten-free group on the other side of the state! We had nothing here & shopping is always at least an hour or more away. It has become a large group & I line everything up each month on my own. I have people who have survived on only five foods for years !!!! I'm so glad I'm able to bring happiness back into their lives...

I can help you in regards to the best of best in gluten-free & help satisify your cravings!!! Feel free to contact me through a private pm...

blessings

mamaw

0

Share this post


Link to post
Share on other sites
Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

0

Share this post


Link to post
Share on other sites
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hello - I live in Macungie as was just diagnosed with Celiac .

We do have a very good support group in the Lehigh Valley - have you gotten the information on it yet?

Maureen

0

Share this post


Link to post
Share on other sites

:rolleyes:

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

0

Share this post


Link to post
Share on other sites
:rolleyes:

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!

0

Share this post


Link to post
Share on other sites

Great -I will be at the July 7 meeting. I hope to see you there. Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!
0

Share this post


Link to post
Share on other sites

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

0

Share this post


Link to post
Share on other sites

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

Glad I could help - its tough doing it on your own in the beginning!

0

Share this post


Link to post
Share on other sites

Any news on this old topic? I'm new to the area and looking for restaurants and such to enjoy, and would love to connect with other gluten free folks in the area.

0

Share this post


Link to post
Share on other sites

I'm a 42 year old living in Allentown who just got diagnosed last week. This was years after being pricked and pried by every specialist in the LV. I'm relieved to finally have a diagnosis, but yet frustrated! I don't know where to begin, ugh, but I'm happy I found this website (great info, but I'm overwhelmed ....Anyway, I spoke with Kathleen Heist (very nice person) from the LV support group and she told me they are meeting on April 24th and they have a guest speaker (Dr. Harmad). The meeting is at: 2166 S. 12th Street in Allentown at 7:00.  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,703
    • Total Posts
      921,801
  • Topics

  • Posts

    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,705
    • Most Online
      3,093

    Newest Member
    imissdonuts
    Joined