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Gastroparesis?


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#1 Guest_~jules~_*

 
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Posted 24 August 2006 - 07:31 PM

When I had my endoscopy there was still food in my stomach although I hadn't eaten since 5pm the night before. So my gi doc. is having me go for a gastric emptying study. I guess the condition is called gastroparesis, its associated with diabetes and other things, I don't really know that much about it really. Does anyone here have this? Also he found a hiatul hernia, and in my bloodwork my liver enzymes were high :blink: Sheesh! One day your just peachy, then you start getting sick, one test leads to another and another finding. I'm about done with all this poking, proding, and probing.
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#2 Rikki Tikki

 
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Posted 25 August 2006 - 04:49 AM

:D I don't know anything about it but just wanted to wish you well.
The good thing is that he has found problems before they gave you obvious symptoms.
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Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"
"blood work show's a disease called celiac,
but it can't be that because it's rare!"
Diagnosed via blood and biopsy 2003


Not a medical professional just a silly celiac
offering support, my
experience and advice

#3 jenvan

 
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Posted 25 August 2006 - 05:23 AM

One of my friends has it. Go here, there is some good info on it: http://www.mayoclini...paresis/DS00612
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#4 ehrin

 
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Posted 25 August 2006 - 05:37 AM

I may be able to ease your fears a bit.

The way my GI doc dxed with celiac was during tessting for diabetic gastroparesis (see sig)
While I has having the upper endoscopy done he went a step further and took a biopsy of my intestine. So...I come to and he tells me that yes, my stomach was not emptying and gave me a script for Reglan - a really nasty medicine that's side effect is a parkinson's like symptom. :(
The next day I get a phone call that I need to come in ASAP and that exactly one week later he told me that I had the most abnormal biopsy (what does that mean anyway) that he's ever seen, my bloodwork was off the charts, and I have celiac disease - sweet.
Anyway...I started really researching the diabetic gastro diagnosis, becuase I just did not have any of the symptoms: naseau, always full, throwing up after eating...unable to eat because of these things. Not one. However, I had all the symptoms of celiac disease. I felt that was a strong diagnosis - the gatroparesis? Not so much. So I didn't take the Reglan - only if I had a very large meal in the beginning.
Fast forward to my 6 month appt. I say to my doc - listen, I don't buy this gastro diagnosis. I have no symptoms, I don't want to take that medicine and I think it was the Celiac disease somehow causing my stomach not to empty - who knows, I'm sure weirder things have happened. He looks at me and says - "I agree."
To not have one symptom - and those symptoms are pretty strong ones, it's not like you could overlook them, just does not warrent a diagnosis in my book - even if the test said so.
I'll have another upper endo done in a few more months (1 year dx anniversay is in Oct), just to confirm.
But doc and I believe there is no gastro.

Do you have symptoms???
Again, this isn't law or anything, but it certainly is something to think about!
Good Luck
Ehrin
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My name is forgettable, so I invite you to remember this tale." (RG)

Diagnosed with celiac disease, by biopsy, 10/05
T1 diabetic since 2/80

#5 marciab

 
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Posted 25 August 2006 - 06:29 AM

I was diagnosed with this back in 2004. Endoscopy was positive, but the gastric emptying test was negative. I have a hiatal hernia too.

Mine was never that bad. I just couldn't eat a lot at one time.

FYI: Muscle relaxers and narcotics slow down your digestion and should be avoided.

Marcia
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Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

#6 jenvan

 
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Posted 25 August 2006 - 06:30 AM

When I had my endoscopy there was still food in my stomach although I hadn't eaten since 5pm the night before. So my gi doc. is having me go for a gastric emptying study. I guess the condition is called gastroparesis, its associated with diabetes and other things, I don't really know that much about it really. Does anyone here have this? Also he found a hiatul hernia, and in my bloodwork my liver enzymes were high :blink: Sheesh! One day your just peachy, then you start getting sick, one test leads to another and another finding. I'm about done with all this poking, proding, and probing.

oh and ps: high liver enzymes are very common in Celiacs before going on the diet, or being on it for a while.
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#7 Guest_~jules~_*

 
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Posted 25 August 2006 - 08:05 AM

No, I really don't have any of the syptoms, thank god. I have before though, but I've had acid reflux for a few years also. I go monday morning for the test, so we'll see then. If it is in fact a side effect of celiac in some way, I'm not too sure I want any meds for it. I'm not too sure what he's doing about the enzymes being high yet, but it was nice to hear that this is also a sign of celiac. Frankly I'm tired of going to the doctor, can anyone second that! <_< Thanks for the reply everyone. Julie :D
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#8 Woody

 
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Posted 25 April 2007 - 02:08 PM

Hi I do not know if anyone else is checking on gastorparesis. I was diagnosed with this at the same time period as celiac, March of 2005. Did not not like the durgs my doctor perscribed. I have stayed away from fresh[uncooked vegetables]. Has anyone else come across these same systems? I am a 50 year old male.
Woody
email me rbtvcms13@aol.com
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#9 bbleh6424

 
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Posted 04 June 2007 - 06:35 PM

I also have gastroparesis. Mine was also found with endoscopy after being diagnosised with celiac disease. Most people also have diabetes. I do not. I think it is nerve damage to the vagus nerve that inervates the stomach. I agree there seems to be one thing then another. I also have insulin resistance,high cholesterol, a blood clotting disorder that they haven't been able to diagnoseand I go through each day trying to have enough energy to get by. There has to be a better way.

