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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Glutening Symptoms Lessen After Being gluten-free?
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6 posts in this topic

Most people here talk about how the symptoms of glutening get worse the longer they've been gluten-free. Is there anyone whose symptoms of glutening have gotten better after going gluten-free?

I'm asking because sometimes I have mild stomach upsets and I'm not sure whether it's gluten or not. This happened yesterday a few hours after I'd eaten out for lunch, so cc was definitely a possibility. A few weeks ago I ate accidently ate something with malt and didn't get sick at all. The mild symptoms make it really hard to determine if I've been glutened or if I have other food intolerances going on.

When I was eating gluten I did have stomach problems, but the worst symptoms were fatigue and joint pain and brain fog. But I'm not getting those at all now, just a little bit of stomach pain.

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Looks like I'm the only one whose symptoms have gotten better since going gluten-free :)

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You know, I'm not sure but I've been thinking the same lately. I haven't been clearly glutened for at least half a year, and I wonder if I've really been that succesful with my diet or if my symptoms have gotten milder. When I first went gluten free my glutening symptoms got way worse, but then after a while they did start to get less dramatic, and now I wonder what they would be actually.

Pauliina

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Looks like I'm the only one whose symptoms have gotten better since going gluten-free :)

I don't think its that but the fact we seem to go through cycles... often early gluten-free can be worse and then get better and then long term we get glutened later and think hey it can't have been this bad EVERY TIME?

Its really subjective and hard to pin down and I think that is why I didn't respond earlier.

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Most people here talk about how the symptoms of glutening get worse the longer they've been gluten-free. Is there anyone whose symptoms of glutening have gotten better after going gluten-free?

I'm asking because sometimes I have mild stomach upsets and I'm not sure whether it's gluten or not. This happened yesterday a few hours after I'd eaten out for lunch, so cc was definitely a possibility. A few weeks ago I ate accidently ate something with malt and didn't get sick at all. The mild symptoms make it really hard to determine if I've been glutened or if I have other food intolerances going on.

When I was eating gluten I did have stomach problems, but the worst symptoms were fatigue and joint pain and brain fog. But I'm not getting those at all now, just a little bit of stomach pain.

Here is what I have heard....that initially after going gluten free...the symptoms of glutenings may be much worse....this is the 3-6-12 month ranges. But, after being gluten free for a long time >1-2 yrs), the reactions may actually lessen, because the immune system has had a chance to calm down. Of course, repeated glutenings would cause the immune system to go back into overdrive.

This is almost the same speech my allergist gave me in regard to my rather severe cat allergy...that first my reaction to cats might get worse, but over time it would lessen, so when I heard this about gluten... it made sense to me. NOW...is it true???? I can tell you that I CAN step into a house with cats now, and I couldn't for a long time!

I wonder the same about gluten reactions in my daughter, and I do believe hers are milder (she's been gluten free 5 years)...but it is so often a puzzle to whether you've been glutened or not. In the beginning, my daughter would have a week of diarrhea and some neurological symptoms (leg drag, eye lid drooping). Now...she mostly just feels really blah/irritable/tired...and might have a stomach ache/headache. She struggles with diarrhea on and off due to other food sensitivies...so milder diarrhea isn't always our best indicator.

Cara

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From what I've heard Cara has it right! But just remember everyone is quite different and reaction intensities may vary.

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    • celiac disease is psychosomatic
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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
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