Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Casein Intolerance


  • Please log in to reply

7 replies to this topic

#1 Cornhusker

 
Cornhusker

    Community Member

  • Advanced Members
  • PipPipPip
  • 56 posts
 

Posted 29 August 2006 - 08:42 AM

1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?
  • 0
I am NOT a celiac. I have Celiac Disease, but it is not who I am.

Celiac.com Sponsor:

#2 RiceGuy

 
RiceGuy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,520 posts
 

Posted 29 August 2006 - 09:59 AM

1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

Well, I think there should be some good info on casein or at least dairy right on the celiac.com site. Just click "Site Index" on the left hand side menu for a bunch of good info on all sorts of stuff.

My casein reactions didn't become noticeable for probably a year or so I guess. Once it did, I had to avoid it awhile to see the improvement.

As for having a reaction every time or every day, I think that can only happen if the reaction quickly passes, so that you can see the highs and lows. Again, for me it was more of a constant until I got the stuff out of my system.

So, I'd think the best way to get the definitive answers you seek is to try avoiding all dairy for a few weeks and see how you feel. Then if you still aren't sure, try having it and see if you notice the difference.

Incidentally, I didn't see much change from the gluten-free diet until about six months had passed. So it can take awhile depending on your particulars. Other people report a very quick change from adding/eliminating a food.
  • 0
A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#3 CarlaB

 
CarlaB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,049 posts
 

Posted 29 August 2006 - 10:00 AM

1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

1. No, sorry. You can go to www.enterolab.com, but there's only a little info there.

2. Well, it's like gluten (or smoking for those who used to), once I got off it, yes, but when I was eating it all the time, no.

3. You can give it a try by getting off it for a couple weeks. It's not easy, but it's really worth it if it has the possibility of making you feel better. Then when you're off it and you've tried it again to see if you're sensitive, you can determine whether it's the casein or the lactose by trying it with lactaid. If it's the lactose, it shouldn't bother you if you take lactaid, but if it's the casein, it will.
  • 0
gluten-free 12/05

diagnosed with Lyme Disease 12/06

#4 RiceGuy

 
RiceGuy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,520 posts
 

Posted 29 August 2006 - 10:16 AM

Then when you're off it and you've tried it again to see if you're sensitive, you can determine whether it's the casein or the lactose by trying it with lactaid. If it's the lactose, it shouldn't bother you if you take lactaid, but if it's the casein, it will.

That's an interesting idea. I found out by having some soy cheese that had casein in it. I have no idea what the point of that soy cheese is if it's essentially still a dairy product :huh: But without the lactose that does help narrow it down some I guess.
  • 0
A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#5 CarlaB

 
CarlaB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,049 posts
 

Posted 29 August 2006 - 10:23 AM

That's an interesting idea. I found out by having some soy cheese that had casein in it. I have no idea what the point of that soy cheese is if it's essentially still a dairy product :huh: But without the lactose that does help narrow it down some I guess.

Yea, I guess you could do that kind of test with a non-dairy creamer, too. I just don't see how they get away with saying they're non-dairy, then milk is on the back listed as an allergen!!
  • 0
gluten-free 12/05

diagnosed with Lyme Disease 12/06

#6 Cornhusker

 
Cornhusker

    Community Member

  • Advanced Members
  • PipPipPip
  • 56 posts
 

Posted 29 August 2006 - 10:29 AM

Mostly at this point, I'm just curious. I find the autoimmune reaction interesting.

As far as my diet goes, I think 7 weeks gluten-free is too soon to start tinkering with other things. I do feel better. It's just the bad days seem to happen without a cause. Which because of my personality drives me a little batty.

If I'm not damaging my insides, I'm willing to give gluten-free at least 6 months to stabilize.
  • 0
I am NOT a celiac. I have Celiac Disease, but it is not who I am.

#7 CarlaB

 
CarlaB

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,049 posts
 

Posted 29 August 2006 - 10:31 AM

Yea G F when lower case, next to each other comes out gluten-free. Only causes a problem if someone is talking about their girlfriend. Same thing with C D and celiac disease.
  • 0
gluten-free 12/05

diagnosed with Lyme Disease 12/06

#8 happygirl

 
happygirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,942 posts
 

Posted 29 August 2006 - 10:45 AM

cornhusker---
if you are still damaged from celiac/gluten, then you could potentially 'just' be temporarily lactose intolerant. have you heard the description about where lactase is located and why unhealed celiacs are temporarily lactose intolerant?
if not-i'll write back.
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: