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Hi

I only just saw this thread down at the bottom of the list!

I'm new (though have beenr eading and posting a bit higher up the board), so I'll just recap

Have had D, migraines, bloating, gas, acne etc for ages and bought the York IgG Elisa test a year or so ago, but only just got around to taking it.

Apparantly I have higher than normal amounts of things that came up - scoring 1-4 (4 being highest it can be):

Dairy (4)

Wheat 2

Gluten/glidin 2

Corn 1

Egg white 2

Egg yolk 1

Molluscs mix (!) 1

carrot 1

Kiwi 1

Garlic 1

Ginger 1

sesame seed 1

Coffee 1

Yeast 1

and 15 that came up in the moderate reaction so I should rotate those

I spoke to a nutritionist and she said to cut out dairy and gluten definitely, and eggs - which I have done for 3 or 4 weeks now (I hope! not used to all the things they can be found in yet). Another nutritionist said I should also cut out yeast, as that might be one of the main probs, even though it only came up as a 1..which I did for a while, then forgot and had a wine sauce..so leaving that one for now.

They both mentioned that I might have a leaky gut (also nearly died from spontaneous peritionitis, so was on strong antibiotics after my op - not sure if I think that the bacteria got across through my leaky gut, or that the antibiotics caused some inbalance, which lead to the leaky gut), so I've got some good probiotics too (just got them yesterday)

Anyway, enough of the rambling..now I'll read this whole new set of posts I've just discovered!

Sara

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Going gluten-free, dairy free, and egg free should clear up a lot of your problems.

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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