Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dr. Suggests Ingesting Gluten Prior To Biopsy
0

3 posts in this topic

My husband was dx through a blood test with celiac about 1 month ago. We completely changed our diet and got rid of all gluten ( as much as humanly possible). Today he had his first appointment with the GI Dr. He says 3 out the 4 blood panels were negative and 1 very positive and suggests a biopsy. This will be done at the end of the month. He wants my husband to begin eating a regular diet with gluten until then. I am scared to death about this. :o He is already so sick. I just wanted to ask if this is normal procedure. I have read that it takes months for damage to begin healing and I was confused at how eating gluten for 1 or 2 weeks more will make a difference for the biopsy.

Also, should my husband do the Enterolab? I'm not really sure what it is but i've read about it on this site. And is it necessary to be tested for caesin (sp?) antibodies?

Thank you for any advise. We are just very confused. And to add to this my husband doesn't think his doctor is very experienced in this area.

Stacy :rolleyes:

0

Share this post


Link to post
Share on other sites


Ads by Google:

His doctor probably is not very experienced in this area, most aren't. Even in the GI field.

If your husband has been gluten free for a month, it might take longer than a month back on gluten to show damage in his intestines. The lining of the intestines heals rather quickly for most people, even though the symptoms may last longer, since most are related to nutritional deficiencies. It is suggested by Dr. Peter Green (one of the top Celiac doctors in the US) in an article here at Celiac.com

( http://www.celiac.com/st_prod.html?p_prodi...-41104189220.0e ) that a person go back on gluten for 3-6 months in preparation for a biopsy. For some people this is not possible, since they just get too darn sick! You need to figure out if the biopsy is necessary in your husbands case. Discuss it with his doctor and bring in some information with you for the doctor so he can see where you are getting your information.

Enterolab is an option that is available to you, and your husband would not need to go back on gluten for the testing, but the results may not be accepted by the doctor. They are still relatively new tests and have not been accepted into the mainstream medical field yet. But you can learn more about the tests at: http://www.enterolab.com

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thank you for leading me to that article. I understand it more now. This is all so new and crazy still! :blink:

Stacy

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,132
    • Total Posts
      919,526
  • Topics

  • Posts

    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    jen4az
    Joined