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4 posts in this topic

I think Im reading that a lot of you have migranes as symptoms.... Am I right?

My mom has celiac. I have celiac. My 19 yr old daughter has horrible stomach problems. The Dr told her to just go on the diet, as he is sure she has it also.

My question is my 27 yr old daughter...has always gotten horrible migranes.......Drs say they seem to be hormonol........ she has no stomach problems. But do yall think she should be tested also?????????Could gluten be causing these?


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If you have Celiac and your mom has celiac disease, then your daughter should be tested even if she had no symptoms at all......if she also has migrianes, definitely.


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I agree with celiac3270. Your daughter should be tested regardless of symptoms (or the lack of them).

I had digestive problems off and on during my childhood, which pretty much went a way in my teens, and came back worse after I had children in my mid-twenties. The consistent symptoms were migraine type headaches and joint pain. I still get both symptoms, but not as often and usually not as bad.

God bless,



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I posted earlier in one of the forums here about not being sure if I was born with celiac disease or if it developed later on.

I can say for sure that I have had headaches some very severe for as long as I can remember. Some of my earliest memories are of terrible headaches. I can remember being in 2nd grade. The neighbor kid was facinated with being a fireman (which he went on to become). He thought that everyone should share his passion for being a fireman.

I can remember thinking and even saying, "I am afraid the firehouse bell would give me a headache, and this would make it hard for me to fight the fire." Well, of course, the adults just brushed me aside. They didn't believe that I could be having headaches the way I claimed to be having them. They said I was too young to have headaches.

Over the years, I was sent home from school several times vomiting with headaches. I have missed days of work with headaches, and have somewhat of a headache as I sit here and browse this forum.

My chiropractor says that the vertebra 1,2 & 3 are malformed, probably due to a serious fall as an infant that caused them to develop improperly. Well, I understand that I did have a serious fall at 6 mos. old. So, this being the case, and having hereditary pancreas problems, gave me a headache DOUBLE WHAMMY. So, I won't press my luck! :)


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    • Going private no problem with getting the tests now, adds financial pain to the physical pain but better than 6 month waiting list on the national health service. Just feels like a lot of pain and aggravation to tell me what I already know deep down. Feels like my whole future has been taken away with this and I have a feeling I haven't even seen the half of it yet. Doctor seems to be very relaxed on the concept of needing to worry about cross reactivity, gluten paranoia when eating out etc. yet it seems to be the case for most on there that that's exactly how it is for so many people. Someone tell me I'm wrong... or is that really what life becomes in the cold harsh reality of things?
    • It took me years to be diagnosed.  I've been misdiagnosed with several different things and knew that there was more to it.  I requested to have an egd to test for Celiac's two years ago, my doctor never called me back so I went low gluten from then on.  I still felt like hell because I didn't realize that "everything" has gluten in it....  My daughter became ill back in March.  I went to several different doctors trying to figure out what was causing her to be ill.  Our family doctor said she had gallstones, wanted to immediately do surgery on her.  I refused since she didn't fit the typical signs of a child with gallstones.  I requested a pediatric surgeon and then a pediatric gi dr.  The surgeon was smart enough to say maybe ask the gi dr to test for celiac disease....  Then it clicked.  I was so angry and mad at myself and my dr for not listening to my body for the past several years. Her blood test was negative, but the biopsy was positive.  She went on the gluten free diet.  I then said I wanted to be formally tested.  Blood test was negative, biopsy was positive and they ran the genetic screening.  I am a DQ2 homozygous, cat 8.  My doctor apologized to me over and over.   I have two sons that were tested for their genes, one is a cat 4 and one is a cat 2.  If they start showing signs of the disease they will be tested by way of egd.  Their pediatric gi said that I probably would've died by 40 if I was left undiagnosed.   So in saying all of that, fight for your test.  Listen to your body, but don't stop living.  Use this as a teaching tool.  Help others that don't understand the disease.  It'll be tough but you can do it...
    • Hi, thanks... Yes, I was diagnosed with glucose intolerance by an endocrinologist. That's when I started cutting back on sugar. Other than some deficits (chromium, testosterone, D + B-12) they found nothing. Except that I also have mild ostopenia, and I often get kidney stones which is strange but they told me not to worry about it and to get more exercise etc. Which is exactly what I've been doing. I can tell you, banning gluten and sugar from my diet is the best thing I've ever done in terms of diet. The pounds came right off. But don't worry, I'm not a walking skeleton yet, lol. Fortunately the weight loss is a result of my diet, I had problems losing weight before the diet and even when exercising. But it all makes sense now. I easily store carbs as fat and have a hard time losing them. I still have the intolerances though... I had a high white blood cell count but they thought nothing of it. It all points to inflammation in my gut somewhere. But hey they're the doctors if they tell me not to worry about it I'll just have to try and figure it out on my own I guess. Meanwhile I'm really happy to see the belly blubber disappear.  Cheers
    • Also, I know that the DQ2 is the most common one representing celiac disease.   I have low IgA-35 and my DGP Igg - 34.8 (medium to strong positive is greater than 30) All the IgA labs were within range. I have Hashimoto's as well. My vitamin D level is 23. I guess I'm wondering how likely it is that I have celiac disease.  The genes I have are not the worst ones to have, I believe, and while my DGP Igg is high it's not crazy high.  I'm still awaiting a call back from the GI as the PA told me to go gluten free for two weeks and then reintroduce it (this was last week while the GI was out of the office).  I guess I'm wondering what the point of that really is... Thanks again everyone for your help and advice as I navigate this...
    • Do you have any diagnosis from a doctor?  Weight loss like you are describing could signal a serious issue that you shouldn't be messing around with.
      You shouldn't be cutting out all of those foods without going to a doctor to figure out what is going on.
      A doctor would be doing testing to make sure nothing serious is going on.
      I'm the first person to say I haven't found a good doctor and I'm suffering with serious pain and issues because of that so I am altering my diet, but I'm following up with the doctor.  So if you haven't schedule an appointment with a GI doctor or some doctor.
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