Gluten Free Symptoms?
Posted 26 July 2004 - 08:07 AM
I just had a few questions about what happened to you all in your body when you went gluten-free.
I have been on the diet around a month and a half now. I know that most times I feel better, if I could just stop screwing up (but I am getting better at it)! I have started getting heart burn a lot, and it seems to kinda go up into my throat. Acid reflux? And, this happens almost every afternoon, getting worse into evening. Most days I am not eating something that would normally cause this. Some nights it is worse than others, but is almost always there in some form or another. Some times it just feels like mt throat is thick and getting sore. Is this normal? Or, am I maybe mistaking some seasonal allergies as having something to do with being gluten-free?
My arthritis has also gotton worse, and some nights it is nearly impossible to sleep. I have been taking a lot of Ibuprofen just to be able to get to sleep. My husband was concerned a few weeks ago that I had gone into hyperthyroid again, because of how lousy I was sleeping and the energy I had. Although, this week I have been back to naps, and zonking out early.
I also have more headaches. Which I guess could also be allergies. Usually my allergies are in the spring time, though. But, I guess monsoon season could have brought them up. It's just confusing, because I don't know what is going on with my body.
I did find that I am going to stop drinking caffeine. I am down to one cup of coffee in the morning. It is going to be hard to give that one up, but I know that caffeine makes my anxiety worse. I have known this for a long time, but I was reading about it the other day and it actually said that caffeine could do that (which most people don't believe, or don't want to believe).
Anwyay, I finally have my daughter on insurance. I should be on some myself the next few weeks. We will see what my doctor says about me going on the diet, etc. If I have to I will eat gluten again, but I hope that I will get the doctor to listen to me. I would like to have my daughter at least get the blood test for the gluten intolerance. I am highly suspious that she has the same thing, and JRA too. We will see.
Okay, I am done blabbing now. This E-mail was basically just to see if anyone else had any weird things happen when they went gluten-free, and if the symptoms stuck around, or went away? Thanks all for putting up with me!!!
Posted 26 July 2004 - 08:50 AM
Posted 26 July 2004 - 09:48 AM
I go back and forth with weight. I will lose around 5 pounds then gain it back. I really thought I would lose a lot, since I used to eat like a pig before going gluten-free. My weight has always been weird. I have stayed at 115 for the last 6 years, except when pregnant of course. I should be over weight because of being hypo-thyroid. But, it doesn't seem that I really gain or lose either way. Maybe it is all linked into the gluten thing, who knows. Thanks for your reply!
Guest_~wAvE WeT sAnD~_*
Posted 26 July 2004 - 10:45 AM
Posted 26 July 2004 - 12:20 PM
gluten-free since March 27, 2004
Posted 26 July 2004 - 05:43 PM
The first 3 months of being gluten-free I had similar symptoms.
really bad heartburn, bone and joint pain(flu like ache), headaches(gone for the most part but now a sure sign I have beed glutenized)
I still get those symptoms but not very often.
The biggest post gluten symptom is I sleep very little. 5 hrs a night and then I'm wide awake-still tierd-but unable to go back to sleep. I use to be king of naps but now I just lay there unable to sleep.
Keeping my weight up is also a bit of a problem.
Not big issues compared to what I was dealing with about a year ago.
Posted 26 July 2004 - 07:18 PM
Posted 30 July 2004 - 06:32 PM
Posted 31 July 2004 - 09:09 PM
Niteyx13, for me, the first week and a half, maybe 2 weeks, I had an on again, off again headache, that at times wasn't too bad, got real bad (for a few days), then seemed to lessen and eventually I noticed I wasn't having them anymore.
I also have more headaches.
Having headaches can be normal for me, but that was a lot more than normal. I figured maybe I was going through gluten withdrawl, if such a thing exist.
But, if it helps, yeah.. I had more headaches for awhile too.
Posted 01 August 2004 - 04:33 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 01 August 2004 - 06:28 PM
I was reading your post and I wondered if you ever had an Endoscopy?
When I had mine they found severe acid reflux, called Barrett's ring.
I have to be "scoped" every year because it can turn into Cancer.
I don't know if you know that Ibuprofen and other meds like that
can be very hard on your stomach. My Dr. prescribed Prevacid and the
gluten-free diet. After almost 8mos on this diet my symptoms have just about
disappeared. Please be careful about the acid reflux it can cause a lot of damage
and is usually associated with Celiac Sprue. Hope this helps a little...
gluten-free since 11/03, neg biopsy, IGA elevated
Posted 01 August 2004 - 07:15 PM
Long before I learned my life long symptoms were celiac related, I also had 'gastritis' and acid reflux. Back then they prescribed Zantac and Mylanta (which I consumed like candy). I got tired of the side effects of Zantac and worried about the aluminum in Mylanta, so I eventually stopped both and just limited or avoided foods that gave me those symptoms. I later learned that overeating (past being satisfied to the point of stuffed) ALWAYS gave me heartburn and reflux. I learned to live w/o meds but had to stay perfectly vertical for several hours after meals, because I had instant reflux if I bent over and even more so if I overate. However, 2 months after going gluten free, I learned I was ALSO casein intolerant (thru Enterolab tests) and cut out all dairy. My instant reflux completely disappeared within days. I'm not sure how much avoiding gluten affected my 'recovery' from GERD symptoms, but avoiding casein certainly eliminated those.
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
Posted 02 August 2004 - 05:00 AM
gluten-free since March 27, 2004
Posted 02 August 2004 - 11:38 AM
I haven't had a problem with acid reflux until I went gluten-free (except when I was pregnant). Before going gluten-free I had constipation, chronic tiredness, distention, and stomach pain (among other junk). I honestly am scared with what is going on with my body. Now some days I don't really feel any better, but some I do. I also accidently ate some gluten this weekend, and I haven't seemed to have had a reaction. I am kinda afraid that I have something else going on now. Now I have waves of nausea, headaches, stomach pains, distension, joint pain, "foggy head", and just generally feel lethargic. My constipation comes and goes these days, but seems to have gotten better. Unless I have just screwed up more than I realize and start to get better but screw it up by eating gluten. I have also tried to cut down on dairy some, but I already feel like I am starving half the time.
I am waiting for insurance, but they keep asking for more information. I want to talk to a doctor before going back on gluten for testing (I refuse to assume that a doctor is willing to test me before talking to one - because I generally have a distrust in doctors these days). Finances will not allow for Entrolab right now, because we have had some set backs this last month. So, I am kinda stuck.
I am sorry for venting like a 3 year old. It's my birthday and I am not having a good day. I have a headache, and my stomach is not right, and my kids are running around like crazy people - which doesn't help the head. Thanks to everyone who has responded!
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