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Supplements For Celiacs
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13 posts in this topic

Are people using supplements of any kind in addition to the diet? What supplements have you found helpful? I am using quite a few: mulitvitamin, B complex, selenium, iron, vitamin E, fish oil, CoQ10 but do not know whether I need them with the diet. I have been gluten free about 6 months and it has improved things tremendously, much more energy, more normal bowel movements. Prior to the diet I think the supplements saved me from much more severe symptoms. I was 55 before figuring out that I might have inherited my mother's "non-tropical sprue". Have not had a positive confirmation with intestinal biopsy. The IgA test was negative

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I think I should be taking a vityamin/mineral supplement, but they don't agree with me for some reason. As far as supplements go, the only ones I haven't reacted to are: KAL brand Cal-Citrate + with Vitamin D & Magnesium or Nature's Plus CAL/MAG mineral supplement amino acid chelate/complex. I prefer the KAL brand, as it dissolves in vinegar within 30 minutes. Nature's Plus brand does not, but I've been told by a health food store owner that chelated minerals are easily absorbed. I also take one Nature's Bounty Probiotic Acidophilus with breakfast. My genetic test shows I got 1 HLA-DQ8 gene from each parent. Blood tests came back negative. No intestinal biopsy. Feel WONDERFUL when gluten-free...feel AWFUL if I eat even a small amount of gluten. I've been Gluten-free for 3 years, diagnosed just before I turned 50. I also just became extremely sensitive to fructose. Sugar agrees with me, but fructose does not, so I'm also eliminating fruits from my diet. I'm very active, work out, ski, bike, etc. so I know it doesn't hurt me.

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I think when just starting the diet, certain supplements like acidopholous, glutamine, and aloe may help to repair the colon faster.

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R. Jared sent this e-amil to me which I think has important info for us:

"Earlier this month I responded about Nature's Plus CAL/MAG. My health food store owner told me it is Gluten-Free. But, it's not!!! It took me a while to figure out that my reaction was from the CAL/MAG. Verified 1-9-2004 from the Nature's Plus company that it is NOT GLUTEN FREE. Pharmaceutical glaze contains gluten. I hope you haven't tried it. If so, please throw it away or give to someone who can use it. "

Does anyone know if capsules are gluten free?

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Susan

I think most capsules are not gluten free. As far as I've read, capsules use like a gelatin base that contains gluten. I always still to tablets, preferably uncoated at that.

Let me know if you find out different.

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that's interesting, because I've got two items (quercertin and omega-3) which are capsule, and both claim to be gluten-free. I'll see about calling the companies and checking out what they say on the label....

(I've never reacted to them., but I've been taking them for longer than I've been gluten-free)

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I just want to issue my heartfelt thanks to all of you who have helped me

since going gluten-free on Nov 1 2003, due to an allergy to wheat, which

I learned of by a blood test done by my gastro doc. I have been coming to this

board almost every night, but didn't feel like communicating. I have a lot of trouble

due to gerd, and IBS, which seems to be triggered by ingestion of fat. To make a

long story short,as a nurse I didn't believe that dietary supplements would make

much difference, but the meds prescribed by my GD weren't working to reduce

the bloating so a few days ago I bought some L-Glutamine and Acidolphus and

wonder of wonders I can actully say that I am actually feeling better and I just

want to thank all of you and I hope I can help others as I have been helped.

Judy :rolleyes:

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Does anyone take supplements, in addition to vitamins and minerals,

especially food enzymes to help the digestion of food? How about HCL to increase stomach acid for digestion?

Initally, a year ago after diagnosis I seemed to be fine on the gluten free diet. Now, I'm not so sure. I don't think I have any food allergies but I continue to have a lot of gas some days, even when I am sure I have eaten as I should. At first, it was only dry beans and I took Beano. Then, broccoli and now a lot of other vegetables produce gas. I eat very little red meat, sugar, no soft drinks, lots of various green teas, some black tea and once a week I have some coffee. I stay away from milk except for yogurt.

I do a lot of reading but have no one to really talk to about enzymes. What do you take?

Otherwise I take vitamins and minerals, copper, manganese, boron in addition to calcium and magnesium. I take Glutamine, Horsetail, Oil of Primrose, MSM, CoQ10, Ginko Biloba, and have just started SAMe and Taurine. I notice that my fingernails are improving.

I know that I have have Celiac at least 14 years and maybe as much as 25.

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I take digestive enzymes before every meal and they have helped with my gas problems quite a bit. They take away the full feeling after eating. I use AbsorbAid which I get from my health food store (I'm sure you can get them off the Internet, also). I still have some upper digestive tract gas, but the enzymes have definately helped. In fact, my husband now takes them.

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I was so excited when I went to Costco this evening I found kirkland brand multivitamins and Vitamin C gluten free as well as ferrous fumarate gluten free but I can't remember the brand name.

Karen

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Was Beano declared as gluten free? I seem to recall it wasn't......

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I take a B6 Supplement with a highly bioavailable whey protein and it has done wonders for me. It really helped improve my mood and ensure that I get my protein requirements for the day.

I also take a multivitamin, b12 and omega's.

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I take a multi-vitamin, iron, calcium/magnesium, glucosamine plus other meds for depression and hypothyroid.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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