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How Many Months After Starting Diet Did It Take You?


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4 replies to this topic

#1 IrishKelly

 
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Posted 19 September 2006 - 08:01 AM

I would like to start a research poll for the newbies on here. I'm curious as to how many months of a gluten-free diet it took until some of us started to feel better? I know the first couple weeks i used to get a little paranoid wondering if this "d" would actually ever go away. I'm 3 months in (still a newbie) and i still sometimes experience "d" and once in a while constipation. I learned from people on here that i ended up with a dairy problem too. All of this has gotten about 50% better at this point but i am still defintitely not healed.
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Gluten Free...negative blood results...absolutely positive diet results.
Dairy Free...absolutely positive diet results.
Egg Free...there goes another one...absolutely positive diet results.
Allergic to Codeine.


"Life is like a box of chocolates...you never know which ones may have gluten in them:)"

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#2 carriecraig

 
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Posted 19 September 2006 - 08:40 AM

Hi Kelly,



It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.



Hang in there.
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Carrie
Blood test May 25, 2005
Positive diagnosis through Endoscopy June 13, 2005
gluten-free since then...

#3 IrishKelly

 
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Posted 19 September 2006 - 04:53 PM

Hi Kelly,



It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.



Hang in there.


Wow, anyone else wish to leave their comments?
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Gluten Free...negative blood results...absolutely positive diet results.
Dairy Free...absolutely positive diet results.
Egg Free...there goes another one...absolutely positive diet results.
Allergic to Codeine.


"Life is like a box of chocolates...you never know which ones may have gluten in them:)"

#4 ravenwoodglass

 
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Posted 20 September 2006 - 07:59 AM

I noticed a difference in the amount of D I had right away, perhaps because I had D every day multiple times for 15 years before I did the elimination diet. I was very, very sick for a very long time so even a bit of improvement was cause for great joy. That said it took almost a year for all of the gluten related issues resolve for the most part, I attribute some of this to my being clueless about issues like CC and nonfood gluten for the first 6 months. I am now 4 years into the diet and except for some residual neurological damage that is still slowly resolving I am healthier and have more energy than I have had since I was very young. Seeing as I have been celiac since about the age of 5 when neuro symptoms first appeared and had severe GI troubles (misdiagnosed as IBS, take immodium, have a prozac and learn to live with it) starting at 30 I consider myself very fortunate that I have recovered as much as I have. Healing can be a long process and for me it required going to a diet that contained almost no processed foods but heal I have.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 spunky

 
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Posted 20 September 2006 - 08:11 AM

I knew things were "different" after two careful weeks of totally gluten free...but I wasn't actually "better," if that makes any sense. My "intestinal" activity was behaving differently, different patterns, but I was messed up pretty bad. After 3 months, I started having good days that felt like a normal person, but not every day was good, some were as bad as ever, it seemed. I had trouble seeing the difference between just setbacks and accidental glutenings for a while, and I don't know if it's always possible to know the difference in the early months. Finally, now at 8 months, I am having a pretty long normal time, and I feel so good it's amazing. I've noticed major mood improvements too, recently. I used to have sort of a despair feeling, but have felt very optimistic and hopeful with this new normal, well-feeling stage. I hope it lasts forever! Eating just feels better too. I think my entire digestive system is vastly improved now and I love to eat (it just feels better to eat now than it used to) and just need the bathroom once a day, except for the multiple coffee-induced, bladder visits, of course.
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