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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Ne Cola. Sc - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   snowygiraffe 

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Posted 12 August 2006 - 04:41 PM

Are there any support groups in our area? I live outside NE Cola. and going to West Cola. is an hour drive for us. My 13 year old daughter was diagnosed with celiac 5 years ago. Now that we hit the teen years she seems to have more trouble coping. Any Info. would be helpful.
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#2 User is offline   Turtle 

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Posted 12 August 2006 - 05:04 PM

Hey!
I live in W Cola and have been going to Charlotte for better selection of gluten-free foods and for support. Is there a support group in W Cola that you've been attending?? I'd love to talk to you further....i'm still relatively new to this area and am desperately seeking a dr. Was planning to just go to Charlotte but if you have some info i'd love to hear more...

Have a great weekend!
~Turtle~
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#3 User is offline   snowygiraffe 

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Posted 12 August 2006 - 05:24 PM

View PostTurtle, on Aug 12 2006, 09:04 PM, said:

Hey!
I live in W Cola and have been going to Charlotte for better selection of gluten-free foods and for support. Is there a support group in W Cola that you've been attending?? I'd love to talk to you further....i'm still relatively new to this area and am desperately seeking a dr. Was planning to just go to Charlotte but if you have some info i'd love to hear more...

Have a great weekend!


Hey,
There is a support group in West Cola. I don't have the info with me at the moment but will be at home tomarrow night and will pm you. We have not been because its so far away and is geared towards adults. :( Have you tried Earth Fare or Rosewood Market? They may not have everything but between the two we get what we need :D . My daughter will be glad to know shes not the only celiac in all of SC. :lol: She feels like it now.
Jean
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#4 User is offline   Turtle 

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Posted 12 August 2006 - 05:32 PM

I thought I was the only celiac in all of SC! HAHA!
COOL, that is great news that there is a group in W Cola & thank you for shooting me the info tomorrow or whenever you can so I can see what's happening. Sorry it tends to focus on adults...bummer! Maybe your daughter could be the pioneer for a teen group??? Just a thought....

Yes, I swing thru Earthfare for the bare essentials! It just gets so expensive....there's a bit of competition in Charlotte so sometimes prices are a bit lower & I have friends who live there so it's a mini vacation for me to get away for the day to shop gluten-free and see my friends :) When you shoot me the support group info, fill me in about Rosewood Market...never heard of it....but then again i'm still learning the area so Go Figure! HA!

Thank you again!
~Turtle~
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#5 User is offline   snowygiraffe 

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Posted 12 August 2006 - 05:49 PM

Rosewood has a smaller selection then Earthfare. It is not far from Earth Fare. I might have to check out Charlotte when we go to Carowinds! Is there any place in particular that is really good? And not hard to find(directions not my best virtue)
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#6 User is offline   mesmerize 

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Posted 13 August 2006 - 08:18 AM

hey I'm in Columbia too, I had no idea there was a support group here... Could you PM me about it too?

I do a lot of shopping at Earthfare, but yes it gets a bit expensive. I just recently heard of a place called 14 Carrot Whole Foods in Lexington (www.14carrot.net). It looks like it might be a good possibility, although I guess it would be a little out of the way for the NE Cola people! I live closer to the NW side of town.

~Sara~
* Tummy problems all my life
* Graves Disease in November 2004
* Ongoing issues with thyroid levels
* Gluten free since February 2006
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#7 User is offline   Turtle 

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Posted 13 August 2006 - 08:56 AM

Hey Sara!
Thanks for posting! So exciting to FINALLY find some other celiacs around here.

I too have heard and actually passed by 14carrots. Haven't been in there yet though. The name alone screams expensive...get it? 14carrots??? 14 carats??? :lol:



Jean:
In Charlotte I like Talley's Green Grocery and they also have an Earthfare (I haven't been to that one though b/c I went to Talley's instead the last time I was up there & b/c I hit the really NICE AND BIG Earthfare in Charleston a few weekends ago). Also, I've heard the SuperTarget out in Morrisville has some gluten-free stuff way less expensive than what we pay for things at EarthFare, Whole Foods, etc. Here's the contact info:

Talley's Green Grocery
1408 East Blvd Ste C
Charlotte, NC 28203

talleys.com

** Talley's has the thing where you can apply for their MVP card thingy like you do at Food Lion, Piggly Wiggly, etc. and you can get things at the sale price.



EarthFare
12235 North Community House Road
Charlotte, NC 28277
(704) 926-1201
~Turtle~
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#8 User is offline   Turtle 

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Posted 13 August 2006 - 02:22 PM

Hey -
Is this the same info you have Jean for the support group in W Cola??? I sent an e-mail to the e-mail provided below...we'll see where that takes me I suppose.



South Carolina
Columbia - Support Group
Contact 1: Peggy Smith
Palmetto Celiac Support Group
1508 Anthony Drive
West Columbia, SC 29172
Tel: (803) 775-9466 or (803) 755-7291
E-mail: PSmithCola@AOL.COM



Nevermind the e-mail came back to me saying it was unknown[color=#6600CC] :(
~Turtle~
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#9 User is offline   snowygiraffe 

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Posted 13 August 2006 - 03:35 PM

I just got my daughter back from dads and told her there is TWO other people in Cola. that have celiac. She got so excited. She wanted to know if you where her age(13) I told her I was pretty sure you weren't. :lol: :lol: She said "Thats ok I'll like them anyway." She is such a turkey! I better go finish dinner before she eats all the mac & cheese. :rolleyes:
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#10 User is offline   snowygiraffe 

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Posted 13 August 2006 - 04:23 PM

Hey Y'all
Heres another contact I found on my very clean very organized comp. desk!!!! :lol: I haven't tried this one either.


Debbie Del Priore
2102 O'Hara Ct.
Cola SC 29204

Ph# 738-8880

DelP4all@aol.com

If I find anything else I'll let you guys know. (we may have to start our own)

Jean
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#11 User is offline   mesmerize 

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Posted 15 August 2006 - 04:21 AM

Did either of you guys try calling the phone numbers listed for those contacts? I just thought maybe I'd try those next if the email address didn't work...

And just to introduce myself a lil bit... I'm Sara, I'm 25 and just graduated from grad school at USC. :D
* Tummy problems all my life
* Graves Disease in November 2004
* Ongoing issues with thyroid levels
* Gluten free since February 2006
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#12 User is offline   snowygiraffe 

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Posted 15 August 2006 - 06:34 AM

Hi Sara,
I haven't tried the numbers yet. But I will give it a try today.When I find out something I will definitly let you know. Congradulations on your gaduation! :D It's nice meeting you. My name is Jean. I'm a 33 year old( :huh: how did I get that old?) single mom of two. I'm going to Central Carolina part time until my custody battle is over (hopefully soon), then I'll attend full time. If you would like I can pm you my e-mail address.

Talk to you soon

Jean
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#13 User is offline   Turtle 

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Posted 15 August 2006 - 01:47 PM

I've sent an e-mail but haven't heard anything back yet! :(

I'll keep you posted if anything comes through....

My e-mail address is: turtledupree@hotmail.com
~Turtle~
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#14 User is offline   snowygiraffe 

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Posted 16 August 2006 - 08:51 AM

I have news <_< . I've tried all the numbers with (are you ready?) NO SUCCESS! Apparently everybody else with celiac has been abducted by aliens :blink: So now we know. I did however find an e-mail address for a R.O.C.K group in Lexington. I've e-mailed her already may she can give some info on an adult group.
Here is her info incase you want to try:

Gail Fox
Lexington SC 29072
gailfox@sc.rr.com


Maybe the aliens left her :lol:
Jean
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#15 User is offline   Corkdarrr 

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Posted 16 August 2006 - 09:24 AM

Ooh! How exciting is this for me?!
I'm 24, live in Columbia, and I've been gluten free for like a month and a half.
I'm getting in on the end of this conversation, but can I get some info if anyone finds a support group that still exists?

And to share my findings - almost everything at El Burrito (Harden St) is gluten free (save the flour tortillas on a burrito). I'm friends with the manager and eat there almost every day. And when I started gluten-free, she was one of the few people who'd ever actually HEARD of gluten. My favorite is the salad with chicken and beans. YUM.
Also, went to Baan Sawan (Thai food - Devine St) on Saturday and had the pad basil- no reaction. Next up to try is the peanut curry...
Courtney - 25
Columbia, SC

Gluten-free since July 8, 2006
Casein-free since October 16, 2006
Went six weeks, and fell back into a deliciously painful world of cheese.
Casein-free (again and for serious this time) December 11, 2006
Stupid cheese addiction....2/07

Dx Hypothyroid in 1993
Dx Gluten & Casein Sensitive through Enterolab 10/06
Dx Adrenal *Exhaustion* 2/07




Originally from WI, I am still in denial over my newfound casein intolerance. I fear I will not be allowed back into the state if I can no longer eat cheese and drink milk. This could pose some trouble over holidays when I wish to visit my family. It also poses a problem involving the severe rage I feel when I have to throw away somebody's unfinished cheese sticks. That is so wrong.
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