Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here - Hi All!
0

15 posts in this topic

We are new to this forum - found it through some of the members on UKparents.

Neil, my partner has celiac disease and we have found the last 4 years a bit of a 'mare'! Even his parents do not understand the illness and at family parties never cater for him!

Eating out can be a problem or expensive!

Hope to see you all around! :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome! We hope to see you around, too!

0

Share this post


Link to post
Share on other sites

I don't like to eat out with celiac disease either.....too bad that is own parents don't help cater to his dietary needs.... :( ........welcome!

-celiac3270

0

Share this post


Link to post
Share on other sites

welcome!

0

Share this post


Link to post
Share on other sites

Welcome to the club.

My parents and family are supportive in that they ask how I am doing and badger me about my weight loss or gain, but they do not cater anything to me or my diet. It's a fend for yourself diet. Luckily they live far away and don't visit that often. I love them to death and would love to have them around, but they don't make any effort to accomodate my cross contamination issues when they stay at my house for a visit, which makes it hard for me.

Anyway, I have found that this diet really shows you who the people are who love you! My family (hubby and kiddo) & I have local friends who are fantastic about this diet. My three year old knows what foods Mommy can or cannot touch or eat. If a three year old can handle the diet anyone can! The family friends have learned to cook gluten-free meals so I can still come to their house for dinner. We go out to eat and for ice cream and always it is a place that I can eat at safely. They insist on a gluten-free safe place even when I say "Let's go to __ (no gluten-free food) and I'll just bring something or skip".

Although this diet can be hard on you and your immediate family, look around at the friends and family who are interested in learning and helping.

I hope your family gets more supportive over the years!

0

Share this post


Link to post
Share on other sites




Hi, I'm a new Celiac too, what a shock, I've never heard of this diease before

and I love my pasta and batter fried fish. My family are trying to get the hang of

this, as I am, but they don't understand how serious it is.... that I can't have anything

with gluten in it, or that I can't come off the diet for a special occasion then get back on

it the next day. I guess they honestly believe that this is a DIET and not a life-style

change. Anyway I've been reading some past notes and know I have a long way to

go before this becomes normal. I'm going to stick with it because I feel soooo much

better and I never want to get back in the shape I was in 2 months ago.

I'd like to hear from you, This is also a first for me,(posting a note) I don't even know if

I'm doing it right.

0

Share this post


Link to post
Share on other sites

Hi Castewar,

It does get easier. Just stick to your guns about the food and eventually friends and family will take you seriously. You may come to find that many of them have gluten intolerance too but just aren't ready to admit it. They all will be watching you closely to see how committed you are to the diet and if you are serious about getting better. Misery loves company you know? Once they see how serious you are, you may find that they begin to ask questions about symptoms and find they suffer from some of them. You will be their guide into the wonderful world of gluten-free eating. I love helping other gluten sufferers find a reason for their pain and get a chance to help in a way. I was raised in TX and boy do I know the feeling of giving up batter fried anything. I have however learned to batter fry gluten-free. Try rolling fish & chicken in buttermilk and then into rice flour or cornmeal(gluten-free of course) and add gluten-free seasonings to taste and then fry in a deepfryer. We make catfish and chicken nuggets this way.

:P Best wishes,

Rian

0

Share this post


Link to post
Share on other sites

Hello! Welcome and I hope you stay. I know how the family thing can go. My relatives only cater when we are in small groups. . .like 3 or 4. . .but only with food at a local store- chips and candy. In big groups they don't seem to care but say "I guess there is nothing here for you, huh?" It' okay though because I don't see them much. Hopefully things will change with his family!

Again, welcome!

Kristina

0

Share this post


Link to post
Share on other sites

Hi There,

This is also the first time I've posted here.

We just figured out about 3 months ago, from a friend, that my husband, from all the stomach distress that he's had through the years, could have celiac disease. She brought a pamphlet with all the info and from all the symptoms they listed, he had most of them. So. we did some research on different flours and foods that he could he eat and it looked pretty bleak. I went through all my cupboards and got rid of all things that contained Gluten. Man, is it expensive when you first get started, plus you have to be a food chemist is understand the labels on foods. But after the first week, it was amazing the change he went through. He's been gluten-free for almost 4 months. He's lost over 35lbs. Luckily, all our friends and family are very supportive. When we visit, we usually pack his own foods. Breads, cereal, condiments, butter, milk (because he is also Lactose Intolerant), which makes it more fun. The bad part of all this is that we're spending 3 times the price on food. Luckily, there's only the 2 of us. I can't imagine feeding a large family gluten-free unless you had to. I don't have a Gluten problem that I know of, but I've lost about 25lbs on this lifestyle change. Hopefully, eating this way, my husband and I have added on an extra 15 or so years to our life span.

Going out to eat is a real challenge and very expensive. No fast food palces for him. Full service is about the only way to go so he can special order his food. Why is it so expensive to eat healthy and take care of yourself???

Well, I've ranted enough. I'm glad I found this forum. May need some advice from the experts out there. Thanks, Wife of a celiac disease, Jean

0

Share this post


Link to post
Share on other sites
The bad part of all this is that we're spending 3 times the price on food. Luckily, there's only the 2 of us. I can't imagine feeding a large family gluten-free unless you had to. I don't have a Gluten problem that I know of, but I've lost about 25lbs on this lifestyle change. Hopefully, eating this way, my husband and I have added on an extra 15 or so years to our life span.

Going out to eat is a real challenge and very expensive. No fast food palces for him. Full service is about the only way to go so he can special order his food. Why is it so expensive to eat healthy and take care of yourself???

