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Newbie ...awaiting Test Results And Surfing Celiac Boards


capecodda

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capecodda Rookie

Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!

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CarlaB Enthusiast

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

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capecodda Rookie
Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

Hi Carla. The tostada was at a local restaurant..though I had eggs and cheese this morning too and just read eggs can be a problem. I was doing better and better every day from my most recent intestinal upset..eating potatos, chicken soup, rice, yams..ate multi grqain oatmeal and ended up at the drs. Extreme fatigue, feeling of vessel pounding in intsetines...dry skin...took a whole day to work it through. Since that day I have not touched any of the grains and am re hyrated, no low grade temps, quiet intestines, weight back up. I am very familiar with the diet you wrote above..thanks!

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CarlaB Enthusiast

I have had problems with restaurants that don't specifically have gluten-free menus. Sometimes I'm okay, sometimes not. I've cut out eating out until I feel better ... I know that's not what you want to hear, but it's risky and there's a high chance of contamination at any restaurant.

Some people are allergic to eggs. A large percentage of celiacs have problems with dairy. If your intestine is indeed damaged, you are probably unable to digest lactose. For me, I'm casein intolerant and get the same symptoms from dairy that I get from gluten.

The hardest part about eating out when you're not healed and are still learning, as I am since I'm only 8 months into this, is that you can't trace with certainty what made you sick. I finally cut back to the basics I listed above. When I finally feel good for some time, then I'll expand my list. I was eating out a lot, and trying all kinds of things before, but just only got well to a point.

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