What Is "normal"?
Posted 15 July 2004 - 06:17 AM
I am really beginning to believe that this may be normal for me. I HATE the thought of that. I am in school and have 3 kids. I NEED to be able to function without naps, etc. I am not sleeping well at all at night. On the other hand, I fit a lot of the criteria for fibromyalgia. I am seeing a different neurologist and a rhuematologist in August.
My mom and sister are both also celiac patients and they feel GREAT. What is wrong with me? Is this normal and I should just accept it? I hate going to doctors anymore because I feel like a nut case.2
Posted 15 July 2004 - 06:55 AM
Positive DH biopsy 4/19/04
Posted 15 July 2004 - 08:53 AM
I am sorry to hear you are not feeling well but glad you do not have MS. I am in the same boat at you except I am being tested for Lupus. I have been gluten-free since last Sept and only shown minor improvement. I also have htpothyroid but I do not remember experiencing the same kind of fatigue with that as I did with possible Lupus.
It is good that you are seeing a Rheumy and I suggest making a list of all of your symptoms and taking it with you on the appt. Also try your best to explain your fatigue, by telling the doc what time you go to bed, what time you get up and any naps you may have to take during the day. I told my doc I had fatigue but she did not grasp it until I really explained it to her.
I hope you begin to feel better soon, please let us know what the doctors say next month!
Posted 15 July 2004 - 08:57 AM
Posted 15 July 2004 - 09:35 AM
Posted 15 July 2004 - 11:12 AM
Have you had your hormone levels checked? Have them check estradiol levels. Grab a copy of the book (or thumb through it at the bookstore) "IT'S MY OVARIES, STUPID" to see what the 'optimal levels' are for hormones. That has a huge effect on energy levels.
Another thought: are all of your medications gluten-free ???
Hope you get some answers soon,
Posted 15 July 2004 - 05:22 PM
Posted 17 July 2004 - 07:17 PM
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