Yep....I'm the older of two children in a family of four. I'm the only celiac in my family, so nobody else eats gluten-free, not because the food is horrible or anything, but simply because it is soooo expensive. It is a challenge to eat out. About fast food places, McDonalds fries are gluten-free....cooked in oil that is used only for the fries and hashbrowns. TGI Fridays has a gluten-free menu, as do PF Changs and many other places I can't remember. It is difficult, though, to eat out...nobody gets it....it's rather funny and disturbing at the same time when you ask about gluten and people think you're talking about sugar (glucose).

-celiac3270

0

Share this post


Link to post
Share on other sites

I have had two friends in the last week say something about french fries," You can't have french fries either huh?" I just ask them, " You do realize that french fries are potato not wheat right?" It is like no one realizes just what gluten is or obviously what wheat is. Duh. :D If I get really angry about someones attitude, I just "kill them with kindness. " I try not to let on that their comments bother me. Sometimes I feel like I am speaking to a little child when I try to explain our food allergy to them. Oh well, I know I am healthier and happier since going gluten-free. No amount of fresh baked donuts, french bread, cakes, ect. at the store could make me want to go back to the agony I was in before gluten-free. I have some good recipes if anyone would like some. Just ask. :rolleyes:

Rian

0

Share this post


Link to post
Share on other sites

About fast food places, McDonalds fries are gluten-free....cooked in oil that is used only for the fries and hashbrowns. TGI Fridays has a gluten-free menu, as do PF Changs and many other places I can't remember. It is difficult, though, to eat out...nobody gets it....it's rather funny and disturbing at the same time when you ask about gluten and people think you're talking about sugar (glucose).

Yea, I know what you mean. We've been pretty lucky since we live in a tourist area, and work in a resort town. You have alot of tourist that come through with alot of food allergies, so the waiters and also the chefs have to know alot about all the food allergies or you could get someone very sick and get sued. :o Hopefully, as time goes on and more celiac disease info gets out people in the resturant busness will get more educated on celiac disease and food allergies.

As for McDonalds, we avoid that place. Along with Gluten, my husband also has a problem with oily, greasey and fatty foods. That includes peppers and possibly tomatoes. We're not sure if it's the tomatoes or the spices that you use in spegehetti sauce and also taco sauce, does him in too. I know he can't do cheese, so there goes Italin and Mexican foods. :( Man, this is tough and forget the imitation cheese. YYYUUUUCKKKKK!!!!!!! <_<

0

Share this post


Link to post
Share on other sites

We are sensitive to Hydrogenated oils. I have a hard time with oily foods but I am struggling to let dairy go. I bet I'd lose five to ten pounds in a week if I got off of it though. It does take a lot of time and patience to be gluten-free but it sure is nice to feel good. B)

Rian

I was beginning to wonder if anyone was on this site this afternoon.

0

Share this post


Link to post
Share on other sites

I just posted a reply dealing with our sensitivity to hydrogenated oils but it just disappeared on me. I am having a tough time as a Newbie on this site. I haven't quite got the hang of it yet. I try very hard to avoid hydrogenated oils too because they seem hard for my husband, two girls as well as myself to digest. I wonder if many other celiacs have the same problem. Too many years of damage maybe? <_<

Rian

0

Share this post


Link to post
Share on other sites

What you need to do is print off some articles about Refractory Celiac Disease and show them to Neil's family. Maybe then it might sink in just how serious this disease can be. They have to understand that it is not just an "allergy", gluten is actually "toxic" to a celiac's system. If they realize the importance of strict adherence, they probably would be more understanding.....

Welcome to the board!

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,352
    • Total Posts
      917,434
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      Is Tissue Transglutaminase IgG one of the tests that can be done (I am guessing that is what TTG IGG stands for). Please correct me if I am wrong.
      Thank you.
    • Weird Reaction
      I'm afraid to say I don't really think it is normal Richie, but I do recognise the shakiness and nausea you speak of, as I've been there. (Pre-diagnosis), my shakiness was so bad, my muscles were very weak and couldn't walk without the aid of a walking stick, my ferritin levels were so very, very low and had to take iron tablet every day for months. My hair was falling out, I had really bad digestional issues, amongst other things. I think you should lay off the coffee and the barley drink and all gluten/wheat, because until you do, your body is not going to repair itself properly. Damage is done to the gut even if you don't have gastrointestinal issues, as not all coeliacs have symptoms, but the damage is still being done to the gut, which in turn can cause osteoporosis, other auto-immune diseases and also cancer.  If you ever get a test for coeliac disease, you need to be eating gluten/wheat for at least 6 weeks on a daily basis in order for it to set of the immune response in your body, which will cause a positive result. (Blood tests are less reliable than endoscopy with biopsies - bare this in mind).  You may decide of course not to have a test for coeliacs because of how ill it could make you feel by eating gluten etc. In which case, you need to avoid all gluten and wheat forever! (By the way another symptom of coeliac disease is dairy/lactose intolerance- which could be causing your nausea). Sorry to be blunt, but you need to know the dangers and there's no point in sugar coating it. What is your fasting blood test for? 
    • Take #60forCeliac this May for Celiac Awareness Month
      Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need a cure. Experts agree that if we work together, we can make it happen in under 10 years. View the full article
    • Simple Kneads Gluten Free Bread
      The first thing you'll notice when you visit the Online Bakery at SimpleKneads.com is that this gluten free bread doesn't look like other bread.  It looks beautiful. And it certainly doesn't taste like other gluten free bread, either.  It tastes like real bread. View the full article
    • Metropolitan Gourmet
      With Gluten Free foods flooding the market, we struggled to find a breadcrumb product that is gourmet and clean. Our mission is to provide our customers an all-natural artisanal breadcrumb with the simplest ingredients. We bake our own gluten free bread, made fresh every day in our allergen free facility in Parsippany New Jersey. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,485
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined