Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

No Villi........no Dairy :(
0

18 posts in this topic

My doctor says that if you have flattened villi you are lactose intolerant. I guess the end of those villi produce the needed enzyme to digest dairy. Does anyone know if the villi grow back?

I like cheese so will miss it. I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

0

Share this post


Link to post
Share on other sites


Ads by Google:

Lily, the villi do grow back, so you may be able to tolerate dairy products again once you heal. This may take several months, though! It's also possible that you are sensitive to casein, a milk protein that looks enough like gluten that many celiacs cross-react to it--in which case, the dairy would need to stay out of your diet for good. I hope you are just lactose-intolerant and that your villi heal quickly, so you can enjoy your favorite cheeses again!

0

Share this post


Link to post
Share on other sites

There are plenty of dairy free yummy cheeses out there. Go to your local health food store and try some. Also, try cheese made out of goats milk- they can be milder on the stomach and easier to tolerate. Good luck!

0

Share this post


Link to post
Share on other sites

Thanks for the information! Sarah, I appreciate the breakdown between lactose and casein, I thought they were the same thing.

Lily

0

Share this post


Link to post
Share on other sites

Lily,

It only took us 1 month for being dairy-free before we could go back to eating dairy!

I hope you heal quickly!

Good luck!

Connie

0

Share this post


Link to post
Share on other sites




Here's where coming to this site is so helpful. No one told me that I should avoid dairy, when I was diagnosed. :o I have now been gluten-free since Halloween. I have not had any problems with diary, and I have yogurt for lunch nearly every day. Should I still try to avoid dairy for a while, even though I don't have any problems from it??

Thanks for the help.

Sharon

0

Share this post


Link to post
Share on other sites

Sharon, I don't think it's automatically necessary to avoid dairy, though it certainly wouldn't hurt to try it. If the damage to your intestines is only patchy, you may still be able to produce enough lactase in the intact areas to digest dairy with no problem. I hope that's the case for you!

0

Share this post


Link to post
Share on other sites

Thanks, Sarah, I often feel like a moron, but it is so helpful to know that I can come here and get answers. Again, learn as we go.... <_<

I have noticed, too, that although I didn't seem to suffer a lot of gasto symptoms before diagnosis, (I was mind numbingly tired, and very pale, and had lots of gas) now I find that if I make a boo-boo, I am much more sensitive, with headaches, some diarrhea, and abdominal bloating.

Thanks again.

Sharon :)

0

Share this post


Link to post
Share on other sites

Sharon,

You're not a moron! You're here and you're trying to heal and learning as you go, which all speak well for your wisdom! I've just been insatiably curious about medical things ever since I was a child, so I tend to soak up medical knowledge like a sponge. My friends tease me by saying that if I'm down in the dumps, all they need to do is start a conversation about death and disease to cheer me up! :lol:

I've also gotten a lot more sensitive since I went gluten-free. It seems to be fairly common. I'm so glad I finally figured out what was wrong with me! It's wonderful to feel like I might actually be truly healthy one day.

I hope you are doing well!

0

Share this post


Link to post
Share on other sites

Sarah-- Thanks for the encouragement. I feel so much better than I did a year ago, that it amazes me. When I feel good, I feel REALLY good!!! It's the coolest thing!!! :D

But anyway, like I said, its great to come here and get questions answered. I work full time, and I like to come here, because no one is condescending or makes anybody feel bad for having questions. I could write non stop for a month and still have questions.

Sharon

PS can't wait til we get a chat feature, so I can talk at everybody!!!

0

Share this post


Link to post
Share on other sites

Hi there,

I tried Silk brand soy yogurt the other day and it was very good. I tried the blueberry, but will definitely buy it again. Yum, all is not lost. Thanks you guys!

Lily

0

Share this post


Link to post
Share on other sites

I'm new to the forum. My son (28) was diagnosed a celiac in Nov. - right before he came home for Thanksgiving dinner. He is on a gluten-free diet but is feeling only "slightly better." He was eating salads for lunch and can no longer eat them due to bloating, etc. He consumes lots of dairy as he was also diagnosed with "bone-thinning." He notices that corn also causes him problems. He is getting very discouraged.

0

Share this post


Link to post
Share on other sites

Liz,

Hopefully your son can come here for some support. I too have problems with raw vegetables, I'm too sensitive at this time. I also can't handle dairy for now. I find I feel much better if I'm not eating any pre-fab foods. I personally can't eat at a salad bar because of the stuff they spray to keep it fresh, makes me very ill. It's very frustrating to go into a normal grocery store and note that you can't eat the majority of the things they sell. Has he tried finding a good health food store? I've found quite a few alternatives there. I too was complaining about not feeling better yet, my nutritionist says it'll take a couple of months to feel a little better and about 6 months to feel a lot better. I'm at the beginning of my special diet and not feeling so well either.

Blessings to your son and hope he feels well soon.

Lily

0

Share this post


Link to post
Share on other sites

Hi. I'm very new to all this. It's my first time on this site and I'm feeling comforted already. I've been on the gluten-free diet for six weeks and although I was not having tummy troubles before (other things led to the diagnosis) I am now. Just in the last week I have been having uncomfortable tummy aches with bloating and burping for a two hours after I eat (this doesn't happen after every meal). Does this sound like a dairy problem? I've never had a problem before but something is causing this. I would love to hear any info you might have about this. Thank you.

0

Share this post


Link to post
Share on other sites

Dairy could definitely be a problem. I thought I was doing so well being gluten free but I was still sick! I never knew about the dairy until then. Once everything heals up, I'm hoping to add dairy back into my diet.

Good luck!

Lily

0

Share this post


Link to post
Share on other sites

I was Dairy-free for the first year and then I was able to tolerate all the dairy foods for the last 10 years and have been fine. So just wait a year and then try slowly reintroducing dairy, if you get sick from it then stop.

molly d-s

0

Share this post


Link to post
Share on other sites
My doctor says that if you have flattened villi you are lactose intolerant.  I guess the end of those villi produce the needed enzyme to digest dairy.  Does anyone know if the villi grow back? 

I like cheese so will miss it.  I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

You should be tested for lactose intolerance before giving up milk & milk products.

If you have damaged villi due to celiac disease the microvilli (on the tips of those villi) which normally deal with lactose may be temporarily damaged, too.

When you cut out or cut down on lactose the microvilli re-grow & can work again.

The condition can be resolved by cutting out lactose- containing items for a few months or weeks if you are lactose (milk sugar) intolerant.

I had L I for several months after being diagnosed with celiac disease but was still able to digest hard cheese, gluten-free yogurt and goat's milk & cheese OK since these are very low in lactose.

I can now drink some ordinary milk each day without any reaction but have soy milk or lactose-reduced milk as my main milk.

0

Share this post


Link to post
Share on other sites

Hi Flagbabyds,

Were you lactose intolerant or allergic to dairy?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined