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Hungry
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I'd like to hear from others who can't gain weight and eat all day and are still hungry. I started a gluten free diet 3 weeks ago and it significantly helped my "asthma/cough", but I'm still hungry all the time. I only weigh 86 lb. or so - and am 5 feet. I used to be 98-102 years ago. What's interesting, is in 1998, I had a hysterectomy and after the surgery I suddenly went back to 98 pounds within 2 months - but then over the year lost it all without trying. I'm wondering if the anesthesia someone temporarily healed the intestines - anyone ever hear of that? Thanks, Patty

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I could eat whatever I wanted before and not gain weight, being gluten-free I go up and down in a range of 5 pounds. I thought I would lose a lot more concidering I am starving half the time, and I used to eat soooo much. It's weird.

Deanna

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Three weeks isn't much time. I was starving for many, many weeks after I went gluten-free and it took several weeks for me to regain weight. Eventually I got to the point where I had to diet.

richard

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I'm only 95 pounds and am 5' 5" AND i eAt like a PIG, you just aren't absorbing all the fat and nutrients, i have been on the diet since before I remember, according to a doctor even if you are completely healed you still don't absord all the nutrients

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It's hard for me to say....I do know that before I went on the diet, I lost 6 lbs in a few days. I'm 5'2 1/2, 115 lbs. Since I've been gluten free, I've been eating a lot of small, healthy meals a day. The last time I was weighed was the day my bloodwork was done, so I don't know if this diet has made me lose any more weight.

I think as long as you're still absorbing nutrients, you will be fine. :)

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I've always been thin but when I got really sick with celiac disease I lost 10-15 pounds (depending on the day) and I can't gain it back. People frequently comment on how I look too thin. It's really annoying.

I want to gain weight but I can't.

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I've been on the gluten-free diet for almost a year. Before diagnosis I lost about 45 lbs regardless of what I ate. I was eating 6-8 meals a day and was constatnly hungry and dropping pounds. After diagnosis, I too was STARVING all of the time and no matter what I ate.

What helped me was eating SMALL protein packed meals (they seem to take longer to digest). Also, I never left the house with a bag of snacks (Cereal, candy mix, fuit, drinks, etc.) I eventually got back to a healthy weight. I am still thin compared to what I used to weigh, but at least the questions about annorexia have stopped. People mean well, but I swear . . . stop and think before you open your mouth!

Anyway, what helped the most was the psychological end of it. If I am low on all supplies, I notice that I get anxious and hungry a lot more. Now I keep a freezer stocked with chocolate cake slices, pizza, breads, and muffins. The pantry always has flours, pastas, mixes, and cookies.

Good luck - you'll feel better soon!

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I have actually gained 2 pounds over the past 3 gluten-free months so I'm not worried about being too thin (5'4" and 105-107# range). However, I've learned to eat foods that stay with me for a while at each meal, so I don't have to bother with food decisions more than 3x per day. What helps me stay satisfied for long periods is balanced meals: protein, fiber from fruits, vegies, nuts, or higher fiber gluten-free grain products (tricky but possible) and FATS. Pre gluten-free/CF my breakfast was high fiber cereal with low fat milk and fruit (lots of carbs and fiber, but not much protein and fat). That lasted me 2-3 hours max. Now I eat gluten-free bread with nut butter and jam plus a little fruit which lasts me 5-6 hours. I try to get some kind of healthy fats, from nuts, olive or canola oil--since I can't tolerate soy--or even fatty fish, like sardines and salmon (canned gives me calcium as well), at every meal. If I eat unbalanced meals or snacks (high carbs, low fat/protein), I just get hungrier. I tend to drink lots of fluids between meals so I have plenty of appetite for good balanced meals. If I really can't make it to the next meal, I snack on nuts with fruit (protein, fats, fiber & carbs). I have to worry about trying to avoid gluten, dairy AND soy. So I don't want to bother with food decisions so often.

BURDEE

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I always feel hungry. Before I started my gluten-free life I used to eat wheat as a comfort food for my disfunctional gut. Despite the fact that it was causing long-term problems, it never actually caused any immediate symptoms and many other foods do. Wheat actually made me feel better! So when I was feeling a bit nervous in the stomache some bread, pasta, or crackers did the trick. I have found that most of the gluten-free versions of these foods don't have the same "buffering" effect. They don't stick with me or make me feel full, they just sit like a hollow stone in my gut instead. So I just get hungrier and hungrier feeling all the time now. Potatoes are somewhat helpful, more so than rice for instance, and beans help but cause other problems so I don't want to eat them too often. I am hoping that once my guts adapt to the new food it will not be as bad.

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Hi All,

My story is strange. When I was 19 , my first signs of a Gastro problem in college I

went from 215 pounds to 170 pounds. Over the years I have always been feeling like I was hungry even when I had eaten and i thought it was because of having to go to the bathroom almost immediatly after I ate something.

Now that I am diagnosed celiac I cannot lose weight. I thought I would lose weight after the gluten-free diet started but I actually went from 208-216. It stinks, I was expecting the opposite to happen with all the breads and pasta's etc gone. I think I am going to cut way back on sugar as well and see if that helps.

As always thanks for listening

Bill

Celiac diagnosed since march 2004

and feeling better, not 100% but I would say

50-75%. Will it ever end

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I'm 13 yrs. old, 5'1", 80 lbs. I don't have a huge appetite......celiac disease and sickness just completely turned me off to food......I wanna gain weight but-----I dunno.....I just don't feel hungry a lot and I've developed an aversion to food since it's food that gets me sick in the first place--I mean, I'll eat my meals and stuff, but I'm not terribly excited to have a dessert or snack......dr. said he'll talk to the nutritionist and maybe give me some drink supplement so I get all my nutrients and gain -- it's also easier for the intestines to deal with.

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well i'm 22, 5'5" @ 133lbs.

i WAS 150lbs a year ago...i eat differently, smaller portions as much as a i can, only b/c itz hard for me to cook and/or buy gluten-free food...i have Nitro Tech at home...a work out protein supplement, hoping that the ingredients will be fine enough for me to take and to gain back some of the weight i just keep losing...does anybody by any chance know if it is safe for us to eat? (Nitro tech)

Eddie

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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