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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doritos
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Oooooooooh, I was so hungry this morning at school. I just needed a little snacky snack. I would've sworn on my life that Doritos are gluten-free. Just the regular ol' cheese ones. So I got a bag from the vending machine- one of those little tiny ones. As I was finishing it up, I turned the bag over out of habit. The problem was that I turned the bag over AFTER I'd eaten them.

Apparently there is wheat in the cheese flavoring. :blink:

An hour later I was trying my damndest to telepathically will my teacher to stop talking so I could go home to my bathroom where I belonged.

Three hours later, I was feeling okay. Not too bad. And it started to become reasonable to think that it really IS all in my head. Hey, great!

Four hours later...well I've been running between the couch and the bathroom for a few hours now. :(

The lesson is that when the company tells you to always check the product ingredients...well, you should probably always do just that.

The worst part is that the last three days I've been doing really well. I haven't had any blatantly noticable gut pain like I normally do. Only mild cramping/bloating/gas. No D for a few weeks, even! Oh! And I my first celiac support group meeting is tonite. What an ironic reason to miss it. (I was so excited, too...)

I am such a moron.

-Courtney (the moron)

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Hi Courtney,

You're not a moron--you're human like the rest of us. We've all made mistakes, and we learn from them!

At least the worst of it waited until you got home... :) Hope it passes quickly!

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This happens to all of us at one time or another. I hope you start feeling better soon. I used to get so frustrated when I just wanted a snack but wasn't sure what was safe or just nothing around that I could eat. Now I try to always keep a baggie with nuts, dried fruit, and gluten free pretzels and chocolate chips with me. It helps keep me happy when others have their little poison filled goodies or I can't get home to my nice safe gluten-free kitchen.

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Most of the cheese flavoured Doritos are gluteny. Nacho cheese and spicy (nacho) cheese or whatever being two of them. HOWEVER...for those cheese loving Dorito folks, the Doritos Zesty Cheese is gluten-free according to the CANADIAN list from Frito-Lay dated May 5/06.

Also, if you can find them (and I can't anymore) Superstore's PC Rebellos Spicy Nacho are gluten-free. They are a Doritos knockoff. I can only find some other kind of PC cheesy flavoured Rebellos that DO contain gluten.

Please note that the Zesty Cheese Doritos are gluten-free on the Canadian list. I have NO idea if they are gluten-free in the states, but it's worth a call to Frito-Lay.

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Oooooooooh, I was so hungry this morning at school. I just needed a little snacky snack. I would've sworn on my life that Doritos are gluten-free. Just the regular ol' cheese ones. So I got a bag from the vending machine- one of those little tiny ones. As I was finishing it up, I turned the bag over out of habit. The problem was that I turned the bag over AFTER I'd eaten them.

Apparently there is wheat in the cheese flavoring. :blink:

An hour later I was trying my damndest to telepathically will my teacher to stop talking so I could go home to my bathroom where I belonged.

Three hours later, I was feeling okay. Not too bad. And it started to become reasonable to think that it really IS all in my head. Hey, great!

Four hours later...well I've been running between the couch and the bathroom for a few hours now. :(

The lesson is that when the company tells you to always check the product ingredients...well, you should probably always do just that.

The worst part is that the last three days I've been doing really well. I haven't had any blatantly noticable gut pain like I normally do. Only mild cramping/bloating/gas. No D for a few weeks, even! Oh! And I my first celiac support group meeting is tonite. What an ironic reason to miss it. (I was so excited, too...)

I am such a moron.

-Courtney (the moron)

Oh Courtney, you are so not a moron. I've been ranting to the coworkers about the cheese-flavored Doritos for months (?) now. Who'd a thunk it? I'll bet you won't forget next time. Hope you're feeling better soon!

Insidious big box bidnesses... :blink:

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Oh Courtney, you are so not a moron. I've been ranting to the coworkers about the cheese-flavored Doritos for months (?) now. Who'd a thunk it? I'll bet you won't forget next time. Hope you're feeling better soon!

Insidious big box bidnesses... :blink:

Aren't the cool ranch safe also? I thought I heard that here once....

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Frito Lay

Products Not Containing Gluten

Last updated June 9, 2006

BAKED! CHEETOS® Crunchy Cheese Flavored Snacks

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*Our LAY’S® STAX® chips (all flavors) are made on gluten free lines, thus all LAY’S® STAX® products are free of gluten.

*The above products do not contain gluten; however, they are produced on the same line as our products that do contain gluten. Although the lines are washed between batches, a slight residue may remain on the lines. Individuals who are extremely sensitive may be affected.

All Frito-Lay products are labeled accurately with the most current ingredient information. Frito-Lay makes every effort to maintain this list; however, since the ingredients in our snacks are subject to change at any time, we recommend that you check the label on a specific product for the most current and accurate nutritional information. If you need assistance, please contact Frito-Lay Consumer Affairs toll-free at 1-800-352-4477 Monday through Friday between 9:00 a.m. and 4:30 p.m. Central Standard Time.

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Cool Ranch is gluten-free.

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Yeah. What I really wanted was Cheetos. I've had those several times with no problems.

Still sick...guess it's not all in my head!

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Yeah. What I really wanted was Cheetos. I've had those several times with no problems.

Still sick...guess it's not all in my head!

Dear cluecke,

You are not stupid. It was an honest mistake any of us could have made. I am extremely paranoid about it, but it is better to be safe than sorry. It is certainly not in your head! You need to do anything you can to prevent poisoning yourself. I have already planned some things for when I go out so I do not have to worry constantly about being hungry. I get low blood sugar, so I always need to have something with me! The Gluten-Free Market has some great stuff you can take with you. The bars are $1.99 a peice, and according to Amanda's Mommy's blog, a few Genisoy bars are gluten-free. Go find it on the blogs. She has a list. :)

Sincerely,

NoGluGirl

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No.. what is REALLY STUPID is what I did once... getting back to the UK and wanting my fav flavoured chips (crisps for UK readers) which meant I opened the bag and took a bit THEN started reading the labels while still chewing!

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
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      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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