Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

If You Eat Gluten By Mistake?
0

11 posts in this topic

I've been gluten-free for a year. I was positive on the Enterolab test but my biopsy (yes that's a whopping ONE biopsy my doctor took) was negative and so was my blood work, which was taken about 4 weeks after being gluten-free. I am still looking for a doctor in my area (Central/Southern NJ) that will even entertain the Enterolab or gluten-free diet as positive for Celiac....but that's a whole other topic....

Anyway my question is, does anybody take anything to help with all the side effects if you accidentally injest gluten?? I just hate the way I feel after I eat gluten and I am VERY careful in what I eat but sometimes something slips in there and I feel like crap for about 5 days. And my mood is just intolerable, I can't even stand to be around myself!! Any suggestions would be appreciated. Thank!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

There's nothing other than occasional Pepto Bismal or Immodium caplets that I can think of for you to use during times of a flare-up, but I really think you should continue to investigate why you might be feeling ill. If your blood test and biopsy were both negative, I don't see how this could be celiac disease. You may be intolerant of gluten the way some are intolerant of dairy, I suppose, and that's why you're miserable when you eat gluten. The bottom line, I guess, is that if you feel better off gluten you shouldn't eat it, but don't give up looking for another diagnosis just in case, especially since you are negative for this disease.

0

Share this post


Link to post
Share on other sites

Be careful when using things like Immodium to stop diarrhea. Diarrhea is your bodys way of getting rid of the toxins. If you put a stop to that with the immodium you are just keeping the toxic stuff inside for longer. I say let it run it's course, drink pleanty of fluids and get some rest.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

This is a good question. I am curious about it myself. Before I wen gluten-free I carried a lunchbox full of pills!! Immodium is pretty harsh for me but is a wonder drug when I am traveling and can not possibly risk getting a bad attack of diarrhea.

Vicodin helps when I am VERY ill. I have all the antispasmatics, bentyl, donnatol, Levsin, etc. They don't work very well. I have antivert for the severe vertigo I got. Peppermint tea helps and now that I am on the healing side of things pepto bismal helps for nausea and diarrhea since my symptoms are not as severe as they were before. When I am really sick I find it is best just to let it run it course, since trying to stop things makes me sicker in the long run

0

Share this post


Link to post
Share on other sites
my biopsy (yes that's a whopping ONE biopsy my doctor took) was negative and so was my blood work, which was taken about 4 weeks after being gluten-free.

If you were gluten free for a month before your testing, then that would explain them being negative.

As for what to do when you get gluten, there isn't much to do, except take it easy and get plenty of rest. And be careful not to have too many "accidents". It takes me about 4-5 days to get over the GI symptoms, but the fatigue can last up to a few weeks with me. :( And I am very grumpy, and that is putting it mildly.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites




My GI doc prescribed a medication called "LEVBID", it helps with the abdominal cramps/pain but does nothing for the diarrhea.

0

Share this post


Link to post
Share on other sites

This is alittle off subject, but just alittle. I got an E-mail from my gluten intolerant cousin yesterday and she says she takes "Pepogest" by Nature's Way everyday. It is basically just a peppermint oil, and it helps her all around and makes things easier to digest. It may even help with accidental gluten intake, I will have to ask her. She also takes "Flax seed" everyday, I am not sure what for - but she says it helps. I am assuming they are to help get rid of all the blotaing and gas junk we go through. It would be awesome if they helped with an accident too. I just thought I would share this with everyone, because she has been at this diet for quite awhile now. I am going to try the things she has recomened. :)

Deanna

0

Share this post


Link to post
Share on other sites

I already have Pepogest, I like it a lot and I always carry it around with me. It doesnt help when I have really bad cramps although I did take a prescription once "ultram" that did wonders for the cramping. "Lomotil" is great for diarrhea. I didn't know if there was something else that I wasn't aware of that maybe speeds up the elimination of the gluten. I appreciate everybody's responses.

As far as the comment regarding testing negative thru biopsy. I must say that my doctor lied to me about the biopsies, he told me he took "several" but he only took one because I checked with the insurance company. So my doctor lied to me. I had stopped eating gluten for some time before even having the biopsy because I was doing a diet similar to SCD when I received my Enterolab results and had been eating only fresh foods, no sugar, no preservatives of any kind. I started going to the doctor for intestinal problems about 5 yrs ago but have Endo as well with lots of abdominal adhesions so they thought this was the cause of stomach pain back then. I had been sick for over a year this past time with no diagnosis, my doctor actually thought I had cancer because my xrays showed polyps in my illeum and sent me to the Univ. of Philadelphia to have somebody there read my xrays. I had been tested for both colitis and chrons, both negative. Had upper GI with meal follow thru, pelvic & abdominal CATs & colonoscopy. If wasn't until a year later AFTER bringing him the Enterolab results that he even entertained the idea of a upper endo and blood work. I have already been diagnosed with Fibro and a host of medical probelms too long to list. I don't even know why I should be explaining myself to you anyway.....

