Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Elimination Diet
0

5 posts in this topic

Two months gluten-free. First week was AMAZING.

since then, I'm sliding back down that slippery, slippery slope of feeling like crap.

I don't know if I've gotten sloppy with my diet, or if my body is discovering its other intolerances. Either way, I have a really hard time focusing all my energy (eating gluten-free) on something that's still making me feel like crap. (Granted, not NEARLY as crappy as before.)

So I've heard here and there about the elimination diet. What do you think? Have I just lost my patience all too soon? Should I try it? What do I need to know before starting it? Where's the best place to get info on it (books, websites, etc...)?

Any feedback and info is much appreciated!

- Courtney

0

Share this post


Link to post
Share on other sites


Ads by Google:

It actually an easy concept. Especially since you already are familiar with withdrawals and food deprivation. :lol:

Just get the common food allergy / sensitivities (soy, dairy, eggs, corn - you already took out wheat) and anything else that you know tears up your digestive tract out of your diet. For me that meant meat, tomatoes, chocolate, coffee, onions, garlic .... yep, I was a mess. :blink:

You probably already have a good idea of what your "safe foods" are. These are the ones you can eat everytime without any side effects. For me it was a plain baked potato, unsweetened apple sauce, white rice, peas, asparagus, etc.

Your goal is to keep your digestive system calm / normal. You may need some digestive enzymes or probiotics to help with this. My doc had me eating papaya, mango and pineapple since they are full of digestive enzymes and my food choices were so limited. And I use oils, like EVOO to keep me regular. Regular bm's will help your whole digestive tract since nothing is backing up in there. <_<

Once you have attained calm / normal digestion you can start adding in new foods. But, you have to add new foods a little at a time.

Even if you react to certain foods at first you can try them again later. It took me several attempts to get tomatoes back into my diet. But, now they are fine. Chocolate, too :D Dairy, corn, and eggs still get me. :o

You will need to keep a food diary so you can see what you reacted to. And track your meds too since we know those can really mess up your stomach too.

Hope this help you gets you started... Marcia

0

Share this post


Link to post
Share on other sites
It actually an easy concept. Especially since you already are familiar with withdrawals and food deprivation. :lol:

Just get the common food allergy / sensitivities (soy, dairy, eggs, corn - you already took out wheat) and anything else that you know tears up your digestive tract out of your diet. For me that meant meat, tomatoes, chocolate, coffee, onions, garlic .... yep, I was a mess. :blink:

You probably already have a good idea of what your "safe foods" are. These are the ones you can eat everytime without any side effects. For me it was a plain baked potato, unsweetened apple sauce, white rice, peas, asparagus, etc.

Your goal is to keep your digestive system calm / normal. You may need some digestive enzymes or probiotics to help with this. My doc had me eating papaya, mango and pineapple since they are full of digestive enzymes and my food choices were so limited. And I use oils, like EVOO to keep me regular. Regular bm's will help your whole digestive tract since nothing is backing up in there. <_<

Once you have attained calm / normal digestion you can start adding in new foods. But, you have to add new foods a little at a time.

Even if you react to certain foods at first you can try them again later. It took me several attempts to get tomatoes back into my diet. But, now they are fine. Chocolate, too :D Dairy, corn, and eggs still get me. :o

You will need to keep a food diary so you can see what you reacted to. And track your meds too since we know those can really mess up your stomach too.

Hope this help you gets you started... Marcia

Thanks Marcia

I already keep a food journal - have been on and off for years, if only so I can see just HOW much I"m eating! As for my safe foods...it all seems to have gotten jumbled up into one gigantic ball of abdominal pain. I suppose that just means some extra experimentation. After cutting everything out did you find that you had like a detox period where you just felt absolutely awful for a few days? How long did your whole elimination diet take? Do you know of any books or anything on the subject? How many questions in a row could I possibly ask you? :lol:

0

Share this post


Link to post
Share on other sites

Most people can eat the safe foods I listed so that would at least give you a place to start.

My whole digestive system was a mess from top to bottom too. I had food coming up the wrong way and food coming out - well you really don't want to know :ph34r::lol:

I have felt awful most of the time for about 16 years now, so I would not have noticed a detox. I hear it is common though. I did notice when I started feeling better though. It took about 4 months before I was feeling good about eating again. By then I had a few more food choices too. :)

Everytime I introduce a new food, I run the risk that it will make me feel crappy again. Yesterday, I ate some tortilla chips that nailed me. :( Only for a few hours though :)

I've been at this for over a year now and I am still adding foods in slowly. I added coconut, leeks, and garlic back successfully for the first time last week. :D I have to go slowly with these though since they have been a problem before. I have black beans in the frig to try, but I am very leary about these. These really tore me up last time. :unsure:

My diet is pretty much all fruits and veggies and "safe" meats. I do better if I stay away from processed grains, but I am fine with whole buckwheat, millet, quinao, etc.

I don't know of any books on the elimination diet, but I do all of my research on the internet. I am severely allergic to dust mites. Everyone has to figure out for themselves which foods they can eat.

Hope this helps ... Marcia

0

Share this post


Link to post
Share on other sites

I am still sort of on an elimination diet, even though I've added back some grains in flour forms. (It appears, at least at this moment, that I am tolerating rice, tapioca, corn and potato in flour form but not in grain form. :blink: )

I ate only fruits, vegetables and lean proteins. If you know for sure that rice isn't a problem, then eat that. I, however, wanted to make 100% sure that rice wasn't a cause for my problems.

The rule of thumb I used when adding back foods was that I added only one "questionable" food per week. If I didn't react to it immediately, I continued to eat it along with my staple diet and the next week I added back another food. If I did react to it, I stopped eating it and returned to my staples until my symptoms went away.

I have lots of recipes that involve only fruits, veggies and proteins, so if you're looking for stuff to eat, PM me.

:)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,337
    • Total Posts
      917,377
  • Topics

  • Posts

    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,470
    • Most Online
      1,763

    Newest Member
    Kiwiana
    Joined