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Doritos
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Oooooooooh, I was so hungry this morning at school. I just needed a little snacky snack. I would've sworn on my life that Doritos are gluten-free. Just the regular ol' cheese ones. So I got a bag from the vending machine- one of those little tiny ones. As I was finishing it up, I turned the bag over out of habit. The problem was that I turned the bag over AFTER I'd eaten them.

Apparently there is wheat in the cheese flavoring. :blink:

An hour later I was trying my damndest to telepathically will my teacher to stop talking so I could go home to my bathroom where I belonged.

Three hours later, I was feeling okay. Not too bad. And it started to become reasonable to think that it really IS all in my head. Hey, great!

Four hours later...well I've been running between the couch and the bathroom for a few hours now. :(

The lesson is that when the company tells you to always check the product ingredients...well, you should probably always do just that.

The worst part is that the last three days I've been doing really well. I haven't had any blatantly noticable gut pain like I normally do. Only mild cramping/bloating/gas. No D for a few weeks, even! Oh! And I my first celiac support group meeting is tonite. What an ironic reason to miss it. (I was so excited, too...)

I am such a moron.

-Courtney (the moron)

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Hi Courtney,

You're not a moron--you're human like the rest of us. We've all made mistakes, and we learn from them!

At least the worst of it waited until you got home... :) Hope it passes quickly!

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This happens to all of us at one time or another. I hope you start feeling better soon. I used to get so frustrated when I just wanted a snack but wasn't sure what was safe or just nothing around that I could eat. Now I try to always keep a baggie with nuts, dried fruit, and gluten free pretzels and chocolate chips with me. It helps keep me happy when others have their little poison filled goodies or I can't get home to my nice safe gluten-free kitchen.

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Most of the cheese flavoured Doritos are gluteny. Nacho cheese and spicy (nacho) cheese or whatever being two of them. HOWEVER...for those cheese loving Dorito folks, the Doritos Zesty Cheese is gluten-free according to the CANADIAN list from Frito-Lay dated May 5/06.

Also, if you can find them (and I can't anymore) Superstore's PC Rebellos Spicy Nacho are gluten-free. They are a Doritos knockoff. I can only find some other kind of PC cheesy flavoured Rebellos that DO contain gluten.

Please note that the Zesty Cheese Doritos are gluten-free on the Canadian list. I have NO idea if they are gluten-free in the states, but it's worth a call to Frito-Lay.

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Oooooooooh, I was so hungry this morning at school. I just needed a little snacky snack. I would've sworn on my life that Doritos are gluten-free. Just the regular ol' cheese ones. So I got a bag from the vending machine- one of those little tiny ones. As I was finishing it up, I turned the bag over out of habit. The problem was that I turned the bag over AFTER I'd eaten them.

Apparently there is wheat in the cheese flavoring. :blink:

An hour later I was trying my damndest to telepathically will my teacher to stop talking so I could go home to my bathroom where I belonged.

Three hours later, I was feeling okay. Not too bad. And it started to become reasonable to think that it really IS all in my head. Hey, great!

Four hours later...well I've been running between the couch and the bathroom for a few hours now. :(

The lesson is that when the company tells you to always check the product ingredients...well, you should probably always do just that.

The worst part is that the last three days I've been doing really well. I haven't had any blatantly noticable gut pain like I normally do. Only mild cramping/bloating/gas. No D for a few weeks, even! Oh! And I my first celiac support group meeting is tonite. What an ironic reason to miss it. (I was so excited, too...)

I am such a moron.

-Courtney (the moron)

Oh Courtney, you are so not a moron. I've been ranting to the coworkers about the cheese-flavored Doritos for months (?) now. Who'd a thunk it? I'll bet you won't forget next time. Hope you're feeling better soon!

Insidious big box bidnesses... :blink:

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Oh Courtney, you are so not a moron. I've been ranting to the coworkers about the cheese-flavored Doritos for months (?) now. Who'd a thunk it? I'll bet you won't forget next time. Hope you're feeling better soon!

Insidious big box bidnesses... :blink:

Aren't the cool ranch safe also? I thought I heard that here once....

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Frito Lay

Products Not Containing Gluten

Last updated June 9, 2006

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All Frito-Lay products are labeled accurately with the most current ingredient information. Frito-Lay makes every effort to maintain this list; however, since the ingredients in our snacks are subject to change at any time, we recommend that you check the label on a specific product for the most current and accurate nutritional information. If you need assistance, please contact Frito-Lay Consumer Affairs toll-free at 1-800-352-4477 Monday through Friday between 9:00 a.m. and 4:30 p.m. Central Standard Time.

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Cool Ranch is gluten-free.

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Yeah. What I really wanted was Cheetos. I've had those several times with no problems.

Still sick...guess it's not all in my head!

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Yeah. What I really wanted was Cheetos. I've had those several times with no problems.

Still sick...guess it's not all in my head!

Dear cluecke,

You are not stupid. It was an honest mistake any of us could have made. I am extremely paranoid about it, but it is better to be safe than sorry. It is certainly not in your head! You need to do anything you can to prevent poisoning yourself. I have already planned some things for when I go out so I do not have to worry constantly about being hungry. I get low blood sugar, so I always need to have something with me! The Gluten-Free Market has some great stuff you can take with you. The bars are $1.99 a peice, and according to Amanda's Mommy's blog, a few Genisoy bars are gluten-free. Go find it on the blogs. She has a list. :)

Sincerely,

NoGluGirl

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No.. what is REALLY STUPID is what I did once... getting back to the UK and wanting my fav flavoured chips (crisps for UK readers) which meant I opened the bag and took a bit THEN started reading the labels while still chewing!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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