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Gf & Pregnancy
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Hello, I am new to this website. Actually I am new to this disease called celiac disease. I have been diagnosed for about 4 mo. now and my husband and I want to try for our third child. I am scared to death. I have read some of the postings and it has helped ease some fear. I also have hypothyroidism. Meds take care of that problem. I don't understand why I am not underweight with celiac disease. I hardly eat anything and still struggle with weight issues. What is going on? I recently had a 2nd. biopsy and it still showed traces of gluten. Better but still there. Should I even be considering pregnancy. I have so many questions. :ph34r:

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Hi! I'm also new at this. Tho I'm still undiagnosed, It's been about 7 mos or so that I've been gluten free and am 5 1/2 mos pregnant with my first. I didn't know about all the risks to the baby before I became pg. It's been scary for me, wondering if the baby is getting all the nutrients that she/ he needs. I've read that Celiacs are often deficient in calcium, folic acid and iron- that really freaked me out. But so far so good. I seem to be progressing normally. I've have had no problems other than trying to eat gluten free with morning sickness- ugh. And getting just a tiny bit of gluten makes me even more nauseas. Anyway, I would say get used to the diet a little more first and make sure you're not deficient in any vitamins or minerals first. And of course talk to your Dr. but definitely have another baby. If you don't have a history of miscarriages you'll do fine, I'm sure. Just be informed ahead of time. Have you learned to bake yet? I know I crave all the foods I can't eat- and if I had known how to bake gluten-free- the breads and goodies- I probably would have felt much less deprived and be able to fill up more. The first few months I couldn't stand meat or veggies- so carbs were my thing- but difficult to get being gluten-free.

I don't know about the weight thing- it was instant for me. I lost 25 lbs in just a couple of months and I'm still losing- tho baby is getting bigger right on schedule. Anyway, good luck!

Beccathorn

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Have you gone completely gluten-free? If not, don't get pregnant until you have done so. And even if you have gone completely gluten-free, four months isn't enough time to heal completely. I'd still wait a little. The main thing is you want to make sure you are fully absorbing nutrients so that the baby is getting all it needs.

The weight thing is probably your own metabolism and genetics at work. Do you exercise? Even moderate weight lifting and walking can make a big difference. In addition, most people gain weight after they go gluten-free because they start absorbing all those calories they didn't absorb before. This is not true for all, but I would say it is for most. I gained 70 pounds in two years (30 pounds I needed; I've lost another 30; so there's still an extra 10 hanging around).

richard

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I had no problems concieving, carrying, and delivering my two daughters ages six and four. Last July we found out that I was preg. with our third baby. At twelve wks. I had to have a D&C due to a miscarriage that my body hadn't done on it's own yet. We waited three months and tried again. I miscarried at eight wks.. We decided not to wait and went for it after my next cycle. I miscarried again at five wks. We did the same thing again after the next cycle and I carried to ten wks. and had my fourth miscarriage. I had been occasionally cheating on on the diet and had some unsafe foods. But during my fourth preg. I was very careful not to cheat. I think maybe I hadn't had enough time in between pregnancies to rid my body of the gluten. I have had all of the blood tests and infertility testing and everything came back normal so I am pretty certain it was the gluten although I can't understand why I had my girls so easily when I was on an all gluten diet. I guess it also could be that God is saying now is not the time. :rolleyes:

Best Wishes For You and Your Baby :lol:,Rian

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    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
    • Time.  You need time to heal.  Yeah, I am like a broken record!  😄 So...Lycra is your best friend for now (that and old baggy sweats!).  Hang in there!  Hugs!     
    • So far dairy seems to be OK, as are eggs. I like canned chickpeas so will carry on with those. Beans I had ruled out at one point with the doctor's recommendation to go with the low FODMAPs diet but will reintroduce those now I know it probably wasn't that causing the problems.
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