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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Looking For Karen From Braintalk
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6 posts in this topic

Sorry to intrude like this...but the Braintalk Gluten Sensitivity/Celiac Disease forum crashed about a month ago and has not returned, and unfortunately some of us have lost touch! I suspect many are scattered among the various other Celiac Forums. I am looking for Karen (founder of MADD (not mothers against drunk drivers)), and mother of Ted. If anyone knows where Karen is, could you please let her know I am looking for her. She can contact me through http://jccglutenfree.googlepages.com/ .

I'd love to hear from other displaced Braintalkers, too!

Thanks,

Cara (jcc)

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Hello! I was a brain talker too. I miss the forum so much! Has anyone heard any updates from the admins?

So sad to think the wonderful Gluten File is gone!

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Hello! I was a brain talker too. I miss the forum so much! Has anyone heard any updates from the admins?

So sad to think the wonderful Gluten File is gone!

Hi Cara and Nancy, I was on BT to and I really miss it, is there any chance that it will ever come back?

Patricia :)

Hello! I was a brain talker too. I miss the forum so much! Has anyone heard any updates from the admins?

So sad to think the wonderful Gluten File is gone!

Hi Cara and Nancy, I was on BT to and I really miss it, is there any chance that it will ever come back?

Patricia :) I was turner

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Hello! I was a brain talker too. I miss the forum so much! Has anyone heard any updates from the admins?

So sad to think the wonderful Gluten File is gone!

Hi Nancy!

Someone suggested that I put The Gluten File out on a website, so I did. It is not the same, though, because without the forum to go with it...well, its just not the same! It is also missing all the great discussion threads that were attached to each section. But, at least, for those interested in this sort of information..it is still there. Thank goodness a couple of people suggested I make a back up copy a couple of years ago. My backup was from a year ago, so it may be missing a few things.

As far as I know, nobody has heard anything from John Lester about getting the board back up. There are murmurs from other BTers (gluten forum and others) about setting up a new forum. If there ever is another site that comes up I will certainly include it in the Favorite Links section of The Gluten File...so book mark the site...and check back periodically. I don't think it would happen before October.

Cara (jcc)

Hi Cara and Nancy, I was on BT to and I really miss it, is there any chance that it will ever come back?

Patricia :)

Hi Cara and Nancy, I was on BT to and I really miss it, is there any chance that it will ever come back?

Patricia :) I was turner

Hi Turner~

People are losing hope that it will come back. There have been no updates, which to me, is a bad sign. Still, there are so many displaced people...on our board, and also the others like MS, Chronic Pain, PN, Child Neurology, Epilepsy, Spinal Disorders, and more. As I just mentioned, there are a few murmers from some longstanding BTers about starting up a new board. So far just talk, but stay tuned. I would definately put it somewhere in TGF if something opens up, so keep an eye out. Again, I don't think it would be anytime before October.

I'm really missing it too. The people :).

Cara (jcc)

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Hi Nancy!

Someone suggested I put The Gluten File out as on a website, so I did. It is not the same, though, because without the forum to go with it...well, its just not the same! It is also missing all the great discussion threads that were attached to each section. But, at least, for those interested in this sort of information..it is still there. Thank goodness a couple people suggested I make a back up copy a couple of years ago. My backup was from a year ago, so it may be missing a few things.

As far as I know, nobody has heard anything from John Lester about getting the board back up. There are murmurs from other BTers (gluten forum and others) about setting up a new forum. If there ever is another site that comes up I will certainly include it in the Favorite Links section of The Gluten File...so book mark the site...and check back periodically. I don't think it would happen before October.

Cara (jcc)

Hi Turner!

People are losing hope that it will come back. There have been no updates, which to me, is a bad sign. Still, there are so many displaced people...on our board, and also the others like MS, Chronic Pain, PN, Child Neurology, Epilepsy, Spinal Disorders, and more. As I just mentioned, there are a few murmers from some longstanding BTers about starting up a new board. So far just talk, but stay tuned. I would definately put it somewhere in TGF if something opens up, so keep an eye out. Again, I don't think it would be anytime before October.

I'm really missing it too. The people :).

Cara (jcc)

It sure will be a sorry day if Bt never comes back, there were so many people on there that were getting help and information. I know there is no other site like it, still keeping my fingers crossed that it will come back. Patricia

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Wow! That's excellent you made a backup of it. And you did such a beautiful job. It really is beautifully formated. I just read your story about the gluten sensitivity self-diagnosis, it was wonderful!

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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