Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Allentown/bethlehem/easton Support Group?
0

17 posts in this topic

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

0

Share this post


Link to post
Share on other sites


Ads by Google:
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

Did you ever find your support group? How long have you known that you have celiac disease? Are you having a hard time doing the new lifestyle? I have been gluten-free for a couple of years, and it is still hard!!

Let me know if you need any receipes for breads or whatever!!

Tricia, Kutztown, Pa

0

Share this post


Link to post
Share on other sites
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

My husband was recently diagnosed with celiac disease, along with my niece (6 yr old). I do not know of any support groups in the Lehigh Valley, but I can inform you of what I know so far. Wegman’s is a great place to buy gluten-free foods and their list is expanding everyday. You do not have to go to the gluten-free aisle either! Their labeling is changing to include gluten-free foods. You can also go online and print out all of their gluten-free items. NCCC is offering a celiac cooking class on October 16th; $19 for the class & $16 for supplies. There is an awesome bakery in Philly that is 100% gluten-free. It is a little pricey, but very high quality. I have made several baked goods using their flour mixture and the results are incredible! I have tasted a lot of gluten-free foods that I would not even feed to my dogs!! Here is the link to the bakery: http://www.mrritts.com/. They ship and since we are so close, we can order almost anything off of their list.

0

Share this post


Link to post
Share on other sites

Hi,

I live in Allentown and am a celiac. My mother is too and we'd like to form a Lehigh Valley gluten-free group. Let us know!! :)

0

Share this post


Link to post
Share on other sites

Wegmans is the best store possible!!! They aren't changing their labels, they have been doing the gluten free labeling, the G in the orange circle for quite a few years. Hello from Harrisburg!

0

Share this post


Link to post
Share on other sites




Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

0

Share this post


Link to post
Share on other sites
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

0

Share this post


Link to post
Share on other sites

Hi Everyone

I'm not in your area but I have started a gluten-free group on the other side of the state! We had nothing here & shopping is always at least an hour or more away. It has become a large group & I line everything up each month on my own. I have people who have survived on only five foods for years !!!! I'm so glad I'm able to bring happiness back into their lives...

I can help you in regards to the best of best in gluten-free & help satisify your cravings!!! Feel free to contact me through a private pm...

blessings

mamaw

0

Share this post


Link to post
Share on other sites
Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

0

Share this post


Link to post
Share on other sites
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hello - I live in Macungie as was just diagnosed with Celiac .

We do have a very good support group in the Lehigh Valley - have you gotten the information on it yet?

Maureen

0

Share this post


Link to post
Share on other sites

:rolleyes:

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

0

Share this post


Link to post
Share on other sites
:rolleyes:

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!

0

Share this post


Link to post
Share on other sites

Great -I will be at the July 7 meeting. I hope to see you there. Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!
0

Share this post


Link to post
Share on other sites

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

0

Share this post


Link to post
Share on other sites

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

Glad I could help - its tough doing it on your own in the beginning!

0

Share this post


Link to post
Share on other sites

Any news on this old topic? I'm new to the area and looking for restaurants and such to enjoy, and would love to connect with other gluten free folks in the area.

0

Share this post


Link to post
Share on other sites

I'm a 42 year old living in Allentown who just got diagnosed last week. This was years after being pricked and pried by every specialist in the LV. I'm relieved to finally have a diagnosis, but yet frustrated! I don't know where to begin, ugh, but I'm happy I found this website (great info, but I'm overwhelmed ....Anyway, I spoke with Kathleen Heist (very nice person) from the LV support group and she told me they are meeting on April 24th and they have a guest speaker (Dr. Harmad). The meeting is at: 2166 S. 12th Street in Allentown at 7:00.  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,756
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,690
    • Most Online
      3,093

    Newest Member
    lastcowgirl26
    Joined