Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hello And A Big Thank You

spunky

By spunky
in Coping with Celiac Disease

Recommended Posts

spunky Contributor
spunky
Posted

Hello!

I just wanted to tell you all that I discovered this message board a while back and have found it immensely helpful to me. I am a mid-fifties female. Beginning around 15 years ago, I felt my health was taking a downward spiral, read about gluten and thought maybe it fit my situation. I went off of gluten for a while, got no better, and decided maybe that wasn't the problem afterall, but continued on with worsening problems, especially rapidly emerging intestinal issues, for the next 5 years. I didn't know if it was aging or what to think, but I wasn't very well and I became inclined to try to spend most of my time at home, more and more.

Since I absolutely hate doctors, it was out of the question for me to consult one. I've never had any luck with doctors in the past, and as a matter of fact, they have mostly done me more harm than good. So I was on my own.

After running across this message board about a year ago, I began to see that my previous effort to attempt a gluten free trial was not done correctly at all, and also I was looking for improvement way too soon than it was likely to happen.

I tried it again 7 months ago. Those past 7 months were like a bumpy roller coaster ride, especially the first 3 of those months, but because I kept coming here often and consulting information and even reassurrance I would derive from your experiences that I saw here at this board, I knew much better what to expect this time, how to avoid mistakes, and most importantly, to KEEP going for a while. Now in my 8th month gluten free, I can finally see the light! I feel better than I can ever remember feeling before. It's amazing to see the difference. I thought I was better just a month ago, but now I'm seeing that apparently it's been a long time since I knew what it was like to feel really good!

I am so grateful to all of you here whose shared experiences walked me through many tearful times, times when I thought I wasn't getting better, times when I had no where else to turn to. I cannot thank you enough for sharing your experiences. I would never have continued trying this for such a long time before; I expected results in just a couple of weeks and didn't realize all of the hidden traps of cross-contamination and questionable ingredients.

I think you all should know that there are probably others besides myself who lurk here once in a while, and you probably don't know how many people you have helped by sharing your experiences in a public forum like this. You've helped me more than any doctors ever did in my past, and I'm so happy to be gluten free and feeling perfectly normal and well now, besides carrying a wealth of knowledge to help me to know which ingredients or situtaions I need to avoid. I can't thank you enough. You are all doing a very nice thing by being here!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Spunky, welcome to the board! I, too, have found a wealth of information here and have managed to make some good friends along the way. I'm glad it's working for you and I hope you stick around for a while and share your experiences and just have some fun with us!!

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Hi Spunky--what a wonderful story! I'm very glad you found us, and that we could be of so much help to you :)

Your story also proves what we say often to people confused about whether to persue a formal diagnosis, for whatever reason. You don't need a doctor's permission or a prescription to go on the gluten-free diet--if you feel better this way, then you have the answer for you.

I wish you continued good health--and hope you'll stick around and post more often :)

Link to comment
Share on other sites
Ursa Major Collaborator
Ursa Major
Posted

Hi Spunky, and welcome to this board! I am glad you've finally come 'out of hiding', and I'm very glad that you have been helped so much by reading here.

It's great to see that at least one person our age has gotten completely better on the gluten-free diet. Because this far I haven't seen anybody else who by their fifties had not developed any other issues because of being misdiagnosed for such a long time. Myself included, of course.

Link to comment
Share on other sites
spunky Contributor
spunky
  • Author
Posted
Hi Spunky, and welcome to this board! I am glad you've finally come 'out of hiding', and I'm very glad that you have been helped so much by reading here.

It's great to see that at least one person our age has gotten completely better on the gluten-free diet. Because this far I haven't seen anybody else who by their fifties had not developed any other issues because of being misdiagnosed for such a long time. Myself included, of course.

Link to comment
Share on other sites
Guhlia Rising Star
Guhlia
Posted

Welcome, Spunky!!! So glad you're beginning to feel better.

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spunky!

Thank you for the reminder that not only the ones who we see and post with are benefitting from our knowledge, but the myriad of silent lurkers who are reading and listening and learning behind the scenes. I am so glad things that you have learned on here have made such a difference to your life!

Hope to see you around more!

Hugs.

Karen

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

Welcome to the forum and thank you for sharing such a wonderful story. I am so glad that you have gotten so much better.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the boards and to good health. I do so hope you will stick around and want you to know how valuable your story is to the folks who are in the early stages of living gluten free and getting frustrated with the ups and downs and all the 'little' things that are so important like CC. I am going on 4 years gluten-free and am still amazed how much I continue to improve. It can be a long slow process for so many of us and your telling your story is so helpful. Thanks for sharing and again welcome.

Link to comment
Share on other sites
spunky Contributor
spunky
  • Author
Posted
Hi Spunky, and welcome to this board! I am glad you've finally come 'out of hiding', and I'm very glad that you have been helped so much by reading here.

It's great to see that at least one person our age has gotten completely better on the gluten-free diet. Because this far I haven't seen anybody else who by their fifties had not developed any other issues because of being misdiagnosed for such a long time. Myself included, of course.

Link to comment
Share on other sites
AndreaB Contributor
AndreaB
Posted

Welcome Spunky! :D

Thank you for sharing your story. Hope to see you around some other threads as you get comfortable posting and sharing your knowledge. :)

Link to comment
Share on other sites
spunky Contributor
spunky
  • Author
Posted

You're all very kind! I wanted to say that Urusula, your posts have been especially informative. I'm sorry things are going so slowly for you and you've had so many difficulties, and hope things just get better and better for you.

One of the most helpful insights for me was to see that gluten reactions might not be too immediate. I discovered in my own case, that accidental glutenings didn't cause problems until around 3 or 4 days later, and then set me into a bad way for maybe a couple of weeks, or close to it. Back 5 years ago when I tried gluten free, I had no idea that symptoms could be so delayed, and I really never could figure out what was causing continued symptoms, besides the fact that, as I said before, I can look back now and see where I was never entirely away from gluten enough to see consistent results.

OVer the past month, I've been feeling really good. My mood has been elevated so much too. My only error was with beer. Since I'm not a beer drinker normally, I just didn't think (DUH!). My neighbor came over to visit one evening and brought some expensive beer with her. I told her thank you but I just don't like beer, but she insisted I just taste it, because the stuff was so expensive I might just find that I did like it. Well, to make her happy, without thinking, I did taste it. I didn't like it and had only a gulp. But later that evening it just hit me what I'd done. I was afraid I would get sick in 3 or 4 days, and stay that way for the predictable 8-12 days or more. But it hit within about 24 hours, very mild this time, and lasting only a couple of days. BEsides that one time, I have felt like a totally new person!

Again, I'm thankful to all (out of the closet here now!), and have gotten so much information that's helped me to stick with it long enough and know how to be more careful. Ursula, I hope things improve all around for you, and again want to thank you personally for the helpful insights I've gotten from all the posts you've written here.

Link to comment
Share on other sites
Jestgar Rising Star
Jestgar
Posted

Hi Spunky,

I lurked for a while too. I finally felt kind of guilty and started posting.... :)

Link to comment
Share on other sites
AndreaB Contributor
AndreaB
Posted
Hi Spunky,

I lurked for a while too. I finally felt kind of guilty and started posting.... :)

Jestgar,

I grew up in South Puget Sound. I'm now down by Vancouver. Are you aroung the Seattle area?

Link to comment
Share on other sites
elye Community Regular
elye
Posted

Spunky, I want to thank you for such a positive story! I recently read a post from a member who is leaving the board due to frustration with the way some posts have been going, and I was feeling a bit sad. Good timing, my reading your post of appreciation! I've been uplifted now. We'll hear from you on further threads... :)

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
Posted

Spunky,

I'm so happy for you! I hope you continue to feel better and better in the weeks to come. Thanks for sharing your story. :)

Link to comment
Share on other sites
rinne Apprentice
rinne
Posted

Thanks for sharing your story Spunky, great to know that persistence pays off. :)

Link to comment
Share on other sites
Rikki Tikki Explorer
Rikki Tikki
Posted

Welcome Spunky! :D:D:D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,176
    • Most Online (within 30 mins)
      7,748
    a-ball
    Newest Member
    a-ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
×
×
  • Create New...