Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

No Villi........no Dairy :(
0

18 posts in this topic

My doctor says that if you have flattened villi you are lactose intolerant. I guess the end of those villi produce the needed enzyme to digest dairy. Does anyone know if the villi grow back?

I like cheese so will miss it. I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

0

Share this post


Link to post
Share on other sites


Ads by Google:

Lily, the villi do grow back, so you may be able to tolerate dairy products again once you heal. This may take several months, though! It's also possible that you are sensitive to casein, a milk protein that looks enough like gluten that many celiacs cross-react to it--in which case, the dairy would need to stay out of your diet for good. I hope you are just lactose-intolerant and that your villi heal quickly, so you can enjoy your favorite cheeses again!

0

Share this post


Link to post
Share on other sites

There are plenty of dairy free yummy cheeses out there. Go to your local health food store and try some. Also, try cheese made out of goats milk- they can be milder on the stomach and easier to tolerate. Good luck!

0

Share this post


Link to post
Share on other sites

Thanks for the information! Sarah, I appreciate the breakdown between lactose and casein, I thought they were the same thing.

Lily

0

Share this post


Link to post
Share on other sites

Lily,

It only took us 1 month for being dairy-free before we could go back to eating dairy!

I hope you heal quickly!

Good luck!

Connie

0

Share this post


Link to post
Share on other sites




Here's where coming to this site is so helpful. No one told me that I should avoid dairy, when I was diagnosed. :o I have now been gluten-free since Halloween. I have not had any problems with diary, and I have yogurt for lunch nearly every day. Should I still try to avoid dairy for a while, even though I don't have any problems from it??

Thanks for the help.

Sharon

0

Share this post


Link to post
Share on other sites

Sharon, I don't think it's automatically necessary to avoid dairy, though it certainly wouldn't hurt to try it. If the damage to your intestines is only patchy, you may still be able to produce enough lactase in the intact areas to digest dairy with no problem. I hope that's the case for you!

0

Share this post


Link to post
Share on other sites

Thanks, Sarah, I often feel like a moron, but it is so helpful to know that I can come here and get answers. Again, learn as we go.... <_<

I have noticed, too, that although I didn't seem to suffer a lot of gasto symptoms before diagnosis, (I was mind numbingly tired, and very pale, and had lots of gas) now I find that if I make a boo-boo, I am much more sensitive, with headaches, some diarrhea, and abdominal bloating.

Thanks again.

Sharon :)

0

Share this post


Link to post
Share on other sites

Sharon,

You're not a moron! You're here and you're trying to heal and learning as you go, which all speak well for your wisdom! I've just been insatiably curious about medical things ever since I was a child, so I tend to soak up medical knowledge like a sponge. My friends tease me by saying that if I'm down in the dumps, all they need to do is start a conversation about death and disease to cheer me up! :lol:

I've also gotten a lot more sensitive since I went gluten-free. It seems to be fairly common. I'm so glad I finally figured out what was wrong with me! It's wonderful to feel like I might actually be truly healthy one day.

I hope you are doing well!

0

Share this post


Link to post
Share on other sites

Sarah-- Thanks for the encouragement. I feel so much better than I did a year ago, that it amazes me. When I feel good, I feel REALLY good!!! It's the coolest thing!!! :D

But anyway, like I said, its great to come here and get questions answered. I work full time, and I like to come here, because no one is condescending or makes anybody feel bad for having questions. I could write non stop for a month and still have questions.

Sharon

PS can't wait til we get a chat feature, so I can talk at everybody!!!

0

Share this post


Link to post
Share on other sites

Hi there,

I tried Silk brand soy yogurt the other day and it was very good. I tried the blueberry, but will definitely buy it again. Yum, all is not lost. Thanks you guys!

Lily

0

Share this post


Link to post
Share on other sites

I'm new to the forum. My son (28) was diagnosed a celiac in Nov. - right before he came home for Thanksgiving dinner. He is on a gluten-free diet but is feeling only "slightly better." He was eating salads for lunch and can no longer eat them due to bloating, etc. He consumes lots of dairy as he was also diagnosed with "bone-thinning." He notices that corn also causes him problems. He is getting very discouraged.

0

Share this post


Link to post
Share on other sites

Liz,

Hopefully your son can come here for some support. I too have problems with raw vegetables, I'm too sensitive at this time. I also can't handle dairy for now. I find I feel much better if I'm not eating any pre-fab foods. I personally can't eat at a salad bar because of the stuff they spray to keep it fresh, makes me very ill. It's very frustrating to go into a normal grocery store and note that you can't eat the majority of the things they sell. Has he tried finding a good health food store? I've found quite a few alternatives there. I too was complaining about not feeling better yet, my nutritionist says it'll take a couple of months to feel a little better and about 6 months to feel a lot better. I'm at the beginning of my special diet and not feeling so well either.

Blessings to your son and hope he feels well soon.

Lily

0

Share this post


Link to post
Share on other sites

Hi. I'm very new to all this. It's my first time on this site and I'm feeling comforted already. I've been on the gluten-free diet for six weeks and although I was not having tummy troubles before (other things led to the diagnosis) I am now. Just in the last week I have been having uncomfortable tummy aches with bloating and burping for a two hours after I eat (this doesn't happen after every meal). Does this sound like a dairy problem? I've never had a problem before but something is causing this. I would love to hear any info you might have about this. Thank you.

0

Share this post


Link to post
Share on other sites

Dairy could definitely be a problem. I thought I was doing so well being gluten free but I was still sick! I never knew about the dairy until then. Once everything heals up, I'm hoping to add dairy back into my diet.

Good luck!

Lily

0

Share this post


Link to post
Share on other sites

I was Dairy-free for the first year and then I was able to tolerate all the dairy foods for the last 10 years and have been fine. So just wait a year and then try slowly reintroducing dairy, if you get sick from it then stop.

molly d-s

0

Share this post


Link to post
Share on other sites
My doctor says that if you have flattened villi you are lactose intolerant.  I guess the end of those villi produce the needed enzyme to digest dairy.  Does anyone know if the villi grow back? 

I like cheese so will miss it.  I've heard there is rice cheese and soy cheese, anyone tried it?

:blink: I'm still trying to get adjusted to the gluten-free diet, I could be doing better but coming here really helps.

Lily

You should be tested for lactose intolerance before giving up milk & milk products.

If you have damaged villi due to celiac disease the microvilli (on the tips of those villi) which normally deal with lactose may be temporarily damaged, too.

When you cut out or cut down on lactose the microvilli re-grow & can work again.

The condition can be resolved by cutting out lactose- containing items for a few months or weeks if you are lactose (milk sugar) intolerant.

I had L I for several months after being diagnosed with celiac disease but was still able to digest hard cheese, gluten-free yogurt and goat's milk & cheese OK since these are very low in lactose.

I can now drink some ordinary milk each day without any reaction but have soy milk or lactose-reduced milk as my main milk.

0

Share this post


Link to post
Share on other sites

Hi Flagbabyds,

Were you lactose intolerant or allergic to dairy?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,566
  • Topics

  • Posts

    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
    • So far dairy seems to be OK, as are eggs. I like canned chickpeas so will carry on with those. Beans I had ruled out at one point with the doctor's recommendation to go with the low FODMAPs diet but will reintroduce those now I know it probably wasn't that causing the problems.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,647
    • Most Online
      3,093

    Newest Member
    iFitCeliac
    Joined