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Migranes
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4 posts in this topic

I think Im reading that a lot of you have migranes as symptoms.... Am I right?

My mom has celiac. I have celiac. My 19 yr old daughter has horrible stomach problems. The Dr told her to just go on the diet, as he is sure she has it also.

My question is my 27 yr old daughter...has always gotten horrible migranes.......Drs say they seem to be hormonol........ she has no stomach problems. But do yall think she should be tested also?????????Could gluten be causing these?

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If you have Celiac and your mom has celiac disease, then your daughter should be tested even if she had no symptoms at all......if she also has migrianes, definitely.

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I agree with celiac3270. Your daughter should be tested regardless of symptoms (or the lack of them).

I had digestive problems off and on during my childhood, which pretty much went a way in my teens, and came back worse after I had children in my mid-twenties. The consistent symptoms were migraine type headaches and joint pain. I still get both symptoms, but not as often and usually not as bad.

God bless,

Mariann

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I posted earlier in one of the forums here about not being sure if I was born with celiac disease or if it developed later on.

I can say for sure that I have had headaches some very severe for as long as I can remember. Some of my earliest memories are of terrible headaches. I can remember being in 2nd grade. The neighbor kid was facinated with being a fireman (which he went on to become). He thought that everyone should share his passion for being a fireman.

I can remember thinking and even saying, "I am afraid the firehouse bell would give me a headache, and this would make it hard for me to fight the fire." Well, of course, the adults just brushed me aside. They didn't believe that I could be having headaches the way I claimed to be having them. They said I was too young to have headaches.

Over the years, I was sent home from school several times vomiting with headaches. I have missed days of work with headaches, and have somewhat of a headache as I sit here and browse this forum.

My chiropractor says that the vertebra 1,2 & 3 are malformed, probably due to a serious fall as an infant that caused them to develop improperly. Well, I understand that I did have a serious fall at 6 mos. old. So, this being the case, and having hereditary pancreas problems, gave me a headache DOUBLE WHAMMY. So, I won't press my luck! :)

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    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
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