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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Second Biopsy To Show Improvement?
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6 posts in this topic

Hi everyone. Well, it has been 6 months since my daughter was dx with Celiac, and she has a check up with her GI doctor next Friday. I was just wondering if she will be having another endoscopic procedure and biopsy scheduled to determine whether or not the gluten-free diet is helping her intestines to heal. If it is normal to have a second biopsy, when and how often? Thanks for any info you have!

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I have heard 6 months to a year for the 2nd one. I had the first July 18 03 and the second May 25th 04. It is helpful since they can see if the gluten free diet is working. I am not an expert, but that is what my dr advised.

Lisa

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After my initial biopsy I had two more, one a year later and the other 2 years later. They just wanted to make sure I wasn't inadvertantly ingesting gluten.

Hope that helps!!

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Hi all, I haven't been here in a while, but I had a 2nd biopsy yesterday, and I was told this morning that there are still findings of inflammation consistent with sprue. I was very disappointed, since I am as gluten free as I know how to be, but I am thinking that this still may be an improvement, since the first EGD showed a tremendous amount of damage. I was told at that time, that everything she touched with the instrument caused me to bleed.

I know, I know, all this damage didn't occur in a day, so I guess I should have expected this, but I am feeling so much better, that I had assumed that I was all healed inside.

Anyway, more details as they become available.

And thanks for listening to me whine.

Sharon ;)

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More and more the standard is to avoid the second endoscopy. Negative or improved follow-up blood tests and improvement on the diet are now considered proof you're getting better and the villi have healed. If you DO have the second one, it should be more like a year after starting, but I personally wouldn't do it.

richard

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Two celiac friends (not on board) have not had second biopsies......I've heard no mention of one for me.

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