0

Share this post


Link to post
Share on other sites

hey snoopini,

i can totally sympathize with all of that. It was crashing blood sugar lows day after day that sent me to an endocronologist to find a cause. he thought i had adrenal insufficiency (my symptoms were mainly neurological). I went on all kinds of steroids, had every kind of scan you can imagine and was just losing weight every day. I got down to about 85lbs and felt like I was starving to death all of the time. One day my endo. (thank GOD he talks outloud to himself!) said something about antibodies being a bit high. I said "what's that?" he said "oh, that would be Celiac Srue disease, but you would have diarrhea if you had that and you have the opposite problem." well, what the heck? I wrote it down and did an internet search to find that Celiac doesn't always cause diarrhea and can mimic fibromyalgia, MS (which I was diagnosed with 6 years ago), and all sorts of ailments. I found all of my symptoms listed and thought I'd try the only remedy - the gluten-free diet. I did it for about 2 months and felt terrific. I told my endo I wanted a referral to a gastro-enter. THAT doctor did an upper endoscopy (only 1 biopsy!) and said it was normal and I definately DIDN'T have Celiac.

Well, I have a new doctor now, and after trying to eat 'normal" for several months (and feeling like crap again) simple bloodwork confirms all 3 antibodies above normal. I've been gluten-free for about 3 months now and feel MUCH better, aside from being MAJORLY sensitive now and NOW when I get contamination, I get the digestive symptoms and dermatitis hepetiformis symptoms (which I never had much problem with b4).

So, doctors sure don't know everything. Thank God circumstances happened the way they did, or I'd still be in the dark about all of this!

Hang in there! At least we've got resources in this day and age to help us. I know this sounds scary, but don't expect a doctor to know everthing. Trust what your body is telling you and do some research yourself. Sometimes I hate this diet so much I want a 'certificate' of Celiac-ness from a doctor (positive biopsy and all), but I KNOW how I feel when I eat that junk, and I've learned to just trust my own body's responses.

Take care!

-donna

0

Share this post


Link to post
Share on other sites

Snoopini...Just curious..who are you so angry with? I was trying to get you to follow up with medical care because I was concerned you may have been given an incorrect diagnosis. I certainly don't think my tone was harsh or that I was saying you definitley don't have celiac disease, just that it may be a good idea to investigate further. I'm a moderator here, and have been using these boards a long, long, time....I've never been rude to anyone nor have I had such a defensive response. Sorry I tried to help.

0

Share this post


Link to post
Share on other sites

Snoopini,

We all have explained ourselves to each other, and there is no reason to feel ashamed of what's happening to your body. It isn't your fault. No matter what the results are, we'll be here for you when you need support/advice. :wub:

I hope your find the answers you're looking for.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,419
    • Total Posts
      917,669
  • Topics

  • Posts

    • Formal dinner suggestions
      Hi people. I'd just like some ideas for what I can take for V to a formal family dinner. Unfortunately the restaurant has stated there is no gluten-free safe option so I have to take his meal and dessert.  I can make him gluten-free chocolate cake so thats fine.  But its a three course dinner, and I need to transport it there. Hopefully they will be happy to heat it if needed.  Something really nice and special would be good because everyone else will be eating really  nice meals.  
    • Italian pasta
      Get some celiac travel cards to print off and keep in your wallet.  Present them to your waiter.   http://www.celiactravel.com/cards/ Tell the airline that you need a gluten free meal, BUT take food with you because odds are the airlines will make a mistake.   As far as the wheat pasta.....some folks say the wheat is different.  I personally think they are kidding themselves.  There is no scientific proof that I have found to support this theory.  (Anyone want to present such data?)  Italy, from what I heard is great for celiacs.  I'll know for sure this summer!  I'll be there!   As usual, we plan on bringing some packable food, but we are good at shopping at grocery stores for food and picnicking when traveling.  I expect foods at grocery stores to be clearly marked as they were in Great Britain since they are part of the EU.  
    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,551
    • Most Online
      1,763

    Newest Member
    Cwilson2345
    Joined