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ramsfan1

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ramsfan1 Rookie

To make a long story short, i was diagnosed with IBS a few years ago. About a year ago i started to get red itchy skin on my face and was diagnosed with a form of eczema. The eczema has never truly gone away and i had no idea about allergies cause my doctor, dermatologist, GI specialist never mentioned it whatsoever. I got a flare up with my stomach like 7 months ago and it sucked. I couldn't leave the house. Well it eventually got better, but fast forward to a few weeks ago and its even worse now. Excess gas, bloating, constipation, heart burn that i've never even had before. At this point, my Eczema is almost as bad as its ever been. Now that i've discovered food allergies i am very suspicous that i could have celiacs disease or an allergy. I am almost positive i am allergic to wheat, soy, or milk. Either that or i have celiacs. Let me sum this up:

My symptoms:

Constipation

Heart Burn

Eczema(seborreac dermatitis)

Excess gas

Bloating

Canker Sores

Runny nose(may be unrelated)

Bad memory

Anxiety

What I think i might have:

Celiacs

Milk Allergy

Soy Allergy

Wheat Allergy

So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.

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eKatherine Rookie
So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.

It looks like it is highly probable that you've got it. Testing is not necessary. You can test yourself with the diet...BUT...

As you say, your house is full of gluten and you don't cook. These things will both need to change. You need to sit down and figure out what you can eat and plan your diet around that. Rice is good and really cheap. Get yourself a sack of plain rice and a rice cooker - much cheaper than a blood test - then learn how to use it. With the internet as a research source, you can figure out how to prepare just about anything. Set yourself a goal of learning to fix something new on a regular basis.

You know what you need to do.

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      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
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    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
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