With you in MO
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#10 pinky

 
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Posted 15 August 2007 - 10:19 AM

i just found out that i have this too. i had a gastric emptying study due to my symptom complaints (bloating, stomachaches, extreme feelings of fullness). has there been any studies to show association btwn celiac and this disease? i can only find the association to diabetes...
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#11 brenda07

 
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Posted 16 August 2007 - 07:34 AM

i have gastroparesis also they found mine with a stomach emptying test, about a year after i found out that i had celiac, i was not eating much, i had no energy, and i was never hungry, always felt full, stomach always hurt also, so they did the test and sure enough that was it, so they added that to the many other things i deal with on a daily basis, so of course they just say eat 5-6 small meals through out the day, which i find hard to do, but i'm trying, it doesn't make things easy though, good luck with everything. feel free to ask me any questions if you have any.
Bren
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#12 Pgrin

 
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Posted 29 August 2007 - 04:18 PM

This is an interesting topic. In my own experience I feel like there's a relationship between gluten sensitivity and slow stomach emptying and I wish I could know for sure what's going on with my body! :) I had recently been undergoing testing for celiac disease. On the panel blood test I had high-ish IGG results, but was normal on everything else. My GP still suspected celiac given possible malabsorption problems, and recommended that I try the gluten-free diet for 6 weeks and see a GI specialist if it had a positive difference. Even though I was really skeptical, I felt wonderful on the gluten free diet, but in ways I didn't think I'd be affected - I felt really energetic within a few days, my mood improved, and constant pressure in my sinuses and upper-back went away (and this was so persistent that I didn't even know it was abnormal until it went away). The GI specialist felt this warranted the endoscopy (after a month back on gluten). It was during the endoscopy that the doctor discovered evidence of gastroparesis, but not celiac disease. I was prescribed Reglan right away, but didn't use it because of the potential side-effects, instead I just went back off gluten and started to feel great again. I was convinced by the doctor to try the Reglan and decided to do some self-experimentation with diets. I went back on gluten for two weeks while taking the Reglan and felt great, went off gluten while taking the Reglan and still felt great. When I ran out of Reglan I tried eating gluten again but I started to feel miserable so I cut back on the gluten. Now I find the best diet for me includes several small meals a day, lots of water, soups and smoothies, and greatly limiting my gluten intake, but not leaving it out entirely - basically, I just don't stress about cross-contamination anymore. So, definitely the Reglan made me feel great, but without it, it's only when I'm limiting my gluten intake that I really feel great. I feel as though the gastroparesis diagnosis fits with the stomach, GI, and malabsorption symptoms I've had - though I still can't explain the sinuses and exhaustion and such. I wish I knew whether my limitation of gluten is warranted or not and wonder if a gluten sensitivity is causing damage to the vagus nerve in the same way it damages the intestinal villi in celiac disease. Would love to hear your thoughts or more experiences.
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#13 Amber100

 
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Posted 01 September 2007 - 05:14 PM

I was also diagnosed with gastroparesis and celiac and told to go on reglen but the side effects of the reglen for me were awful so I stopped the reglen and went gluten free but I don't feel as good as i think i should! i have a new GI doc now and he thinks i dont have celiac not because my antibodies were low and my gene test was +- but i definitly feel even worse when I eat gluten. Does anyone else have this problem with the gene thing and with not feeling great still? And are there other foods to watch out for?
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#14 Condiala

 
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Posted 11 December 2007 - 04:07 PM

I was tested for gastroparesis long before I was tested for Celiac's. I have both, and I agree with the nerve damage theory (or at least that is is a probable cause). I have been on Reglan, and quit it for the same reasons as everyone else: dystonic reaction. I was also prescribed Promethazine, but quit that because it made me unable to sleep. I don't believe there have been enough studies on this, in fact, I'm not sure there have been any. However, cutting out gluten did not improve my emptying. It has improved the pain, but not the physical digestion.
I have never had the genetic test, though I really wish I had been, for curiousity's sake.
There are other foods to watch with gastroparesis. You might want to try limiting your intake of fiber and fat. It varies for people, but the standards are less than 8g fiber and less than 24g fat per day. Combining these two rules, not eating gluten, eating frequently and eating probiotics have increased my health greatly. I do still have problems, because my gastroparesis is really bad, but it's at least better.
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#15 Juliebove

 
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Posted 11 December 2007 - 04:12 PM

It is presumed that I have it. The test done at my hospital uses eggs and I have a severe allergy. So given my symptoms and the lack of motility on my endospcopy, the gatroenterologist said he is going to assume that I do have it.

Mainly I have to watch what I eat. I can have breakfast and dinner, but no lunch. If dinner will be a long ways off, I might have a small snack. If I get up late, I just have one meal before dinner. I can't eat too much in the way of raw vegetables and I have to watch the meats like roast beef.
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