Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

If You Eat Gluten By Mistake?
0

11 posts in this topic

I've been gluten-free for a year. I was positive on the Enterolab test but my biopsy (yes that's a whopping ONE biopsy my doctor took) was negative and so was my blood work, which was taken about 4 weeks after being gluten-free. I am still looking for a doctor in my area (Central/Southern NJ) that will even entertain the Enterolab or gluten-free diet as positive for Celiac....but that's a whole other topic....

Anyway my question is, does anybody take anything to help with all the side effects if you accidentally injest gluten?? I just hate the way I feel after I eat gluten and I am VERY careful in what I eat but sometimes something slips in there and I feel like crap for about 5 days. And my mood is just intolerable, I can't even stand to be around myself!! Any suggestions would be appreciated. Thank!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

There's nothing other than occasional Pepto Bismal or Immodium caplets that I can think of for you to use during times of a flare-up, but I really think you should continue to investigate why you might be feeling ill. If your blood test and biopsy were both negative, I don't see how this could be celiac disease. You may be intolerant of gluten the way some are intolerant of dairy, I suppose, and that's why you're miserable when you eat gluten. The bottom line, I guess, is that if you feel better off gluten you shouldn't eat it, but don't give up looking for another diagnosis just in case, especially since you are negative for this disease.

0

Share this post


Link to post
Share on other sites

Be careful when using things like Immodium to stop diarrhea. Diarrhea is your bodys way of getting rid of the toxins. If you put a stop to that with the immodium you are just keeping the toxic stuff inside for longer. I say let it run it's course, drink pleanty of fluids and get some rest.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

This is a good question. I am curious about it myself. Before I wen gluten-free I carried a lunchbox full of pills!! Immodium is pretty harsh for me but is a wonder drug when I am traveling and can not possibly risk getting a bad attack of diarrhea.

Vicodin helps when I am VERY ill. I have all the antispasmatics, bentyl, donnatol, Levsin, etc. They don't work very well. I have antivert for the severe vertigo I got. Peppermint tea helps and now that I am on the healing side of things pepto bismal helps for nausea and diarrhea since my symptoms are not as severe as they were before. When I am really sick I find it is best just to let it run it course, since trying to stop things makes me sicker in the long run

0

Share this post


Link to post
Share on other sites
my biopsy (yes that's a whopping ONE biopsy my doctor took) was negative and so was my blood work, which was taken about 4 weeks after being gluten-free.

If you were gluten free for a month before your testing, then that would explain them being negative.

As for what to do when you get gluten, there isn't much to do, except take it easy and get plenty of rest. And be careful not to have too many "accidents". It takes me about 4-5 days to get over the GI symptoms, but the fatigue can last up to a few weeks with me. :( And I am very grumpy, and that is putting it mildly.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites




My GI doc prescribed a medication called "LEVBID", it helps with the abdominal cramps/pain but does nothing for the diarrhea.

0

Share this post


Link to post
Share on other sites

This is alittle off subject, but just alittle. I got an E-mail from my gluten intolerant cousin yesterday and she says she takes "Pepogest" by Nature's Way everyday. It is basically just a peppermint oil, and it helps her all around and makes things easier to digest. It may even help with accidental gluten intake, I will have to ask her. She also takes "Flax seed" everyday, I am not sure what for - but she says it helps. I am assuming they are to help get rid of all the blotaing and gas junk we go through. It would be awesome if they helped with an accident too. I just thought I would share this with everyone, because she has been at this diet for quite awhile now. I am going to try the things she has recomened. :)

Deanna

0

Share this post


Link to post
Share on other sites

I already have Pepogest, I like it a lot and I always carry it around with me. It doesnt help when I have really bad cramps although I did take a prescription once "ultram" that did wonders for the cramping. "Lomotil" is great for diarrhea. I didn't know if there was something else that I wasn't aware of that maybe speeds up the elimination of the gluten. I appreciate everybody's responses.

As far as the comment regarding testing negative thru biopsy. I must say that my doctor lied to me about the biopsies, he told me he took "several" but he only took one because I checked with the insurance company. So my doctor lied to me. I had stopped eating gluten for some time before even having the biopsy because I was doing a diet similar to SCD when I received my Enterolab results and had been eating only fresh foods, no sugar, no preservatives of any kind. I started going to the doctor for intestinal problems about 5 yrs ago but have Endo as well with lots of abdominal adhesions so they thought this was the cause of stomach pain back then. I had been sick for over a year this past time with no diagnosis, my doctor actually thought I had cancer because my xrays showed polyps in my illeum and sent me to the Univ. of Philadelphia to have somebody there read my xrays. I had been tested for both colitis and chrons, both negative. Had upper GI with meal follow thru, pelvic & abdominal CATs & colonoscopy. If wasn't until a year later AFTER bringing him the Enterolab results that he even entertained the idea of a upper endo and blood work. I have already been diagnosed with Fibro and a host of medical probelms too long to list. I don't even know why I should be explaining myself to you anyway.....

0

Share this post


Link to post
Share on other sites

hey snoopini,

i can totally sympathize with all of that. It was crashing blood sugar lows day after day that sent me to an endocronologist to find a cause. he thought i had adrenal insufficiency (my symptoms were mainly neurological). I went on all kinds of steroids, had every kind of scan you can imagine and was just losing weight every day. I got down to about 85lbs and felt like I was starving to death all of the time. One day my endo. (thank GOD he talks outloud to himself!) said something about antibodies being a bit high. I said "what's that?" he said "oh, that would be Celiac Srue disease, but you would have diarrhea if you had that and you have the opposite problem." well, what the heck? I wrote it down and did an internet search to find that Celiac doesn't always cause diarrhea and can mimic fibromyalgia, MS (which I was diagnosed with 6 years ago), and all sorts of ailments. I found all of my symptoms listed and thought I'd try the only remedy - the gluten-free diet. I did it for about 2 months and felt terrific. I told my endo I wanted a referral to a gastro-enter. THAT doctor did an upper endoscopy (only 1 biopsy!) and said it was normal and I definately DIDN'T have Celiac.

Well, I have a new doctor now, and after trying to eat 'normal" for several months (and feeling like crap again) simple bloodwork confirms all 3 antibodies above normal. I've been gluten-free for about 3 months now and feel MUCH better, aside from being MAJORLY sensitive now and NOW when I get contamination, I get the digestive symptoms and dermatitis hepetiformis symptoms (which I never had much problem with b4).

So, doctors sure don't know everything. Thank God circumstances happened the way they did, or I'd still be in the dark about all of this!

Hang in there! At least we've got resources in this day and age to help us. I know this sounds scary, but don't expect a doctor to know everthing. Trust what your body is telling you and do some research yourself. Sometimes I hate this diet so much I want a 'certificate' of Celiac-ness from a doctor (positive biopsy and all), but I KNOW how I feel when I eat that junk, and I've learned to just trust my own body's responses.

Take care!

-donna

0

Share this post


Link to post
Share on other sites

Snoopini...Just curious..who are you so angry with? I was trying to get you to follow up with medical care because I was concerned you may have been given an incorrect diagnosis. I certainly don't think my tone was harsh or that I was saying you definitley don't have celiac disease, just that it may be a good idea to investigate further. I'm a moderator here, and have been using these boards a long, long, time....I've never been rude to anyone nor have I had such a defensive response. Sorry I tried to help.

0

Share this post


Link to post
Share on other sites

Snoopini,

We all have explained ourselves to each other, and there is no reason to feel ashamed of what's happening to your body. It isn't your fault. No matter what the results are, we'll be here for you when you need support/advice. :wub:

I hope your find the answers you're looking for.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,569
  • Topics

  • Posts

    • Hey there! Welcome to the club you never wanted to be a part of. Boy, you are certainly throwing yourself one heck of a bang up pity party aren't you? PLEASE do not take that as a put down! I don't think there is a single solitary one of us who hasn't thrown ourselves at least 1 pity party. I know I've thrown at least 3. Oh, & crying meltdowns in the grocery store? Every one has been there, done that one too. It's all part of the process just like cyclinglady said. Ravenwoodglass is right on too about how it can mess with your head. Boy! Can it ever mess with your head! You really have been given excellent info. by all who have answered. I want to touch on something that hasn't been addressed yet but you mentioned it and that is kissing. You might call me an old lady as I'm just shy of 60 but I'm also a child of the 60's so remember that when you read what I'm going to tell you. BTW, I'm married to the same person, my only marriage, for 43 years. Anyone who cuts & runs because they have to brush their teeth before kissing you is not worth 2 minutes of your time and you are well rid of them! Be thankful that you have this "screening tool" because it will save you a lot of wasted time. If they won't even give you a chance when they hear about the precautions you have to take then they aren't worth a damn! Imagine someone like that standing by your side when times get tough. You can't can you? That's because they won't and you want a true partner who will support you and hang in there through the challenges we face in life & believe me, you will both face many life challenges.  Cooking. You don't have to be a gourmet. Cook simple. You know how to boil & scramble & fry eggs right? Only takes a couple minutes. Veggies? Aw heck, nuke 'em OR throw them on a baking pan spritz them with olive oil & spices of your choice & stick them in the oven. Smoothies are easy. Fresh fruit is well, fresh fruit - easy - peel it & eat it or just pop it in your mouth. Sweet potatoes can be nuked too & are wonderful for you. Salads are easy. Nut butters are a great source of protein. Karen had some great examples in her post too. Her "attitude adjustment" tips are great as well.  
    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50 to be optimal, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low. Edit: Also my blood pressure was low when my ferritin level got very low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,648
    • Most Online
      3,093

    Newest Member
    Mileenabug
    Joined