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Migranes
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4 posts in this topic

I think Im reading that a lot of you have migranes as symptoms.... Am I right?

My mom has celiac. I have celiac. My 19 yr old daughter has horrible stomach problems. The Dr told her to just go on the diet, as he is sure she has it also.

My question is my 27 yr old daughter...has always gotten horrible migranes.......Drs say they seem to be hormonol........ she has no stomach problems. But do yall think she should be tested also?????????Could gluten be causing these?

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If you have Celiac and your mom has celiac disease, then your daughter should be tested even if she had no symptoms at all......if she also has migrianes, definitely.

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I agree with celiac3270. Your daughter should be tested regardless of symptoms (or the lack of them).

I had digestive problems off and on during my childhood, which pretty much went a way in my teens, and came back worse after I had children in my mid-twenties. The consistent symptoms were migraine type headaches and joint pain. I still get both symptoms, but not as often and usually not as bad.

God bless,

Mariann

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I posted earlier in one of the forums here about not being sure if I was born with celiac disease or if it developed later on.

I can say for sure that I have had headaches some very severe for as long as I can remember. Some of my earliest memories are of terrible headaches. I can remember being in 2nd grade. The neighbor kid was facinated with being a fireman (which he went on to become). He thought that everyone should share his passion for being a fireman.

I can remember thinking and even saying, "I am afraid the firehouse bell would give me a headache, and this would make it hard for me to fight the fire." Well, of course, the adults just brushed me aside. They didn't believe that I could be having headaches the way I claimed to be having them. They said I was too young to have headaches.

Over the years, I was sent home from school several times vomiting with headaches. I have missed days of work with headaches, and have somewhat of a headache as I sit here and browse this forum.

My chiropractor says that the vertebra 1,2 & 3 are malformed, probably due to a serious fall as an infant that caused them to develop improperly. Well, I understand that I did have a serious fall at 6 mos. old. So, this being the case, and having hereditary pancreas problems, gave me a headache DOUBLE WHAMMY. So, I won't press my luck! :)

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    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
    • So ok, I get the pain/bloating thing, but it still feels so crazy. But my god, I look 6 months preggers after dinner and 4 months the rest of the time. How long will this last?! I have not gained any weight but have to hide me belly now. I can hardly breath! Omg, that does take me back to pregnancy.  I had "acute marked focal duodenditis" a few weeks ago and an elevated DGP. the pain sometimes makes me seriously think I must be bleeding somewhere. It is actually worse then 3 weeks ago. Although many of the other glutening symptoms are finally vanishing. Even my mid and lower back is tender to touch. Sometimes it burns, aches or like someone is stabbing me in my side. My ribs hurt and everything is tender.  I am on protonix and fish oil. I have a prn for xanax which helps the pain (off market use for muscle relaxant).    I am fair skinned and notice a red under-the-skin discolored rash that comes and goes on my upper stomach. Sometimes it travels down one side. Not itchy. Almost like I can actually see the inflammation under my skin.  1) when will I stop looking knocked up?  2) Any other fair-skinned folks notice a purpleish-red rash on your bellies? It mostly goes away and comes back, which I tske to be a good sign. 
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