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Dr. Suggests Ingesting Gluten Prior To Biopsy
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My husband was dx through a blood test with celiac about 1 month ago. We completely changed our diet and got rid of all gluten ( as much as humanly possible). Today he had his first appointment with the GI Dr. He says 3 out the 4 blood panels were negative and 1 very positive and suggests a biopsy. This will be done at the end of the month. He wants my husband to begin eating a regular diet with gluten until then. I am scared to death about this. :o He is already so sick. I just wanted to ask if this is normal procedure. I have read that it takes months for damage to begin healing and I was confused at how eating gluten for 1 or 2 weeks more will make a difference for the biopsy.

Also, should my husband do the Enterolab? I'm not really sure what it is but i've read about it on this site. And is it necessary to be tested for caesin (sp?) antibodies?

Thank you for any advise. We are just very confused. And to add to this my husband doesn't think his doctor is very experienced in this area.

Stacy :rolleyes:

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His doctor probably is not very experienced in this area, most aren't. Even in the GI field.

If your husband has been gluten free for a month, it might take longer than a month back on gluten to show damage in his intestines. The lining of the intestines heals rather quickly for most people, even though the symptoms may last longer, since most are related to nutritional deficiencies. It is suggested by Dr. Peter Green (one of the top Celiac doctors in the US) in an article here at Celiac.com

( http://www.celiac.com/st_prod.html?p_prodi...-41104189220.0e ) that a person go back on gluten for 3-6 months in preparation for a biopsy. For some people this is not possible, since they just get too darn sick! You need to figure out if the biopsy is necessary in your husbands case. Discuss it with his doctor and bring in some information with you for the doctor so he can see where you are getting your information.

Enterolab is an option that is available to you, and your husband would not need to go back on gluten for the testing, but the results may not be accepted by the doctor. They are still relatively new tests and have not been accepted into the mainstream medical field yet. But you can learn more about the tests at: http://www.enterolab.com

God bless,

Mariann

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Thank you for leading me to that article. I understand it more now. This is all so new and crazy still! :blink:

Stacy

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    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
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