Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Long Before Symptoms Show After Being Glutened?

Truffles

Recommended Posts

Truffles Newbie
Truffles
Posted

Hello :)

Ill try to make this short. I havent been diagnosed with GI or Celiac. However due to numerous bowel problems for years, ie: pain so bad I was passing out, sweating, D and C movements, bloating etc. I decided to go gluten free. Im CONVINCED I have it, but I dont trust the Doctors due to obvious personal reasons of being diagnosed from everything under the sun that I KNOW I did NOT have!

My first week was great on my new diet. NO pain!!! I get pains ALL the time.

I decided to eat gravy on fries about a week after, immediately I got pain and severe bloating for 9 hours!!!!! Then 3 days later it passed in pain...

I stayed gluten-free free for another 3 weeks. NO problems again! -Im eating dairy though throughout this. No probs with Dairy.

Today I decided to test myself again. I ate some fruit loops and the corner of a wheat and rye cracker... no pains? I can feel a teensy tiny bit of bloating. It doesnt hurt or anything, and it may not even be bloating. Im sitting here waiting for something to happen. lol. Nothings happening. Is this normal? Or maybe I dont have GI? I was hoping this test would convince me 100% but now Im wondering. Should I eat more wheat to see? Im afraid of the pain though if I am and if it shows up later...

Any help would be great. I thought after 3 weeks of being gluten-free free, it would show up quickly if I as much as tasted the corner of bread...

Thank you

Truffles

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Debbie65 Apprentice
Debbie65
Posted
Hello :)

Ill try to make this short. I havent been diagnosed with GI or Celiac. However due to numerous bowel problems for years, ie: pain so bad I was passing out, sweating, D and C movements, bloating etc. I decided to go gluten free. Im CONVINCED I have it, but I dont trust the Doctors due to obvious personal reasons of being diagnosed from everything under the sun that I KNOW I did NOT have!

My first week was great on my new diet. NO pain!!! I get pains ALL the time.

I decided to eat gravy on fries about a week after, immediately I got pain and severe bloating for 9 hours!!!!! Then 3 days later it passed in pain...

I stayed gluten-free free for another 3 weeks. NO problems again! -Im eating dairy though throughout this. No probs with Dairy.

Today I decided to test myself again. I ate some fruit loops and the corner of a wheat and rye cracker... no pains? I can feel a teensy tiny bit of bloating. It doesnt hurt or anything, and it may not even be bloating. Im sitting here waiting for something to happen. lol. Nothings happening. Is this normal? Or maybe I dont have GI? I was hoping this test would convince me 100% but now Im wondering. Should I eat more wheat to see? Im afraid of the pain though if I am and if it shows up later...

Any help would be great. I thought after 3 weeks of being gluten-free free, it would show up quickly if I as much as tasted the corner of bread...

Thank you

Truffles

Hi,

I

Link to comment
Share on other sites
Ursa Major Collaborator
Ursa Major
Posted

I find that the longer I am gluten-free, the longer it takes for me to react (while for some people it is the opposite). Last year I'd have awful D within minutes of eating gluten, while now I get a stomach ache pretty soon, but the D won't start until a whole WEEK later! But it always comes, without fail, eventually, and I'll be miserable for a few days.

How do I know this? :ph34r: Well, I have to admit that I have doubted my self-diagnosis a few times, and got sick of being on this diet and purposely ate something with gluten. I always regretted it soon enough. :blink:

Link to comment
Share on other sites
Truffles Newbie
Truffles
  • Author
Posted
I find that the longer I am gluten-free, the longer it takes for me to react (while for some people it is the opposite). Last year I'd have awful D within minutes of eating gluten, while now I get a stomach ache pretty soon, but the D won't start until a whole WEEK later! But it always comes, without fail, eventually, and I'll be miserable for a few days.

How do I know this? :ph34r: Well, I have to admit that I have doubted my self-diagnosis a few times, and got sick of being on this diet and purposely ate something with gluten. I always regretted it soon enough. :blink:

Hello!

Wow THANK YOU kindly xo

Im so pleased to hear this. Im thinking the same thing too in regards self diagnosis. Im actually still sitting here waiting to feel pain lolol... Sounds a bit pathetic but my family thinks its in my head... well their reactions are anyways. They all tell me to get tested. I cant exactly get tested now that Im off gluten because the results arent as good so it wont matter. They dont understand. They think its stress or from eating a junky diet which I do NOT. I eat tons of good healthy raw foods. Im kind of hoping I get the pain in a few days just so I can have a EUREKA moment... once again.... Then I SWEAR I wont do it again... well...

I really appreciate the response. I thought it was an immediate reaction considering I had an immediate reaction a few weeks ago with the gravy.

Much appreciated

Truffles :)

Hi,

I?m just learning about this as I go along with the help of the information I read on this board.

Long before I returned to my gluten-free diet I gave up eating sauces and gravies that had been thickened because I suffered terrible pain and D almost immediately after having them.

Maybe you can be more sensitive to gluten in one form than another which in turn causes a variation in reaction times and severity of the reaction itself. Not sure but someone here will be able to give you more accurate advice.

Hello! :)

Thank you! That's a really good point. I never thought of it like that. Well I guess Im going to swear off the gluten again now that I ate some cereal and a bit of cracker and see what happens... Im tempted to eat more. Its like I WANT something to happen NOW so I can say oh yeah... Ugh!

Regards,

Truffles :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...