If You Eat Gluten By Mistake?
Posted 19 July 2004 - 09:01 AM
Anyway my question is, does anybody take anything to help with all the side effects if you accidentally injest gluten?? I just hate the way I feel after I eat gluten and I am VERY careful in what I eat but sometimes something slips in there and I feel like crap for about 5 days. And my mood is just intolerable, I can't even stand to be around myself!! Any suggestions would be appreciated. Thank!!
Posted 19 July 2004 - 11:30 AM
Posted 19 July 2004 - 11:56 AM
Gluten Free since 12-31-2002!!
Posted 19 July 2004 - 11:57 AM
Vicodin helps when I am VERY ill. I have all the antispasmatics, bentyl, donnatol, Levsin, etc. They don't work very well. I have antivert for the severe vertigo I got. Peppermint tea helps and now that I am on the healing side of things pepto bismal helps for nausea and diarrhea since my symptoms are not as severe as they were before. When I am really sick I find it is best just to let it run it course, since trying to stop things makes me sicker in the long run
Posted 19 July 2004 - 12:06 PM
my biopsy (yes that's a whopping ONE biopsy my doctor took) was negative and so was my blood work, which was taken about 4 weeks after being gluten-free.
If you were gluten free for a month before your testing, then that would explain them being negative.
As for what to do when you get gluten, there isn't much to do, except take it easy and get plenty of rest. And be careful not to have too many "accidents". It takes me about 4-5 days to get over the GI symptoms, but the fatigue can last up to a few weeks with me. And I am very grumpy, and that is putting it mildly.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 19 July 2004 - 12:09 PM
Posted 20 July 2004 - 07:05 AM
Posted 20 July 2004 - 08:42 AM
As far as the comment regarding testing negative thru biopsy. I must say that my doctor lied to me about the biopsies, he told me he took "several" but he only took one because I checked with the insurance company. So my doctor lied to me. I had stopped eating gluten for some time before even having the biopsy because I was doing a diet similar to SCD when I received my Enterolab results and had been eating only fresh foods, no sugar, no preservatives of any kind. I started going to the doctor for intestinal problems about 5 yrs ago but have Endo as well with lots of abdominal adhesions so they thought this was the cause of stomach pain back then. I had been sick for over a year this past time with no diagnosis, my doctor actually thought I had cancer because my xrays showed polyps in my illeum and sent me to the Univ. of Philadelphia to have somebody there read my xrays. I had been tested for both colitis and chrons, both negative. Had upper GI with meal follow thru, pelvic & abdominal CATs & colonoscopy. If wasn't until a year later AFTER bringing him the Enterolab results that he even entertained the idea of a upper endo and blood work. I have already been diagnosed with Fibro and a host of medical probelms too long to list. I don't even know why I should be explaining myself to you anyway.....
Posted 22 July 2004 - 06:13 PM
i can totally sympathize with all of that. It was crashing blood sugar lows day after day that sent me to an endocronologist to find a cause. he thought i had adrenal insufficiency (my symptoms were mainly neurological). I went on all kinds of steroids, had every kind of scan you can imagine and was just losing weight every day. I got down to about 85lbs and felt like I was starving to death all of the time. One day my endo. (thank GOD he talks outloud to himself!) said something about antibodies being a bit high. I said "what's that?" he said "oh, that would be Celiac Srue disease, but you would have diarrhea if you had that and you have the opposite problem." well, what the heck? I wrote it down and did an internet search to find that Celiac doesn't always cause diarrhea and can mimic fibromyalgia, MS (which I was diagnosed with 6 years ago), and all sorts of ailments. I found all of my symptoms listed and thought I'd try the only remedy - the gluten-free diet. I did it for about 2 months and felt terrific. I told my endo I wanted a referral to a gastro-enter. THAT doctor did an upper endoscopy (only 1 biopsy!) and said it was normal and I definately DIDN'T have Celiac.
Well, I have a new doctor now, and after trying to eat 'normal" for several months (and feeling like crap again) simple bloodwork confirms all 3 antibodies above normal. I've been gluten-free for about 3 months now and feel MUCH better, aside from being MAJORLY sensitive now and NOW when I get contamination, I get the digestive symptoms and dermatitis hepetiformis symptoms (which I never had much problem with b4).
So, doctors sure don't know everything. Thank God circumstances happened the way they did, or I'd still be in the dark about all of this!
Hang in there! At least we've got resources in this day and age to help us. I know this sounds scary, but don't expect a doctor to know everthing. Trust what your body is telling you and do some research yourself. Sometimes I hate this diet so much I want a 'certificate' of Celiac-ness from a doctor (positive biopsy and all), but I KNOW how I feel when I eat that junk, and I've learned to just trust my own body's responses.
Posted 23 July 2004 - 08:08 PM
Guest_~wAvE WeT sAnD~_*
Posted 26 July 2004 - 07:40 AM
We all have explained ourselves to each other, and there is no reason to feel ashamed of what's happening to your body. It isn't your fault. No matter what the results are, we'll be here for you when you need support/advice.
I hope your find the answers you're looking for.
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