Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Should I Get A Bone Scan Done?

mythreesuns

Recommended Posts

mythreesuns Contributor
mythreesuns
Posted

Ever since I told my mother I had arthritis in my foot she's been pushing me to get a bone scan.

I'm only 33, and even my dr remarked that it was odd that I should have osteoarthritis at this age without a previous injury.

What do you think?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elonwy Enthusiast
elonwy
Posted

I got a bone scan done. I'm only 28 and have no recognizable symptoms, but my mom developed osteoperosis at a very early age, and considering all that, I got it done just to be sure. It doesn't hurt and its unobstrusive, probably the easiest test of all this junk. If your ins. covers it, I say go for it.

Elonwy

Link to comment
Share on other sites
Michi8 Contributor
Michi8
Posted
Ever since I told my mother I had arthritis in my foot she's been pushing me to get a bone scan.

I'm only 33, and even my dr remarked that it was odd that I should have osteoarthritis at this age without a previous injury.

What do you think?

If you have celiac and related malabsorption issues, then your bone health can be affected. The test itself is very quick and easy.

Michelle

Link to comment
Share on other sites
jenvan Collaborator
jenvan
Posted

Bone scans are typically considered one of the tests to run post-diagnosis. Osteopenia/osteoporosis are often found in celiacs, more so women of course. I had one at 25 when I was diagnosed. However, it isn't considered essential by some. The good thing about having it done is that if your bone density needs attention you will know it and have time to improve it. (I not talking about osteoarthritis here though,which is what your mother mentioned...)

Link to comment
Share on other sites
mythreesuns Contributor
mythreesuns
  • Author
Posted
(I not talking about osteoarthritis here though,which is what your mother mentioned...)

My mother seemed to think there was a link between osteoperosis and osteoarthritis, which I guess I failed to mention. Given, my mother is not a medical expert by any means! LOL

Anyway, is it true that there is a link between osteoperosis and arthrits?

Link to comment
Share on other sites
beaglemania Rookie
beaglemania
Posted

I'm 14 and I have osteoporsosis, so I say you should do it. My aunt (doesn't have celiac) had bad osteoporosis since 35 years old, though my case and her case aren't related.

I used to have arthritis in my foot. I used to only be able to walk a short while befoe my feet really started aching. Their much better now though with the diet and an infusion drug I take 1 a month.

Link to comment
Share on other sites
evie Rookie
evie
Posted
Ever since I told my mother I had arthritis in my foot she's been pushing me to get a bone scan.

I'm only 33, and even my dr remarked that it was odd that I should have osteoarthritis at this age without a previous injury.

What do you think?

I say do it, you may not have it but it makes us feel better to KNOW!! :D What the problem is, then we do not speculate so much which can be worse than a known problem. It could be your foot pain is from Celiac joint problems, for many months (earlier this year) I had pain in L. ankle and both wrists...celiac related pain. My ankle is ok and only r. wrist bothers me now. If you do have it yoe can take more calcium & meds or ?? to better the case and be more comfy.

I just found I have it in my spine so am taking a stronger med & more calcium. All 3 of our dd in their 50's have it, 1 is worse than myself. she has started a new calcuim just out by infusion (IV), we sure pray it helps, she has such small bones. Good Luck to you/ prayers too from me. :) evie

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Arthritis is often hereditary. My son has had it since he was 18 and I have had it since my 20'a. Yes, you should have a bone density test done. If it shows nothing now then by all means make sure you have one done when you are older. I never had one done till a few months ago and there it is in my back and badly. Which means I who used ot be 5'4" is now 5'2.5", this is not good in another 20 years I will be 3 feet tall (hopefully not). Just for the record all my siblings also have arthritis and have since early ages. I knew when I was 30 that it was also in my back.

Rusla

Link to comment
Share on other sites
mythreesuns Contributor
mythreesuns
  • Author
Posted

Interesting points...thanks for the replies!

What makes this all the more odd is that there is NO early osteoperosis in my family. My grandmother had it, but she was well into her 80s and a chain smoker for years before she got it.

Well, my fibro friend just told me last night that the rheumy I'm going to on Monday (also her rheumy) can order a bone scan, so I'll ask him about it then.

Thanks, all!

Link to comment
Share on other sites
evie Rookie
evie
Posted
Interesting points...thanks for the replies!

What makes this all the more odd is that there is NO early osteoperosis in my family. My grandmother had it, but she was well into her 80s and a chain smoker for years before she got it.

Well, my fibro friend just told me last night that the rheumy I'm going to on Monday (also her rheumy) can order a bone scan, so I'll ask him about it then.

Thanks, all!

But YOU may be the first because of celiac not allowing your calcium to be taken into your body! :( I think that is my case but our dd could have inherited osteo from their paternal grmother. she had such tiny bones and so many breaks. Just wanted to bring that out. company coming...must get busy!! :)B):D:P Morning all! evie

Link to comment
Share on other sites
mythreesuns Contributor
mythreesuns
  • Author
Posted
But YOU may be the first because of celiac not allowing your calcium to be taken into your body! :(

Yeah, that was my thinking. It's odd enough to have problems at this age, odder still when there's no family history. That's why I think its worth getting the bone scan.

Thanks!

Link to comment
Share on other sites
  • 4 years later...
Mayflowers Contributor
Mayflowers
Posted

I think you should get your vitamin D levels checked first. Low vitamin D levels mean low bone density. I tested at 26 and normal levels are over 50 . With that I had a bone density test and I have osteoporosis. I'm 54. I already shrunk an inch from it.

I was 5'7 now I'm 5'6. :(

Link to comment
Share on other sites
Emilushka Contributor
Emilushka
Posted

If your insurance will cover it, get it done! I agree with everyone above who said it's better to know. This is your body and your health. If you're wondering, go for it. Get the answers you want.

I personally chose to NOT get the bone scan, but I also chose to put myself on calcium supplements and weight-bearing exercise instead and just assume I'm not at my peak bone density. It's really a personal choice at this point.

So if you find yourself wondering, make sure it's covered and then get it done. Better to have answers and sleep well at night.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • ekelsay
      50 YO Male Recently Diagnosed with Celiac Disease

      By ekelsay · Posted

      Today, I received the results of my Tissue Transglutaminase (tTG) Ab, IgA test. I am not sure how to interpret the results. I have left a message for the doctor that requested the test but have not heard back. The results stated that the normal range is from 0.00 - 4.99 FLU. My results came back at 92.08. Is this concerning? This seems extremely high for someone who has reached the age of 50 before finding out he has celiac disease.  The reason that I was administered the test in the first place is due to bloating issues that started about a year ago. I met with a Gastroenterologist and after a short question and answer session she wanted to test me for celiac disease and a bacteria test via the H. Pylori Breath Test. She seemed more concerned with the fact that I am a healthy male suffering from Anemia. Is it possible the anemia could be a result of celiac disease? I have been on an iron supplement for the better part of 5 years.      
×
×
  • Create New...