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How About New Jersey?
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35 posts in this topic

I might be interested in a Union group, I don't think that is too far from where I live (in the Long Valley area). By the way, if anyone is in Hackettstown, Mama's pizzeria has a new and seemingly very good gluten free menu with pizza. It looks good.

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Hi Karen & Deb-

I live in New Providence & work in Summit. Would love to meet some other Celiacs. I was diagnosed in 6/07 & have been doing this all by myself -- didn't know this chat room was here. There is a Whole Foods in Chatham that I use. They actually have relatively decent hamburger buns :D & there prairie bread makes great bread crumbs.

I would be very interested in a Union County support group. I am a colon cancer survivor, so Celiac Disease on top of that is a real shock! Would love to meet & talk!

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I live in Vineland, NJ. Was just diagnosed a week ago.

We're in Vineland too. Have you tried Conte's Gluten free Pasta? We are using Conte's for the Pasta dish in our wedding in August. No one will be able to tell it's gluten free!

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How/where do I get Contes? mail order?

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Here's Conte's information..You're going to love it! I love the perogies.

www.contespasta.com

310 Wheat Rd, Vineland - (856) 697-3400

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The Gluten Free Market carries Conte's products. they are in Fair Lawn. I don't know how far you are from there, but we live near Parsippany and it takes about 1/2 hour to get there, up 287 to 208 and they are right off 208. I was trying to find out their store hours the other day, though, and had typed their name into a search engine to see if they had a website (they don't seem to, I couldn't find it) but a For Sale listing for them popped up from Craigslist! I didn't know they were selling the store! I hope whoever buys it keeps it a gluten free market!

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I'm recently diagnosed and I'm looking for friends in NJ :) I live in central Jersey, Metuchen, Edison area.

Hello,

My name is Kim. I know you had posted this post quite a while ago, I don't know if you found anybody from New Jersey or not Gluten Free. I know it is a bit of a small distance but I am from Burlington County area. I am also gluten free, and looking for some gluten free friends.

Well I hope to talk to you soon.

Kim

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I'm in Jersey. I live in Middlesex county and was just diagnosed with it yesterday. Any words of advice from anyone?

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I'm in S. Jersey. Diagnosed 18 mos. ago. I knew I was in trouble when my GI doc asked me if I had a threshold for gluten containing products!!! Am having a terrible time with DH...just won't go away! Any and all help would be appreciated.

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I grew up in Wayne, in North Jersey and although I don't live there anymore, I'm down there often enough to make checking this thread worthwhile. I hope to learn where to go for a good meal next time I'm there! Last time, I went to a pizza place with lots of gluten-free options on Allen St. in the L.E.S. (not in NJ).

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    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
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