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How Much Gluten And How Long?
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2 posts in this topic

Hi,

My 2yr old DD will be getting blood tested soon, and she has been gluten-free for about 9 months. Does anyone know how long she will have to consume gluten, and how much gluten to get an accurate test result? I am also trying to think of what I will give her that she will not notice as something new and exciting and continue to ask for after the testing is done, and I want it to be something that will not contaminate my house and kitchen implements with gluten, anyone have any suggestions?

Thanks,

S. Johnson

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Oooh...I've been gluten-free for five months....and I can't imagine going back to gluten and facing more symptoms......I've been sick for two days with Celiac symptoms (not from food, just in the healing process)......a lot of vomiting, nausea, abdominal pains, no sleep, and this morning I got really dehydrated from the vomiting, which really scared me....I've been drinking non-stop, today, and I think I'm doing better.

Anyway, 9 months.....wow. I wouldn't want to go back on gluten at all after 9 months of progress.....I think that those Enterolab tests would still work....I've never tried them but many on this site have. It might be a good alternative to messing up your daughter's intestines.

Doctors have different ideas of the length of time and amount of gluten, but I think most would say 2-3 months on gluten. I think you should get about two gluten meals a day, but since the idea is to mess up the intestines and show results, it might not be a bad idea to go completely off the diet.

I'm slightly confused by your last question.....do you want something new that's gluten-free or gluten-containing? You probably wouldn't want to get her asking for something that contains gluten.....after all, that would just make the diet harder for her to follow....but you did say that you want it to be something that wouldn't contaminate the kitchen.....I guess you're trying to make the symptoms more bearable by adding good-tasting gluten foods to her diet? If it is something gluten-containing, find something that you wouldn't need to cook or bake....for example, if she likes candy, you could buy her something like "Fruit By The Foot" or "Gushers" or "Kit-Kat"s......etc. It appears that you meant something with gluten, but if you meant otherwise, please let me know....

-celiac3270

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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